Not Weird, Just Limited Edition: Inside the Autistic Mind – Book Review

My review of Not Weird, Just Limited Edition: Inside the Autistic Mind. I urge you to all to buy copies of this fabulous little book.

INTRODUCTION

You may remember that a couple of posts ago on here I mentioned a new book about Autism titled “Not Weird, Just Limited Edition: Inside the Autistic Mind”. Well the copy of that book that I ordered arrived yesterday, and now it is time for a quick review.

A LITTLE GEM OF A BOOK

The book, written by Faye Flint, who was diagnosed as autistic only at the age of 27 (regular readers of this blog will recall that I was 31 when I got my own diagnosis, so this is a situation that is more than a little familiar to me). It is 108 pages long, with the text very generously spaced. Each page is a separate event, recording a particular thought or train of thought, and each is beautifully clear, and for obvious reasons many are instantly recognizable to me. If you are autistic yourself, or know/ are related to someone autistic, or even just have an interest in autism this book, written as it is by someone who is actually autistic is an absolute must read. I am going to share some of my personal favourites (I have selected six out of 108 pages to quote – and the quotes will be indented and italicised to set them apart from my own writing:

First, page 31:

I was a child with Asperger’s.
I will remain an adult with Asperger’s.

Page 45:

No, I won’t ‘grow out’ of my Asperger’s.
Asperger’s is who I am.
But I have lived with myself for 30 years.
I have learned how to manage myself.
To be able to fit into society more appropriately.

Page 49 (I am bolding as well as italicising this one for reasons that should become obvious):

“But you don;t seem like my friend’s son who is autistic?”
Ahh, well maybe that’s because…
I am a grown autistic woman,
Not a 7 year old autistic child.
Yes, there really is a difference.

Page 64:

No, my Asperger’s cannot be cured.
Nor would I want it to be.
This took me a long time after such a late diagnosis.
However,
It has made me, me.
And I kind of like me.
In fact,
Many people say my ‘differences’ are what they love most!

Page 69 (another one that I chosen to bold as well as italicise)

Just ask.
If you want to know about the spectrum,
Ask someone who is on it!
We aren’t offended.
If anything,
It makes us happy that you care enough to want to learn.
There is nobody better to ask,
Than someone who goes through it,
Every.
Single.
Day.

Finally, page 81:

I promise I am listening to you.
But my brain has 2,644 other tabs open right now.
It is very distracting.

The book is available in paperback or on kindle (click here to order).

FF1 (2)
The front cover
FF2 (2)
The back cover.

FF2 (3)FF2 (4)

An Autism Awareness Event At King’s Lynn Library

A brief account of today’s Autism Awarenss event at King’s Lynn Library, with some photographs.

INTRODUCTION

Today at 1PM there was a gathering at King’s Lynn Library for World Autism Awareness Day, in which we talked to the library about things they could do to make themselves more accessible to autistic people and in which we got details of an autism friendly youth group that they are starting. As well as ourselves and library staff a young woman from SCIOPE was also present.

AWARENESS IS BARELY THE BEGINNING

Obviously awareness is necessary, but it should not be thought of as a goal or an endpoint – to borrow from a famous quote it is at most the end of the beginning. To be of real value it needs to proceed to acceptance, understanding of our needs and appreciation of our strengths. The library staff seem genuinely committed to helping autistic people, and they listened to all our comments. There was talk of autism friendly hours in the evening, which I think would be an excellent idea.

A CONSTRUCTIVE DAY

I feel that this event was very constructive and potentially valuable. I await practical developments with interest – as an autistic person who is a great supporter of the library I hope to be able remember today as an occasion when things moved in the right direction. I was very glad to be able to attend – as an advocate of “nothing about us without us” I always feel that I should be involved with this sort of thing, and there had been a possibility that my health would prevent that. Fortunately it did not. Now for…

PICTURES

I start with an infographic posted on the NAS Norwich facebook page by Johanna Corbyn which I consider to be excellent:

Johanna Infographic

To set the scene for my own photographs that relate to this event here is the official King’s Library picture, originally posted on their facebook page:

KLLWAAW

Now we finish with some of my pictures:

P1220305
My cards – one of the library staff accepted one.
P1220306
I was able to photograph various pictures on the wall.

