Moving on to the Front Foot Against the Big C

An optimistic account of the latest milestone in my ongoing recovery from cancer.

INTRODUCTION

This is an optimistically titled post , borrowing a metaphor from my favourite sport, based on events from today. As I hope you will observe the optimism has some justification…

A TOP UP SHOP AND GAYWOOD LIBRARY

I was running out of coffee and had already decided that I would venture to the local mini supermarket to see if I could stock up there. I decided once I had sallied forth that if I felt reasonable when leaving the shop I would do some extra walking by way of asserting my continued recovery. The purchases duly made (I also bought a couple of biros as I have something of a shortage in that department) I headed off in the general direction of Gaywood Library (smaller but also closer than the main Kings Lynn library). I selected three books from the library (restricting myself to an easily carryable number), gave myself a short restorative break by logging into one of the computers to do some stuff there and then completed the process of borrowing the books.

I walked back by way of a stretch of the Gaywood River, some meadow and the Discovery Centre, arriving back at Columbia Way at about 12:45. I was out and about for just over the hour, meaning that my total time spentg walking was about 40 minutes.

Although I am quite tired from this little excursion I am also glad that I made it, and mark it off as another staging post in the long process of recovery.

PHOTOGRAPHS

Here are the photographs from my little expedition:

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Mallards enjoying a section of the Gaywood River…
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…and demonstrating that they can fly.
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Gaywood Library
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Immediately outside Gaywood Library
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Mallards in formation on another section of the Gaywood
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The first of three brand spanking new information boards about the Gaywood River

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A distant view of a magpie.

India on Brink of Victory at MCG

INTRODUCTION

The Boxing Day test match at Melbourne has limped into its final day, with India needing two more wickets for a convincing and thoroughly deserved victory. India claimed an extra half hour to try to finish things today but were unable to do so.

INDIA SECOND INNINGS – 54-5 OVERNIGHT TO 106-8D

Patrick Cummins emulated Jasprit Bumrah by picking up career best test bowlinjg figures in this match (6-27 in his case). India’s declaration left Australia needing 399 to win…

AUSTRALIA SECOND INNINGS 258-8

Australia’s main batting performed like a squad of Wattos – most of them got some sort of start but none went on to a significant score. Then that man Cummins showed that his abilities are not entirely restricted to bowling – he is not a genuine allrounder but his batting is definitely a cut above that of the out and out tailender – he finished the day on 61 not out, the only Aussie fifty of the match. Nathan Lyon at number ten held out for over an hour, which should have had some his supposed betters squirming as well.

Bumrah added two wickets to his first innings six, equalling a record match aggregate for an Indian paceman in Australia (Kapil Dev twice took eight in a game there and Ajit Agarkar achieved the feat once). Ravindra Jadeja picked up three wickets with his left arm spin and Ishant Sharma and Mohammed Shami also struck.

India deserve to be on the brink of victory, and Cummins’ late defiance will end up enhancing the entertainment value of the match but not affecting its result. 

SOME THOUGHTS ABOUT THE UPCOMING ASHES SERIES

This English season the Aussies come calling to resume the oldest grudge match in international sport. Based on their unconvincing efforts against India at home and England’s triumph in Sri Lanka I make the home side heavy favourites, probably to win with a very comfortable margin of superiority.

Looking at the match at the MCG prompted some thoughts about England’s bowling options for this series, and I have arrived at the following:

  • England need at least one bowler who can produce vicious pace in their squad – which means that the Norfolk born Olly Stone gets the nod from me. 
  • James Anderson, who in the veteran stage of his career no longer has the pace but has ringcraft in spades is of course a guaranteed selection.
  • At least one other specialist pace bowler will be required to support the first two.
  • After their triumphs in Sri Lanka it is hard to look beyond Rashid and Leach for the front-line spin bowling roles at present.
  • If his head is in the right place Ben Stokes could be useful as back up bowler but should not be considered for a front-line bowling slot.
  • I am largely happy with the front-line batting for England, with Ben Foakes having made the keepers role his own and Bairstow now surely ensconced as no 3. I am not entirely happy about the continuing presence of Jennings but he did make runs in Sri Lanka and the Sutcliffe Super Radical Solution (Tammy Beaumont to be given her chance among the men) is not going be adopted any time soon.

