Autism and Cancer

Some early thoughts on autism and cancer.

INTRODUCTION

This post will consist of some early thoughts about Autism and Cancer and also some pictures from my new abode. However before getting into the main meat of the post there is an issue to address briefly first…

AUTISM AND FUNCTION LEVEL LABELS

In brief: DO NOT USE!! For more detail read the rest of this section. Before moving on to my onw thoughts a couple of honourable mentions: the Neurodivergent Rebel has posted some good stuff about the abuse of function level labels in relation to autism and Laina via both thesilentwave.wordpress.com and her sharing site lainascollections has also covered the issue.

I am often labelled as a high functioning autistic (indeed readers of this site will be aware that I was already into my 30s before being recognized as autistic at all) but that is highly misleading and dangerous. People noting my overall intelligence and articulateness and the fact that I devour books at rapid rate assume I need little support. Not true – there are some things that I struggle badly with and where support is needed. The “High Functioning” label is at best misleading and at worst it is downright dangerous.

MANAGING AUTISM AND CANCER

Managing cancer is a challenge but considered in isolation one that can be handled. Managing autism is sometimes a challenge (and sometimes autism works in my favour), and taken in isolation it is not too difficult. Managing cancer through the prism of autism is an enormous challenge. Apart from my regular blood thinning injections (I had two blood clots while being treated in hospital), which are still administered by a district nurse I am now largely responsible for taking my own medications of which there are huge quantities.  I also need to do things like monitor body temperature (currently seems to be stabilised at 36.1 C) and weight (one effect of being so ill is that now weigh less than at any time since my mid-teens. 

ADDENBROOKES ACKNOWLEDGEMENT

A small army of staff at Addenbrookes went way above and beyond the call of duty in looking after me and treating me during the worst of the illness. To name names would be invidious – you all know who you are and you are all absolute heroes. Understaffed and underfunded as it is the NHS is kept functioning by the efforts of people like this, who can still crack a smile when they have been rushed off their feet for 13 hours straight.

HOSPITAL TALES: WALKING STRENGTH BACK INTO THE LEGS

For about the first two weeks I spent at Addenbrookes I was effectively completely immobile (for a few days I was wired up to an oxygen mask), and for about a week before that I had hardly been mobile at all, so I lost a lot of strength from my legs. Once I was able to be mobile I took to walking up and down the ward when I felt strong enough, starting with small distances and working my way up gradually. Before I finished I could on a good day walk up and down the ward 20 times without stopping. I felt a benefit of this yesterday when I did a small amount of walking in King’s Lynn town centre to do my christmas shopping. 

PHOTOGRAPHS

I promised some pictures and here they are:

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Cricket Corner! (some of my cricket books are on other shelves as well but this is most of them)
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Display items in sitting room

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Thomas’ Cabinet of Curiosities (units assembled by Simon from NAS, treasures arranged by my father) – named in honour of Ian Stewart;s “Cabinet of Mathematical Curiosities”.
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A close up of one section.

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1907 railway map (facsimile)

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The Morden Map of Norfolk in its new niche.
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Two views through the windows to finish – being able to look straight at green space is a privilege.

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Nominated For a Blogger Recognition Award

My official response to being nominated for a blogger recognition award.

INTRODUCTION

My thanks to thetshirtblogger for nominating for a blogger recognition award. This post is my official response to that nomination. This is the tshirtblogger’s own description of what they do:

The Tee Shirt Blogger focuses on diversity in the main, and rather the celebration of diversity, in many ways it is no different to my other blogs, l love the intrinsic rawness and freshness that eclecticism offers us in life for all the good, bad and of course downright ugly.

ABOUT ASPI.BLOG

I blog about a wide range of stuff, with my principal interests being cricket, public transport, nature, science, politics, autism and photography. Nearly all the posts that I produce feature some of my photographs, and this one will be no exception. As branch secretary of the National Autistic Society West Norfolk and an autistic person I have strong opinions on autism and they way in which autistic people are treated, and this frequently comes into the blog. When I share something from another source I will always acknowledge that fact, and link to my original source. If I make an error in a blog post I will correct it, and give the correction at least as much prominence as the initial error had (for an example of me calling myself out go here). For more detail please visit my page “About Aspiblog“.

PHOTOGRAPHIC INTERLUDE – BIRDS

These were taken on Monday:

Cormorant posingMixed birdsCormorantMixed birds 2lapwing and gullFlying cormorantSwimming cormorantdiving cormorantswimming cormorant IIblackbird in treeGulllapwingFlying birdsBlackbird II

ADVICE FOR NEW BLOGGERS

  1. Your blog is yours – blog the way you want to.
  2. Visit lots of other blogs and leave likes and comments – this helps you get noticed and increases the number of people who read your blog.