P1220307P1220308P1220310P1220311P1220309

P1220312
Details of the Autism Friendly Youth Group
P1220314
SCOPE publicity
P1220315
The autism related diksplay in the entrance foyer.
P1220316
A rear view of the library.
P1220317
A shot showing the war memorial and the library.
P1220318
The Greyfriars Tower

 

Autism Acceptance/Appreciation Month

An introduction to Autism Acceptance Month/ Autism Appreciation Month and a few photographs.

INTRODUCTION

Officially April is designated Autism Awareness Month. In this post I will give my view as to why this designation should be rejected and what the alternative, as articulated by autistic people should be.

AWARENESS

Firstly the notion of ‘Autism Awareness’ is tainted by the mere fact of who the main organisation pushing it are, who I will not name here. Suffice to say that their many misdeeds include being responsible for the video nasty “I Am Autism”, and that they are associated with the colour blue and with the puzzle piece symbol. I am glad that I am separated from them by the width of an ocean!

Secondly, even if the first point above did not apply, ‘awareness’ is simply not sufficient as a bannerline aim. Awareness does not equate to understanding, and that latter is the barest minimum that is required…

UNDERSTANDING, ACCEPTANCE, APPRECIATION, RESPECT

Understanding of autism is merely a good starting point (and there are ton of places where you can find autistic people writing about autism, some which I shall list later). It needs to lead to acceptance of us for who we are, appreciation of our good points and respect for us as human beings. 

PLACES TO LEARN ABOUT AUTISM

This list is not (never in the proverbial million years) exhaustive, but it gives you some good pointers.

#REDINSTEAD, #LIGHTITUPGOLD & THE RAINBOW INFINITY SYMBOL

The organization I refuse to name tells people to #lightitupblue, for which reason that colour is off-limits (except when it appears in photos) to this site at least for the month of April. The first two elements of the title of this section refer to alternatives. This blog is following #RedInstead simply because gold letters don’t really stand out against a white background. The Rainbow Infinity Symbol, a customized version of which heads this blog, while another appears on my personal cards, is an excellent alternative to the discredited puzzle piece for the role of autism symbol. Here courtesy of stimtheline is the Autistic Bill of Rights:

Autistic Bill of Rights.pub

PHOTOGRAPHS

BlackbirdCormorants and flying gullCormorants and gull IICormorants and gull IIICormorants and gull IVCormorants and gullLibraryNar meets OuseSmall bird in branchesswimming gullsWingspan IWingspan IIWingspan IIIWingspan IV

Autism Events V: Saturday in London Part 3

My final blog post about the Anna Kennedy Autism Expo.

INTRODUCTION

Welcome to the fifth and final installment in my Autism Events series, concluding my account of the Anna Kennedy Autism Expo a week ago yesterday (still to come are some related posts on my London transport themed website and a page on this site bringing everything together).

THREE MORE TALKS

I will handle these talks in exact chronological order, starting with…

THE AUTISTIC DAD

This one was slightly problematic for me, although I welcome another autistic person being given the opportunity to speak. The biggest problem I had lay in his comments about vaccines, which I found particularly hard to stomach given that since he is autistic there is an obvious genetic component to his son’s autism. This talk did not inspire as much as I had hoped, and a week on I do not feel any happier about it.

The Autistic DadIntroductionScreen 2Career HighlightsFamily BackgroundFamily IIFamily IIIFamily IVFamily V

SPORT FOR CONFIDENCE

This was a wonderful talk by Lyndsey Barrett, a former netball international (she had a very serious illness which nearly killed her, but is now back playing netball to a good level although she has not yet been recalled by England) and founder of the eponymous Sport for Confidence.

Sport for confidence

Lyndsey Barrett
Lyndsey Barrett.

In the BeginningThe ProgrammeProgrammeModelContributions and BenefitsPartner contributionsProgramme BenefitsCS1InterventionOutcomesCS2GoalsIntervention and outcomesOOSummary

AN EXCELLENT FINISH

The final talk was from one of the people from Green Board Games (see my first post about this event for more) and although I was very tired by this stage of the day I thoroughly enjoyed it. 

Toy talkPicturesdon't dis my abilityThe Strength of ObservationAspieswired differentlySpeakerQuirksSuccess looks different

HOMEWARD BOUND

Leaving the event I headed back to Uxbridge station, and got a Metropolitan line train into London, arriving at King’s Cross in good time to catch the 18:44, arriving into King’s Lynn at 20:22. Here are a few pics from the return journey, although the battery in my camera was running on fumes by that stage of the day.