As against this Australia are short of both form and confidence, and with the honourable exception of Usman Khawaja have no front-line batsman who is currently scoring with any consistency.

Thomas’s predicted Ashes outcome: England 4 Australia 1 (I do not believe that these Aussies are sufficiently bad as to be left winless but England look better in all departments).

PHOTOGRAPHS

Finally for those who have reached the end of this post here are some pictures from my “Cabinet of Curiosities”:

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A Meal Out and Cricket

Accounts of a meal out last night and of the state of play at the MCG (very satisfying for a Pom, who by default supports Australia’s opponents!).

INTRODUCTION

This post deals with two unrelated events – last night’s supper at The Market Bistro in King’s Lynn (another staging post in my convalescence from cancer – coping with an evening out in public, which for an autistic person can be a challenge even at the best of times) and the amazing happenings overnight UK time at the Melbourne Cricket Ground. I have some pictures as well.

SUPPER AT THE MARKET BISTRO

I intended to eat a full meal and have the one alcoholic drink I can allow myself at present. My father arrived to give me a lift there as planned at about 6:30. Then he went to collect my sister from West Lynn where she was staying, a taxi firm having her down. 

The food was excellent – I ate an amuse bouche but declined the bread and butter as I had ordered two courses to which I intended to do full justice (and succeeded). My starter was a duck terrine covered by a potato cage and missing (at my specific request) the egg that should have been part of it. It was delicious, though an incongruously small portion to be served in the middle of a monster sized plate. For the main I opted for pork belly accompanied by smoked beetroot, various salad type vegetables and game chips. It was excellent in every respect, and judging from the fact that every plate at the table was clean by the time we finished so was everyone else’s. I washed the meal down with a beer that was brewed in Wisbech and was absolutely delicious (and at 5% alcohol not fiendishly strong – I rejected a couple of other options as being too strong in the circumstances). 

By the time I drained the last of the beer it was just after 8:30PM and I was feeling the need for home. My father gave me a lift back, and that was the end of my activity for the day.

INDIA TAKE CONTROL AT THE MCG

Over the first two days play in the Boxing Day test match at the MCG it looked like a repeat of last year’s Ashes match at the same ground with the drop-in pitch (in spite of retaining its name the MCG is preimarily an Aussie Rules venue these days) apparently lacking any pace or life. Bowlers could not get wickets and the lack of pace meant that batsmen were scoring slowly. Going into day three the scoreboard read India 443-7D, Australia 8-0.

Suddenly things started to happen. First Jasprit Bumrah bowled magnificently to record a test best 6-33 as Australia were rock ‘n’ rolled for 151. India then decided that a lead of 292 was not quite sufficient to go for the innings win and batted a second time. Patrick Cummins proceeded to knock the top of that second innings, backed up by some nasty stuff from Josh Hazlewood (both bowlers regularly propel the ball at over 145 kilometres per hour), and India closed the day at 54-5 in their second innings, a lead of 346, and almost certainly given the difficulties of chasing big runs in the final innings a victory awaiting. Nonetheless I think Kohli was wrong not to enforce the follow on – I would have much preferred to see him go for the quick kill. In the context of test cricket I would decline to enforce the follow on only if one up in the final match of a series, which this is not. Out of some 2,500 test matches a mere three have been won by teams who were made to follow on – England did it aided by the weather at Sydney in 1894, England did it again at Headingley in 1981 when Ian Botham famously “gave it some humpty” and Bob Willis then bowled like a man possessed to take 8-43 and then there was the Kolkata match when Laxman made 281, Dravid 180, India declared their second innings at 657-7 and dismissed a demoralised Australia for 212 to win by 171 runs (yes folks, the only test team ever to have lost a test match after enforcing the follow on are the Aussies, victims on the only three occasions such a comeback happened).