MY NOMINEES

I could just list my 10 nominees, but I actually going to say something about each of them as well. 

  1. Fargaregardsanna. Anna’s pet subjects include nature, her home town of Trosa and her artwork. As a sample of her work I give this recent post titled “Save Trosa nature – Behåll och stärk Trosas natur“, which features a picture she created based on a comment of mine:
  2. Cindy Knoke. Cindy is a photographer with a great interest in nature. Her most recent post is titled “Punto Tombo~“.
  3. Ioinvaggio. An Italian blog which regularly features lovely pictures. I give you a link to a post titled “Io sono Volpina Blu
  4. The remaining nominees all have some connection to autism, starting with stimtheline, and by way of an introduction I give you “8 Favorite Quotes About Autism
  5. Autism is my Superpower. I was introduced to this blog by someone I will be mentioning later. I point you to the same post that was my introduction to the blog “Environmental (Over)Consciousness
  6. Yarn and Pencil. This blog covers autism, sensory issues, knitting and various other stuff. As an introduction I offer you “Dunster Castle“.
  7. Autism Mom. An excellent blog about one family’s experience with autism. I have an additional reason for including this one – to show that autistic people do not object in principle to neurotypical parents of autistic children writing about their children – we object to neurotypical parents of autistic children writing in a way that contributes to the ‘othering’ of autistic people. Thus the post to which I link to introduce you to this blog is the self-explanatory titled “I Want to be Called Autistic“.
  8. International Badass Activists. This was American Badass Advocates, run by Eve Hinson, when I started following. It has since become first American Badass Activists and then International Badass Activists, while Eve Hinson has become Eve Reiland. I have been introduced to many interesting and important stories by this blog. As an introduction here is her Autistic Union Pledge.
  9. The Unabashed Autist. Although I am nominating this blog, I must also mention that its creator, Alison, also has a creativity blog called Alison Wonderland that is not to be missed. For my introductory post, here is one she put up yesterday titled ““Elaine, do you think I would go willy-nilly into a situation so obviously fraught with potential complications?”
  10. Finally, we come to thesilentwaveblog. This splendid blog is run by Laina, who also has blog specifically for sharing aspergian/autistic writing called Laina’s Collection. As an introduction to thesilentwaveblog I give you my all-time favourite from that site, “The Hitchhiker’s Guide to Neurotypicality“.

PHOTOGRAPHIC INTERLUDE TWO:
MUSCOVY DUCKS

Group shotgrey and blackFourtwoBrownbrown profileblackBrown fron onBrown and blackWhiteThreeWhite II

PARTCIPATION IN THE BLOGGER RECOGNITION AWARD

These are the requirements for those who wish to participate in the Blogger Recognition Award:

1. Show your gratitude to the person who nominated you and provide a link back to the person’s blog.
2. Give a brief story on your blog.
3. Share two or more pieces of advice for beginner bloggers.
4. Choose 10 other bloggers to nominate. 
5. Comment on each blog, letting them know they’ve been nominated and provide a link to your award post.

I will shortly be attending to number 5!

Blogger recognition award

 

 

 

Links, Pics and a Thunderclap

Some links to excellent pieces by autistic writers, especially on the subject of Judith Newman’s book To Siri With Love. Details of a thunderclap on the subject of driven grouse shooting and some of my own photos.

INTRODUCTION

I have had a busy few days imaging for James and Sons’ final auction of the year (takes place on Wednesday – click here to view on online catalogue), so it is only today that I have time for another post. Before getting into the main meat of today’s post there is a small matter of an…

APOLOGY

Some of you may have noticed snowflakes falling across pictures on this blog (as I did today, when I accessed it at the library to get a picture I needed for something I was doing). I am aware that some of my followers have sensory issues that make this sort of thing unwelcome, and I have changed my settings so that those snowflakes will not appear again. I apologise to any who were inconvenienced by this ‘seasonal’ addition of WordPress’s.

SOME AUTISM RELATED PIECES

I will start this section by stating that most of the pieces I link to here were drawn to my attention by Eve Reiland at americanbadassactivists. Another excellent source of good material by autistic people is Laina, both in her own right at thesilentwaveblog and via her specialist sharing blog Lainascollection.