Hillingdon footbridge
This footbridge is at Hillingdon, one stop out from Uxbridge.
Rayner's Lane buidings III
The station building at Rayners Lane, which functions as a bridge between the platforms as well is one Charles Holden’s most famous.
chilternrailways.co.uk
Chiltern Railways, with which the Metropolitan is closely integrated. Chiltern Railways‘ historical predecessor, the Great Central railway was a creation of Sir Edward Watkin, who also ;played a massive role in the Metropolitan’s history. This train is at Harow-on-the-Hill.
Distant Wembley
A distant view of Wembley Stadium.

 

Autism Events IV: Saturday in London Part 2

Takes my story of the Anna Kennedy Autism Expo up to the end of the first of the talks that I attended.

INTRODUCTION

Welcome to the fourth post in my Autism Events series. This is Part 2 of my coverage of the Anna Kennedy Autism Expo which took place at the Eastern Gateway Building, Brunel University. For those joining the series at this point the previous post are:

  1. Autism Events I: Norwich
  2. Autism Events II: Norwich part 2
  3. Autism Events III: Saturday in London Part 1

This post will cover the remainder of the stalls at the event and the first of the talks that I attended.

AROUND THE HALL

This is a story that will be told largely via photographs…

Autism Heroes

autistic artwork
Autistic artwork.

fidget bed

Oojamabobs
Yes folks – a whole stall devoted to selling fidget/stim toys.

Aspie and me

OT Practice

PAUL ISAACS TALK

Paul is autistic himself, and his talk was both informative and inspiring. Notice that as with the Autism Anglia event in Norwich this event gave autistic voices lots of opportunity to be heard. Here are some pictures from this talk. 

Meeting room I
Because of the shape of the meeting room it was equipped with two big screens, one for each half of it.
Paul Isaacs talk
Paul’s talk on the screen.
Ready to go
Paul ready to start his talk, while event organiser Anna Kennedy watches from the corner. She kept all the speakers informed as to how they were doing timewise.
Paul Isaacs
Paul Isaacs speaking

Fruit salad approach

Early years

Autism Fruit Salad

Asperger and Autist brains
Autistic and Aspergian traits.

Brain close-up

Aspie traits
Close up of the Aspergian traits list
Autie traits
Autistic traits close up
Aspinauts
The ones in the middle
Personhood
Although I choose when using such descriptions to refer to myself as an autistic person, with ‘person’ coming after ‘autistic’ I am with Paul in asserting my personhood.
Pauls Books
Paul’s considerable output.

Autism Events II: Norwich part 2

The second in my series of posts about Autism events I have attended recently.

INTRODUCTION

Welcome to this second in my series of posts about recent Autism events that I have attended. The opening piece can be seen hereBefore moving on to the main body of the post I include a petition from today. It was posted on change.org, and the screenshot below contains details and functions as a link:

DallasBpetition

THE STORY SO FAR

During the first post in this series I set out what the series was going to be about, put up a mini-time line of the days covered and started my coverage of the Autism Anglia Information Sharing Event, reaching the end of Sian Hutchings’ talk. This post takes us up to the end of that event. Here are a few pictures from that event:

Cupola
This cupola caught my attention.
Research stand
One of the stalls I visited – we had a very positive little discussion
Elephant 1
This elephant is a legacy from what was once a Norwich display of the creatures.

Elephant 2

NADV
Scope and NAS West Norfolk are working together on various projects, and this wristband is a product of one of them (there is also a matching key fob and small button badge). The message, conveyed simply and powerfully is “NOT ALL DISABILITIES ARE VISIBLE”

SESSION 3: ACTIVATE

Just in case anyone was wondering this has nothing to do with the vile Tory offshoot of the same name (an organisation of such vileness that it is known in certain circles as “Active Hate”). This Activate is a very different organisation, devoted to helping vulnerable people. Here are a couple of pictures:

ActivatePSR

This was a very interesting session and I went to lunch in good spirits. The lunch was excellent – decent sandwiches, crisps and a drink. Then I had one more session to attend.