PICTURES

Here are the promised pictures:

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All bar one of these pictures are postcards in an album. Although this Beck mpa is faded I still felt it belonged at the front.

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Ending the selection for the album with one about progress.
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A Thatcher themed £50 note (defo not legal tender!)

Christmas Update

A brief account of my Christmas period and how I managed to enjoy it in spite of limitations imposed by current state of health.

INTRODUCTION

In this post I will tell the story of my activities since Monday, and the continuing tale of rhe improvement in my state of health and happiness. There are plenty of accompanying pictures. 

MONDAY – MAINLY ADDENBROOKES

Unlike the previous Monday this day although still fairly long went basically smoothly, with my treatments running exactly as planned. I was by this stage sufficiently improved to walk around the main hospital building rather than using a wheelchair. In preparation for the day I had selected three books from my shelves, and this proved a wise choice as I read all three while at the hospital.

I took some photos of some of the artwork on display at Addenbrookes as well…

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These displays of famous people associated with Cambridge were created by the legendary Quentin Blake who cut his teeth as Roald Dahl’s illustrator.

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I am particularly glad to see Rosalind Franklin credited in this panel (something neither Watson nor Crick did at the time after being shown her work without her having been consulted)

CHRISTMAS DAY – COLUMBIA WAY AND NELSON STREET

I was not entirely sure how I would cope with Christmas Day itself. My sister arrived at my home to pick me up at about 10AM, dropped me at Nelson Street where my aunt lives and the went to wash, change and wake up my nephew (the latter being by some way the hardest task!). A cup of coffee taken in the kitchen was a good start. Managing the stairs to use the toilet (had this proved beyond me there was a downstairs flat we could have accessed) was also good news. 

Lunch was excellent, and in accordance with the advice of Research Nurse Rebecca Bradley I consumed limited quantities of alcohol (one small glass of fizz and another of white wine).

After lunch we opened the presents, which went very well. The last present was unwrapped just before 4PM. At this point I decided to call it a day and get my lift home. I walked to Boal Quay car park where the car was waiting. 

Here are some pictures from the first part of Christmas Day…

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The first five pictures were taken at my bungalow in the morning.

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The cup I had my coffee in at Helen’s
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Presents laid out.

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Close up shots of the woodburner (using the zoom lens)

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A tiling pattern in the kitchen.
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Mr President put in an appearance among the presents!

One of my presents (I had already had a lot of stuff in advance, so most of the stuff I got on the day was small) was a stamp album with a few “Hagner” style pages. I devoted a little time to displaying some of the stamps that John from Musical Keys had given me while I was in hospital, and also to selecting some postcards to go in a little display album I had for them. I have yet to photograph the postcards, but here are some stamp pictures…

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Railway stamps.
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Insects and Birds
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Insects close up.
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Animals, Cras, Boats and Mountains
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Animals close up

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Mixed stamps.

I took one more picture, of my largest railway map, spread out on the carpet:

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BOXING DAY

My Boxing Day began on Australian time as I wanted to listen to the test match from the MCG. For a Pom it was a very satisfying listen as India finished day 1 strongly placed on 215-2 with Pujara and Kohli going well together. So far today is going quite well – the district nurse was happy with my temperature and blood pressure readings (the latter at 118/69 were about as good as they have been anytime in the last two months) and I although tired I am not experiencing any sort of adverse reaction to yesterday.

Another Small Victory

A brief account of another staging post on my road to recovery.

INTRODUCTION

This afternoon saw another staging post in my receovery from cancer…

MY FIRST INDEPENDENT OUTDOOR WALK SINCE BECOMING ILL

Just before 2PM this afternoon I left my bungalow for a short walk. Although fairly cold and very grey the weather here is by no means terrible given that we are at the back end of December, so having donned by black beanie to cover the most obvious signs of the treatment that I have been undergoing I was ready to sally forth. I was out and about for approximately 15 minutes and save for occasional photography stops was walking all that time on my unaided own. Here are some pictures…

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This map is on display in my front porch.
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A Czech sculpture and some other bits beneath the map.
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The green space I look out on to viewed from one corner.
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My local shops (the chippy is closed, it being Sunday).
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A swiming gull on a pond that faces out on to Harewood Parade.
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The oldest item in my collection – this trilobite lived approximately 438 million years ago.