My first links concern the representation of autistic people in the media:

The remaining links in this section all related to…

#BOYCOTTTOSIRI

The title of this section refers to the backlash by the autistic community against Judith Newman’s book To Siri With Love. Although they make unpleasant reading, because of what they reveal about the book, I urge you to follow up the links I give, all of which, save one, are to pieces about this book written by autistic people. The exception, which ends this section, is to an alternative reading list, and was also created by an autistic person. 

I start with what is actually last piece I read about this issue, “An Autistic’s Thoughts On To Siri, With Love by Judith Newman” which was posted on writeabledreams.

My next offering, by Susie Rodarme is titled “AN OPEN LETTER TO HARPERCOLLINS ABOUT TO SIRI WITH LOVE“, and was published on bookriot.com

Next, courtesy of goodreads.com comes Kaelan Rhywiol’s review of the book – it is a superbly written take down of the book.

Next we turn to autistichoya and “Why we must #BoycottToSiri / An open letter to Judith Newman“. 

The last specific #BoycottToSiri piece to which I link is Eve’s as yet unanswered closing challenge to the author “Judith Newman | Stop The BS and Evolve into an Actual Autistic Ally #boycotttosiri” 

I end this section with a link to a post on huxtales simply titled “The Essential Autistic Reading List“.

A THUNDERCLAP

To take part in a thunderclap you have to be on at least one of facebook, twitter and/ or tumblr. I am on the first two named, and as such have contributed approximately 5,500 connections to this thunderclap calling for a ban on driven grouse shooting. If like me (see here for a previous piece on this subject) you hold those who take pleasure in shooting at birds in utter contempt, and you are on one of the three networks mentioned please add your voice to thunderclap – more details below:

GrouseThunderclap.jpg

PICTURES

Lights, Tower StreetLight chainsLights, Broad StreetStarVancouver ArchLit up treeBlack headed gullGullsB7ackbirdBlackb1rd

Bus window 1
This network of cracks were in the upstairs front window of an X29 bus – when it is a double decker I invariably sit upstairs, and the best seat is the front window seat on the side opposite the driver.

LeafRMCSquirrel

Olympics 50p.jpg
I needed this 50p for my bus fare, so I could not keep it until a better opportunity to photograph it arose.

 

 

 

 

 

 

Sunday Sharing Spectular

A mixed bag of a post, featuring autism, politics, mathematics and photography.

INTRODUCTION

As well as the wide variety of ,links that give this post its title it will feature some of my own stuff, notably pictures.

AUTISM

I start with some stuff about Autism, beginning with…

AN ANNOUNCEMENT FROM LAINA

Laina, guiding genius of thesilentwaveblog, has set up a new blog specifically for sharing stuff. Her announcement of this is here, while the new blog can be seen here.

STIM THE LINE

I end this little section with what is a new find for me, stimtheline, with a post titled “Autism is Me“.

GENERAL LINKS

The four links in this section are links that form no natural groupings:

ROBERT LOVES PI ON FULLERENES

This refers to three related pieces that I have seen on robertlovespi. Fullerenes are spheroid carbon allotropes (also known in some circles as buckyballs – both the formal and informal deisgnation pay tribute to the architect Richard Buckminster Fuller who was particularly known for geodesic domes). The three pieces are:

  1. The one that first attracted my attention, titled “The Construction of a Zome Model of a 240-Atom Fullerene Molecule, In Seven Pictures
  2. Then comes “A 240-Atom Fullerene, and Related Polyhedra
    C240 fullerene 2
  3. Finally, “The C-320 Fullerene Polyhedron“.

A TEASER

This one comes from brilliant, though it has a little addition of my own as well:

PN

This is an easy question, even without the multi-choice options given on the site. If the 51 under the dividing line was replaced by 53 it would become fiendishly difficult – can you work out why?

PHOTOGRAPHS

GullPale drakeMoorhenHorse and Cart

Flatfish
This is a twitter find.

 

 

Monday Madness 3: Mainly Autism

Some autism related links, and some photos from Musical Keys.

INTRODUCTION

As NAS West Norfolk branch secretary and an #actuallyautistic person I always like to share good stuff about autism. I am including within this a piece that is not directly about autism but relates to many of the issues that autistic people highlight.