SESSION 4: AMANDA HIND

Amanda Hind’s session, on Puberty, Sex and Relationships Education and Autistic Girls, was packed full of interesting and important stuff. Before letting my photographs take over, I will say that she is an autistic mother of two autistic children (it was actually her son’s diagnosis that prompted her to investigate on her own behalf) and that she is a fantastic speaker. At her request I am only displaying a handful of  the slides…

Stage 2
The Stage 2 Auditorium, Norwich Theatre Royal
Hexagonal array of bulbs
Using the zoom lens to capture the hexagonal array of bulbs in the overhead lights
Amanda Hind
The title slide.
About Me
The first three slides of the title slide cover the ‘back story’

diagnosisdaughter's diagnosis

Amanda speaking
Amanda Hind speaking

Autistic girlsPeer PressureSoc skills

FINAL ACT – FEEDBACK

One of the things contained in the packs we were each given on arrival at the venue was a feedback form. I filled mine in after this last talk, and suffice to say it was all positive. As I was staying in Norwich for an evening meeting I then decamped to the Millennium Library, very close to the theatre, to unwind for a bit, and prepare myself for the evening. All in all this was a very positive experience, and I left the event in a very good (if tired) frame of mind.

Autism Events I: Norwich

The first in a series of posts about a couple of autism events that I ahve attemded recently.

INTRODUCTION

I have had the good fortune to attend two autism events in the last few days. NAS West Norfolk, of which I am branch secertary funded my attendance at both events, and so I travelled with a bundle of NAS West Norfolk leaflets as well as my own personal cards. This is the first of  a series of blog posts I will be writing about these events, and therefore includes a…

TIME LINE OF THE LAST FEW DAYS

  • Thursday daytime: Autism Anglia information sharing event at the Theatre Royal, Norwich.
  • Thursday evening: public meeting on trans liberation at the Vauxhall Community Centre, Norwich
  • Friday daytime: work day.
  • Friday evening: supper at my aunt’s house.
  • Saturday all day: Anna Kennedy Autism Expo at the Eastern Gateway Building, Brunel University, nr Uxbridge

I hope that the above makes it clear why I am only just starting this series of posts and why I still have a large number of photos from the last few days to edit.

THE AUTISM ANGLIA EVENT

The bus ran a bit late, which meant that I arrived at the venue later than I would have liked. However, I was in time to get into the first talk I had booked for, Alan Bicknell of Autism Anglia talking about “The Uniqueness of Autism”. I impressed the speaker with three useful interventions – first up responsing to his request for a ‘guess’ as to how many people in the UK were likely to be on the autistic spectrum. I reasoned in Holmesian fashion that given the UK’s overall population and the popularly reckoned instance of autism being 1 in 68 the figure was likely to be somewhere in the region of 1,000,000. I was in the right ball park, with the speaker’s own reckoning being somewhere in the region of 800,000. My second intervention was to identify the author of the the ‘Thomas the Tank Engine‘ stories (Reverend W Awdry – his son Christopher continuing the family tradition). My third and final intervention was in response to his question “Can we all be a little bit autistic?” To which I said a very firm no, and backed this up when asked to expand on that answer by stating that ‘we are all a little bit autistic’ cheapens and demeans the very real difficulties faced by those of who are #actuallyautistic. He thanked me for making those points, and subsequently when I spoke to him after the talk he again thanked me for my contributions.

PHOTOGRAPHS FROM THAT FIRST TALK

Alan
Alan Bicknell speaking

Uniqueness of Autism

SESSION TWO: SIAN HUTCHINGS

Ms Hutchings is autistic herself, and her talk was based around her own life and experiences, before focussing on educating autistic people. This was in the same venue as the first talk I had booked to attend. Sian’s talk was absolutely amazing, and although the photographs with which I end this post give you some basic idea of it, you really had to be there to hear it.

Autism Education & Me
These big screens look a lot like giant Ipads, and as I saw when one speaker poked the screen in making a point they also work a bit like giant Ipads – he was a bit discombobulated when the next slide appeared early.
Promethean
Their size is not the only thing about this screens the connects them to giants!
Sian Hutchings
Sian Hutchings

Sian and hatsHelping Autistic StudentsSian's social media

 

Autistic Bill of Rights Shareable Image

Following on from yesterday’s splendid introduction to the Autistic Bill of Rights, stimtheline has now produced this splendid shareable image…

Stim the Line

The Autistic Bill of Rights post that I made earlier has gone over so well, that I thought making an image of it would be a good idea.

These ten “amendments” cover what I see as the most important issues facing our community right now, although these all come from my experiences, which I recognize are not universal. I’d love to get more voices involved, and to put together a community approved Bill of Rights, so if that’s something you’re interested in. or would like to share with a wider audience, please contact me!

Autistic Bill of Rights.pub

View original post

Monday Medley

Links to some of the best pieces from today, includign several about autism, a solution, a problem and some photographs.