Autism and Cancer

Some early thoughts on autism and cancer.

INTRODUCTION

This post will consist of some early thoughts about Autism and Cancer and also some pictures from my new abode. However before getting into the main meat of the post there is an issue to address briefly first…

AUTISM AND FUNCTION LEVEL LABELS

In brief: DO NOT USE!! For more detail read the rest of this section. Before moving on to my onw thoughts a couple of honourable mentions: the Neurodivergent Rebel has posted some good stuff about the abuse of function level labels in relation to autism and Laina via both thesilentwave.wordpress.com and her sharing site lainascollections has also covered the issue.

I am often labelled as a high functioning autistic (indeed readers of this site will be aware that I was already into my 30s before being recognized as autistic at all) but that is highly misleading and dangerous. People noting my overall intelligence and articulateness and the fact that I devour books at rapid rate assume I need little support. Not true – there are some things that I struggle badly with and where support is needed. The “High Functioning” label is at best misleading and at worst it is downright dangerous.

MANAGING AUTISM AND CANCER

Managing cancer is a challenge but considered in isolation one that can be handled. Managing autism is sometimes a challenge (and sometimes autism works in my favour), and taken in isolation it is not too difficult. Managing cancer through the prism of autism is an enormous challenge. Apart from my regular blood thinning injections (I had two blood clots while being treated in hospital), which are still administered by a district nurse I am now largely responsible for taking my own medications of which there are huge quantities.  I also need to do things like monitor body temperature (currently seems to be stabilised at 36.1 C) and weight (one effect of being so ill is that now weigh less than at any time since my mid-teens. 

ADDENBROOKES ACKNOWLEDGEMENT

A small army of staff at Addenbrookes went way above and beyond the call of duty in looking after me and treating me during the worst of the illness. To name names would be invidious – you all know who you are and you are all absolute heroes. Understaffed and underfunded as it is the NHS is kept functioning by the efforts of people like this, who can still crack a smile when they have been rushed off their feet for 13 hours straight.

HOSPITAL TALES: WALKING STRENGTH BACK INTO THE LEGS

For about the first two weeks I spent at Addenbrookes I was effectively completely immobile (for a few days I was wired up to an oxygen mask), and for about a week before that I had hardly been mobile at all, so I lost a lot of strength from my legs. Once I was able to be mobile I took to walking up and down the ward when I felt strong enough, starting with small distances and working my way up gradually. Before I finished I could on a good day walk up and down the ward 20 times without stopping. I felt a benefit of this yesterday when I did a small amount of walking in King’s Lynn town centre to do my christmas shopping. 

PHOTOGRAPHS

I promised some pictures and here they are:

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Cricket Corner! (some of my cricket books are on other shelves as well but this is most of them)
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Display items in sitting room

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Thomas’ Cabinet of Curiosities (units assembled by Simon from NAS, treasures arranged by my father) – named in honour of Ian Stewart;s “Cabinet of Mathematical Curiosities”.
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A close up of one section.

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1907 railway map (facsimile)

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The Morden Map of Norfolk in its new niche.
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Two views through the windows to finish – being able to look straight at green space is a privilege.

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The C-train

A kindly thought post from Anna which she put up while I was undergoing treatment…

Annas Art - FärgaregårdsAnna

I went over to aspi.blog for a visit and read this post

https://aspi.blog/2018/10/13/the-big-c/

That post got to me, so I did the only thing I could think of to do to support. A drawing.

U can make it!
If you want to say a support Hi to Thomas at aspi.blog, please stop by the post

https://aspi.blog/2018/10/13/the-big-c/

and just say a Hello or something else nice.

I guess it is one of the most difficult journey you can do in life.

But if you have family, friends and of course the blog community with you on the train maybe that helps going through the difficult times a little.