AN ERIN HUMAN INFOGRAPHIC

This piece from erinhuman.com titled “Disability 101: Medical Model vs Social Model” features a really excellent infographic, reproduced below:

dis101

AN OLD FAVOURITE AND A NEW FIND

Laina over at thesilentwaveblog has, as she so often does, hit the nail smack on the head with a piece titled “Depathologizing Asperger’s / autism ~ The strength vs ‘lacking’ edition” The feature graphic is below:

Laina is the old favourite of the title of this section, while the new find, brought to my attention by Eve Hinson of americanbadassadvocates, is Michelle Sutton of michellesuttonwrites whose recent piece titled “THE LANGUAGE OF IDENTITY, OR “I AM NOT AN AUTISM PARENT”” I heartily recommend.

PHOTOGRAPHS

These photographs were taken at Muscial Keys on Saturday, which I am involved in due to my association with NAS West Norfolk.

KirstenInstruments

Screen
The first three screens show the things I have built up involving each of my three sprites

Screen2Screen7

Screen4
This focusses on the backdrop itself…
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And not long later I had created functions for this screen that meant that every button I could assign an individual function now did something.
Screen6
Close up of backdrop and sprites.

 

The Douglas Adams Birthday

A birthday post.

INTRODUCTION

It is my birthday, and this year the number is the same as the answer to the Ultimate Question of Life, the Universe and Everything in The Hitchhikers Guide to the Galaxy. 

OTHER 42s

There are a total of forty-two eyes in a standard deck of playing cards – three two-eyed kings, one one-eyed king, all four queens are two-eyed, and two two-eyed and two one-eyed jacks makes a total of 21, which needs to be doubled as the faces appear twice on each card.

There are 42 spots on a pair of standard dice – 21 on each.

The great game of cricket has a code of 42 laws governing it. Law 42 governs fair and unfair play. The most important phrase in this law is: “the umpires shall be the sole judges of fair and unfair play“.

Adams is not the only famous writer to have used the number 42 – Charles Lutwidge Dodgson aka Lewis Carroll was responsible for the following:

  • The original Alice in Wonderland had 42 illustrations
  • “All persons more than a mile high to leave the court” was Rule 42.
  • The Baker in The Hunting of the Snark had 42 boxes

A COUPLE OF “HITCHHIKER” LINKS

To conclude this brief Birthday post I hand over to Laina of thesilentwaveblog with:

  1. The Hitchhikers Guide to Neurotypicality and…
  2. The Hitchhiker’s Guide to Asperger’s / autistic people (*one* autistic person): A manual for non-autistic people.

Politics, Nature and Autism

A mix of politics, nature and autism.

INTRODUCTION

This is a collection of interesting things I have seen on the internet recently. They are grouped broadly in three categories, the second of which includes a few pictures I took today.

POLITICS

I start this section with an important open letter from Make Votes Matter. Below is a screenshot of the beginning of the letter. This is formatted as a link so that you can add your name to the open letter should you wish to:

Open Letter

My only link in this section, which forms a natural segue to the nature section, is to a thunderclap organised by Team4Nature and tagged #VoteForHopeVoteForChange. Below is a screenshot which also functions as a link:

voteforchange

NATURE

I am going to start this section with another thunderclap, before sharing a couple of recent posts from Anna that caught my attention and finally ending this section with some of my own photographs. 

THUNDERCLAP: 30 DAYS WILD

This one has been launched by The Wildlife Trusts and the screenshot below links to it:

30dayswild

ANNA’S POSTS

The first of the two recent posts from Anna that I am sharing is titled “Which Future Do You Wanna Give The Next Generation?“. This post contains both Swedish and English text, and is in particular focused on the campaign to Save Trosa Nature. Here is Anna’s picture from that post:

The second post from Anna is titled “Old Tjikko” and starts by introducing us to the world’s oldest tree (9,500 years old since you ask). It concludes with a marvellous tree infographic which is reproduced below:

Time now for some…

PHOTOGRAPHS

These were all taken today…

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Other than moving the tree pic to the top of the pile (see the end of the previous section for clarification) these are in the order in which they were taken (tree pic was no 6 originally).

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This one is a bit blurry because it was taken very quickly.

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AUTISM

I saw this article on www.independent.co.uk today and knew I would have to share it. It is titled “People with autism can hear more than most – which can be a strength and a challenge“, and the content lives up to the title, more of it being devoted to pointing up the strength than the challenge. I offer both a screenshotted quote and a picture by way of aperitif:

quote

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I end this post with yet another reference to the rainbow coloured infinity symbol that Laina at thesilentwaveblog introduced me and many others to. The version below is an envisaged centrepiece for the front cover of the 2018 Calendar (see this post for more on my calendars) and features my name in white text incorporated into the symbol and the addresses of this blog and my London transport themed website in each loop:

Personalised symbol-page-0