INTRODUCTION

In this post I will be explaining why there has been a hiatus in this blog. I hope that normal posting will be resumed from tomorrow.

HIATUS PART ONE: PHYSICAL SICKNESS

On Monday morning everything went OK until breakfast. The carer arrived and I was still OK, though feeling a bit tired. Then just after the carer left I was sick. My entire breakfast came back up. My aunt came round, and helped sort things out, another carer cleaned up the mess and washed the stuff thatr needed washing. My aunt left at about 11:30. Between then and her return around 1PM I was sick twice more. There was then another episode while decisions were being made about what to do. Near the end of the trip to Addenbrookes I brought up some pure bile. 

At Addenbrookes I was admitted overnight, given an x-ray and a CT scan and they decided that the most likely explanation was a partial seizure. I was discharged the following day, with a new anti-seizure medication added to my regular medications. 

On Wednesday I woke up feeling OK, got up to open the curtains and nearly fell out of bed in the process. I returned to bed to read for a bit before getting up, but by disorientation and sense that the room was spinning did not go away. I was not able to concentrate of the book for very long, and went back to sleep for a period. The carer called an ambulance for me, and as there was no way I could be got into my aunt’s car and an emergency ambulance can only take one to the nearest hospital I was off to QEH, although efforts were made to get me moved to Addenbrookes. I was taken off the anti-seizure pill as what I had suffered was known to produce the symptoms I had experienced as a common side effect. I was then put back on it to see if I could cope and I could. They were originally going to keep me in until Tuesday so that I could see the neurologist, but eventually an outpatient appointment was made for 10AM on Wednesday and I was discharged yesterday. 

Our misgivings about QEH notwithstanding the staff were excellent and the care and support I received was splendid. 

I had an uninterrupted night’s sleep last night and a good start to the day this morning, and have had a good day so far today. On the way to my aunt’s for lunch today I overlapped with the end of the Great East Anglian Run (GEAR), but through being in hospital so much recently I had missed the fact that NAS West Norfolk had arranged a designated meeting point, so although I had a chance encounter with one of my fellow committee members I was not part of our presence at the event, something which I regret and for which I take this opportunity to publicly apologise.

I hope that the appointment with the neurologist sheds more light on what has been going on and that we can move forward from there.

Author: Thomas

I am a founder member and currently secretary of the West Norfolk Autism Group and am autistic myself. I am a very keen photographer and almost every blog post I produce will feature some of my own photographs. I am an avidly keen cricket fan and often post about that sport. View all posts by Thomas