Anna

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Hello Again Everyone

A brief account of my illness, treatment and fledlgling recovery from cancer.

INTRODUCTION

I have been undergoing treatment for cancer under the aegis of Addenbrooke’s Hospital, Cambridge for over two months, and today is the first time sime I started receiving hospital treatment that I have been online (I have done a massive bulk delete of accumulated emails and will now start paying proper attention once again. In the rest of this post I will set out a rough timeline of events over the course of this illness. Unusually for one of my posts there will be no pictures.

WEEK 0 – THE ILLNESS TAKES HOLD

On September 29th I attended the wedding of a cousin in Sheffield. This was the last occasion on which I recall feeling truly well. During the following week I became noticeably ill, on on the Friday I left work early (an almost unheard of thing for me) because I just could not go on. On Saturday morning I cried off an intended visit to my mother at Godalming where she has recently been working because I was too ill to even consider it. On the Sunday evening having not ingested anything other than water since Friday I projectile vomited and realised I was in serious trouble, although not as yet just how serious.

WEEK 1 – TWO NARROW ESCAPES

On the Monday I collapsed between the bathroom and the bedroom of my old flat at about lunchtime, and by the evening of that day was in such a dreadful state that I could only be got into an ambulance by being out on a saline drip and assisted down the stairs that separated me from street level. Another day before receiving hospital treatment might well have been my last. On the Friday of that week, my body still unable to accept anyhthing other than fluids, but the real problem now known about I was referred on from QEH (my local hospital) to Addenbrookes (one of the best hospitals in the world for cancer treatment) just in time to avoid an operation that in my weakened state would very likely have finished me. The root cause of the mischief was a hugely swollen testicular tumour that had metastasized into large tumours on each lung (one of these was threatening a vein), a small tumour on the spleen and four small tumours in the brain.

WEEKS 2-9 – IN PATIENT AT ADDENBROOKES

I accepted the opportunity to be part of a clinical trial at Addenbrooke’s and by good fortune (and yes, I regard it as such, gruelling though the resulting treatment program was) got put into the group receiving accelerated treatment (chemo on a two-week rather than the usual three-week cycle). I am pleased that my treatment will have contributed in a small way to the advance of medical science (similarly I was delighted to be of assistance to student nurses and doctors when they accompanied their mentors – why wouldn’t I want the NHS workers of the future to be better able to do their jobs?!)

My treatment consisted of five days of intensive chemo one week, followed by a dose of bleomycin the Monday afterwards (always the toughest day of the cycle) and then the rest of week 2 of the cycle quiet. I have also been on huge quantites of pills and have had many scans and x-rays to monitor progress. 

Because my flat was unsuitable in several ways for someone convalescing from cancer (isolated by the stairs that separate it from street level and afflicted by damp) somewhere had to be found for me to go instead, and faced with a crisis the local council came up trumps with a bungalow just north of the town centre on an estate run by Freebridge Community Housing (the nearest there is to social housing in Tory Britain). Because the tenancy of the bungalow only became available just as I was due my fourth and last week of intensive chemo I remained an in patient until after the follow-up bleomycin which was on Tuesday December 11th (delayed by the fact that on the Monday my platelet count was too low). That same evening I was taken to my new home and became an outpatient.

WEEK 10 ONWARDS – OUT PATIENT

I remain extremely prone to tiredness and although I walk about my bungalow with no great difficulty I need assistance to venture outside. However, I had a very long Monday at Addenbrookes, because I needed more blood transfusions (the amount of new blood I have been given in the course of this illness would send Dracula green with envy) in addition to the bleomycin, and yesterday I not only managed to stay out of bed the whole day for the first time since the illness took hold, I was also able to watch and enjoy the autism friendly performance of the Christmas pantomime at the Corn Exchange. 

THE FUTURE

I am on the mend, though it will be a while before I am back to anything like my old form. My camera battery is charging and I hope to be sharing some new pictures with you before very long. My thanks to all who have waited patiently for the resumption of activity on this blog, and especial thanks to those who have read the whole of this relaunch post.