A magnificent post from the Neurodivergent Rebel...
Sharing a wonderful post on the theme of autism accpetance from Luke Beardon. As this is a pure sharing post comments are closed – please comment on the original.
Yesterday I was inspired by a wonderful piece of work done by Jennifer Lisi to create a blog post titled “Autism Acceptance Months“. Well I was not alone in being inspired by it, and I now share with you a post created by Luke Beardon titled “Inspired by Jennifer Lisi“. Because this is a pure sharing post I am closing it for comments – to comment please visit Luke’s post, linked to above and in the next section.
INSPIRED BY JENNIFER LISI
Below is the opening of the post, and a screenshot showing a bit more of it:
Are you aware that there are moons and stars?
Are you aware that there is a theory of relativity?
Are you aware of the music of Mozart?
Are you aware that cars have engines?
Are you aware that houses need careful planning when built so they don’t fall down?
Are you aware that there are creatures living in the sea?
Are you aware that pacemakers help people with heart problems?
Are you aware of Harry Potter?
JENNIFER LISI’S NEW MEME
Having set the ball rolling by providing the inspiration for both my and Luke’s posts, Jennifer has subsequently created this lovely meme:
Inspired by Jennifer Lisi on twitter, who created the graphic at the heart of it, this post sets out aspi.blog’s stall, taking autism acceptance is starting point and looking ahead to autism appreciation.
This is a post about something magnificent I have just seen on twitter and wish to share with all of you. The text of this post is #RedInstead because it is specifically about autism.
AUTISM ACCEPTANCE MONTHS
To start with, below is a screenshot of the tweet, by Jennifer Lisi, that prompted this post:
Now we move on to some extra thoughts of my own:
- Although I will on occasions, when I believe people are doing it for the right reasons share stuff about “autism awareness” I will not use the phrase on my account because…
- We have been banging on about awareness for ages, and I do not believe there is a problem any more with people not knowing of the existence of autism and autistic spectrum conditions, though there are a raft of problems when it comes to understanding of such conditions.
- For me Autism Acceptance as shown in the graphic above is what we should be considering as our basic start point, with the hope that acceptance of us for who and what we are will lead to…
- Appreciation of our strengths and good qualities.
Thus the journey we look to trace out runs not awareness-understanding-acceptance but awareness-understanding-acceptance-appreciation.
I end this post with some photographs, in this case with a cormorant in the starring role:
An account of the first Musical Keys session of the new year and some autism related links.
This post comprises two elements – one an account of the first Musical Keys session of 2018 and the other sharing some excellent recent stuff about autism. Because it is an autism themed post I am using #RedInstead text (scarlet for headings and links, maroon for body text).
Musical Keys is an activity run for autistic people who enjoy music. Generally speaking it is run fortnightly, with a session for youngsters between 3PM and 3:45PM and a session for older participants from 4PM to 5PM. I had initially been expecting to renew my acquaintance with Reaper (a computer program for composing music – see here for more details) but circumstances dictated otherwise, and I actually ended up on a…
This machine can function as a wide range of instruments/voices and in a wide range of styles, and I explored a lot of the instruments in the course of the time I spent on it.
John, one of the two people who run these sessions, showed me how to play chords as opposed to single notes, and I experimented with playing varying numbers of notes simultaneously, and using the whole range of the keyboard.
I created a few chords where the notes played could also form words, such as face/cafe, cabbage etc. I enjoyed making the acquaintance of this keyboard and learning something of its capacities.
AUTISM RELATED LINKS
My next piece comes from the Thinking Person’s Guide to Autism, written by Shannon Des Roches Rosa of squidalicious.com under the self-explanatory title “Eleven Ways You Can Make Your Autistic Child’s Life Easier“
The next two pieces in this section are both from the blog “Autism is my Superpower“
TO SIRI REVISITED
I have linked to a number of reviews of Judith Newman’s book “To Siri With Love”, although since I have not read the book I can offer no direct comment about it, and here are a few more pieces about that book:
- First up, a quite devastating review on the right-leaning website Matthew Hopkins News, written by Dr Elena Chandler and published under the title “Guest Review of To Siri With Love“
- Next up, one of the few one-star reviews on Amazon that Newman and her cronies were not able to get taken down in spite of their efforts in that direction, headed “This book is a grotesque invasion of a child’s privacy, should have never seen the light of day“
- Following on naturally from the above is this piece from Ann’s Autism Blog titled “On how power silences marginalised groups“
AN ANTI-AUTISTIC HATE GROUP
MASQUERADING AS AN AUTISM CHARITY
The organisation who are the subject of this little section go by the name of Autism Speaks, who you will also see referred to as Autism $peaks, Auti$m $peak$ and A$ in various places.
- From care.com comes this story, whose title “Autism Mother Sues Autism Speaks For Disability Discrimination” gives you more than a hint of the truth about this vile organisation.
- The website ownshrink.com has a piece titled “Autism Speaks: Torturing autistics for profit” which is as damning an indictment of an organisation that claims to be an autism charity as you could find anywhere.
These are some splendid quotes about Autism – though I would prefer the fourth one down to be in shades of #RedInstead rather than blue!
If you interact at all with social media, you’ll know that quotes are everywhere. They’re usually posted on top of images on mountains or sunsets, and are more often than not credited to ‘anonymous’. Not to say there aren’t some good quotes out there, especially ones that describe experiences, instead of forcing vague positivity on the reader. It can be hard to sort through Autism quotes, because a large percentage of them are made about Autistic children by Neurotypical adults. These often border on inspiration porn- and they infuriate me.