INTRODUCTION

This post is divided into three main sections – a sharing section, because there has been some truly outstanding stuff come to my attention today, a problems and solutions section and some photographs. 

THOMAS’ PICKS

To clear the deck for the rest of my shares, which are all around the same theme I start with this little gem from Atheist Republic titled “5 Major Reasons Why Creationists are Dead Wrong

For the rest of this section we will be using shades of #RedInstead because all these pieces relate to…

AUTISM

I start this section with an old post from Autism Mom titled “10 WAYS YOU CAN DEMONSTRATE AUTISM ACCEPTANCE

I have already reblogged stimtheline’s magnificent Autistic Bill of Rights, but I take the opportunity to point you all in that direction once again, complete with a jpg of the suggested Bill of Rights…

ABR

My remaining shares in this section are all from a new find…

TO ASPIE OR NOT TO ASPIE

Not many people have produced three full-length posts in the space of a day that I am eager to share, but this blogger has managed it with the following:

  • Think Different, on of the best pieces I have ever seen on the theme of embracing one’s diversity, in this case neurodiversity.
  • The Nuances of Discrimination, which deals with protecting autistic people from discrimination, and is an absolute must-read.
  • Is Autism a Disability? A wonderful post which tackles head on some of the ways in which the conversation about autism is currently cooked against us from the start. I quote the closing lines of the post as an appetiser:

    It’s a label that holds me down and pushes me into a box I can’t escape from.
    Give me some new words to define me.
    Or better yet, let me define myself.

A SOLUTION AND A PROBLEM

First, a solution to the problem I posed on Saturday in “Failing to Convert“:

Logic Solution

Here is Hamz George’s explanation of why this is so:

Hamz Jeorge 
Jan 6, 2018

Relevant wiki: Truth-Tellers and Liars

Since every statement is false, let us convert them into true statements, and number each statement:

Ann: 1) One of us took the painting. 2) The painting was gone when I left.

Bob: 3) I arrived first, third, or fourth. 4) The painting was still here.

Chuck: 5) I arrived first, second, or fourth. 6) The painting was gone when I arrived.

Tom: 7) Whoever stole the painting arrived after me. 8) The painting was still here.

According to statement #7, Tom is not the thief. #8: Since the painting was there when Tom arrived, he could not have been the last to arrive. Tom must have gone there first, second, or third. #6: The painting was gone when Chuck was there, so he didn’t arrive first. #5: So Chuck got there second or fourth. #4 and #8: As two other members (Bob and Tom) arrived to see the painting, Chuck didn’t get there second, either. So Chuck arrived fourth. #3: This means Bob arrived first or third. #2: Since the painting was gone when Ann left, she didn’t arrive first. Otherwise, no member after her would have seen the painting. So Ann went there second or third and Chuck arrived fourth. But since two other members (Bob and Tom) saw the painting when they arrived, Ann didn’t go there second, either. So Ann arrived third. #3: Therefore, Bob arrived first, and Tom arrived second.

In summary, Bob arrived first. Tom got there next and the painting was still there, so Bob was not the thief, and neither was Tom. When Ann arrived, the painting was still there, but it was gone when she left. So Ann was the one who stole the painting. Chuck arrived last and discovered that the painting was gone.

Yes, Charlotte, you were right.

A NEW PROBLEM FOR YOU TO TACKLE

Another one from brilliant

GCDs

PHOTOGRAPHS

Although not as dramatic as a few weeks back, The Walks, King’s Lynn’s best known park, is still somewhat lacustrine, which has led to it receiving a most unusual visitor – an Oystercatcher, a wading bird which would normally visit a park and for which King’s Lynn would be the extreme South of its possible living area…

gull and oysercatcher
The oystercatcher in shot with a gull.
Oystercatcher
A close-up of the oystercatcher
Oystercatcher - vignetted
a second close-up of the oystercatcher
Oystercatcher BB
What my bird book has to say about the oystercatcher
Oystercatcher range
The Oystrecatcher’s range

As you will see there were a few other fine birds on show today…

Library display
Close examination of this display of local publicity materials just inside King’s Lynn Library, will make my contribution to it obvious – it has looked like that for some time.

lacustrine walksmudlump Imudlump IImudlump IIIBlack muscovyGullsMixed muscoviesMoorhenMoorhensmuscovies x 3Muscovy ducks x 4Muscovy ducksMusocyv ducks x 2Swan 1Swan abd drakeSwans and muscoviesSwans IISwans IIISwans IVSwans VSwanstwo muscovy ducksWater birds