So, in order to combat these, I’d like to share some quotes about Autism that I enjoy.
So here they are! If I had to pick one, I think that the square peg one is my favorite, but there’s some may quotes out there, that I’ve probably missed some great ones! So, dear reader, if you’ve got a quote you…
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A brief account of the SCOPE Christmas meal to which I was invited as NAS West Norfolk branch secretary and some autism related links.
I am including autism related links because it was in my capacity as NAS West Norfolk branch secretary that I was invited to attend the SCOPE christmas meal (our organisations are looking to work more closely on various things).
The meal was arranged for The Gatehouse, a Hungry Horse pub located near the South Gate, at the edge of King’s Lynn (hence the name) with food booked for 3PM. The plan was for a few things to be discussed as well. I arrived at the pub not long after 2PM, purchased a pint to drink slowly while I waited for others to arrive (SCOPE were paying for the food, so I reckoned I could allow myself a couple of drinks) and settled down to wait.
Others began arriving at around 2:45, and Chloe Yianni from SCOPE, who was running the event, arrived just before 3PM.
Most of the ‘meeting’ element of the day took place between the main course and dessert, accompanied by a very impressive sunset (yes folks it gets dark early in these parts in December).
I enjoyed the occasion and look forward to working closely with the people from SCOPE in 2018 and beyond.
SOME AUTISM RELATED LINKS
A majority of the links in this section are to posts on USian (acknowledgement to New Zealander Heather Hastie for this term) blogs/ sites, and most of the rest are British, although a few other countries also feature. As an internationalist I am proud that people from many countries visit this blog (108 in the last year, 123 all time).
This section relates to a wonderful post put up by Autism Mom a couple of days ago under the title “I WANT TO BE CALLED AUTISTIC” I offer you my own comment in immediate response to that post, which I stand by:
Well done to both you and your son. Although my own strong preference is to describe myself as an autistic person I am quite happy for those who choose to do so to describe themselves as people with autism – what I will not accept is a well meaning neurotypical person seeking to make the decision on our behalf – it is our decision and we should make it ourselves.
Also, here is a quote from the end of the post:
Person first versus identify first: He cocked his head and asked me to explain more.
“I want to be called autistic,” he announced after I had finished. “Saying “person with autism” sounds like I have a disease. I don’t have a disease, this is just how I am.”
And then he added: “Actually, I want to be called by my name, but if you need to describe my autism I want to be called autistic.”
Make it so.
If you are reading this and have an autistic spectrum condition please feel free to add a comment about how you would prefer to be described.
I finish this section with a link to post mentioned in the Autism Mom piece linked to above which appears on Autistic Not Weird under the title “A plea to the autism community from one of your own“
THE “TO SIRI” ISSUE
Many splendid pieces have been produced about this subject since I last provided links relating to it, and I append a bulleted list of the best links:
- Tales By The Unexpected has produced “book analysis: To Siri with love by Judith Newman“
- Kaelan Rhywiol who I mentioned the last time I provided links on this subject has posted a piece on bustle.com titled “Why I Believe ‘To Siri With Love’ By Judith Newman Is A Book That Does Incredible Damage To The Autistic Community“
- Ryan Boren of boren.blog has produced a detailed chapter by chapter take down of the book titled “An Actually Autistic Review of “To Siri with Love”“
- Eve Reiland of American Badass Activists, as well as signposting most of the pieces to which I refer in this section has produced one of her own titled “Judith Newman, How Do You Like Me Now?“
- Aspie Under Your Radar has produced a piece titled “Re: #ToSiriWithLove I actually blame the publisher“
- Eve features again with this piece titled “Steve Silberman, author of “Neurotribes,” Doesn’t Get Judith Newman Either” – and if you have not yet read Neurotribes I suggest that you rectify that omission asap.
- Finally, from The Thinking Person’s Guide to Autism comes this piece titled “Why To Siri With Love Is a Wrecking Ball of a Book“, written by Maxfield Sparrow, who blogs at Unstrange Mind.
A FINAL LINK
I conclude this post by linking to a story from the excellent John Pring of Disability News Service. As a strong supporter of “Nothing About Us Without Us” I hardly need to tell you why I was delighted to read “Autistic-led taskforce will address ‘hypocrisy and injustice’“
This is a must read document, courtesy of Eve Reiland (nee Hinson) at americanbadassactivists…
Note: The International Charter of Autists Rights has been officially adopted at AmericanBadassActivists.org. Please support, share and help educate others on Autists Rights.
THE 10 POINTS OF Âû (The Autistic Union)
- I am Autistic. [or] I support those who are Autistic.
- I embrace my Autism as a very significant part of my identity.
- I embrace those who would sacrifice to protect all Autistic life.
- I embrace the belief that Autism does not need any “curing”.
- I embrace the self-advocacy goal of “Everything about us, with us”.
- I embrace the definition of Autism as a neuro-social difference.
- I embrace measures directed at protecting Autistics from attack.
- I embrace a person-centred approach to all Autism issues.
- I embrace rigorous scientific approaches to co-occurring conditions.
- I embrace Autistics leading their own welfare organisations.
1. THE RIGHT TO LIFE
We will prevent eugenic elimination of autistic people by opposing pre-natal testing for autism.
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