Not Weird, Just Limited Edition: Inside the Autistic Mind – Book Review

My review of Not Weird, Just Limited Edition: Inside the Autistic Mind. I urge you to all to buy copies of this fabulous little book.

INTRODUCTION

You may remember that a couple of posts ago on here I mentioned a new book about Autism titled “Not Weird, Just Limited Edition: Inside the Autistic Mind”. Well the copy of that book that I ordered arrived yesterday, and now it is time for a quick review.

A LITTLE GEM OF A BOOK

The book, written by Faye Flint, who was diagnosed as autistic only at the age of 27 (regular readers of this blog will recall that I was 31 when I got my own diagnosis, so this is a situation that is more than a little familiar to me). It is 108 pages long, with the text very generously spaced. Each page is a separate event, recording a particular thought or train of thought, and each is beautifully clear, and for obvious reasons many are instantly recognizable to me. If you are autistic yourself, or know/ are related to someone autistic, or even just have an interest in autism this book, written as it is by someone who is actually autistic is an absolute must read. I am going to share some of my personal favourites (I have selected six out of 108 pages to quote – and the quotes will be indented and italicised to set them apart from my own writing:

First, page 31:

I was a child with Asperger’s.
I will remain an adult with Asperger’s.

Page 45:

No, I won’t ‘grow out’ of my Asperger’s.
Asperger’s is who I am.
But I have lived with myself for 30 years.
I have learned how to manage myself.
To be able to fit into society more appropriately.

Page 49 (I am bolding as well as italicising this one for reasons that should become obvious):

“But you don;t seem like my friend’s son who is autistic?”
Ahh, well maybe that’s because…
I am a grown autistic woman,
Not a 7 year old autistic child.
Yes, there really is a difference.

Page 64:

No, my Asperger’s cannot be cured.
Nor would I want it to be.
This took me a long time after such a late diagnosis.
However,
It has made me, me.
And I kind of like me.
In fact,
Many people say my ‘differences’ are what they love most!

Page 69 (another one that I chosen to bold as well as italicise)

Just ask.
If you want to know about the spectrum,
Ask someone who is on it!
We aren’t offended.
If anything,
It makes us happy that you care enough to want to learn.
There is nobody better to ask,
Than someone who goes through it,
Every.
Single.
Day.

Finally, page 81:

I promise I am listening to you.
But my brain has 2,644 other tabs open right now.
It is very distracting.

The book is available in paperback or on kindle (click here to order).

FF1 (2)
The front cover
FF2 (2)
The back cover.

FF2 (3)FF2 (4)

An Autism Awareness Event At King’s Lynn Library

A brief account of today’s Autism Awarenss event at King’s Lynn Library, with some photographs.

INTRODUCTION

Today at 1PM there was a gathering at King’s Lynn Library for World Autism Awareness Day, in which we talked to the library about things they could do to make themselves more accessible to autistic people and in which we got details of an autism friendly youth group that they are starting. As well as ourselves and library staff a young woman from SCIOPE was also present.

AWARENESS IS BARELY THE BEGINNING

Obviously awareness is necessary, but it should not be thought of as a goal or an endpoint – to borrow from a famous quote it is at most the end of the beginning. To be of real value it needs to proceed to acceptance, understanding of our needs and appreciation of our strengths. The library staff seem genuinely committed to helping autistic people, and they listened to all our comments. There was talk of autism friendly hours in the evening, which I think would be an excellent idea.

A CONSTRUCTIVE DAY

I feel that this event was very constructive and potentially valuable. I await practical developments with interest – as an autistic person who is a great supporter of the library I hope to be able remember today as an occasion when things moved in the right direction. I was very glad to be able to attend – as an advocate of “nothing about us without us” I always feel that I should be involved with this sort of thing, and there had been a possibility that my health would prevent that. Fortunately it did not. Now for…

PICTURES

I start with an infographic posted on the NAS Norwich facebook page by Johanna Corbyn which I consider to be excellent:

Johanna Infographic

To set the scene for my own photographs that relate to this event here is the official King’s Library picture, originally posted on their facebook page:

KLLWAAW

Now we finish with some of my pictures:

P1220305
My cards – one of the library staff accepted one.
P1220306
I was able to photograph various pictures on the wall.

P1220307P1220308P1220310P1220311P1220309

P1220312
Details of the Autism Friendly Youth Group
P1220314
SCOPE publicity
P1220315
The autism related diksplay in the entrance foyer.
P1220316
A rear view of the library.
P1220317
A shot showing the war memorial and the library.
P1220318
The Greyfriars Tower

 

Autism Events V: Saturday in London Part 3

My final blog post about the Anna Kennedy Autism Expo.

INTRODUCTION

Welcome to the fifth and final installment in my Autism Events series, concluding my account of the Anna Kennedy Autism Expo a week ago yesterday (still to come are some related posts on my London transport themed website and a page on this site bringing everything together).

THREE MORE TALKS

I will handle these talks in exact chronological order, starting with…

THE AUTISTIC DAD

This one was slightly problematic for me, although I welcome another autistic person being given the opportunity to speak. The biggest problem I had lay in his comments about vaccines, which I found particularly hard to stomach given that since he is autistic there is an obvious genetic component to his son’s autism. This talk did not inspire as much as I had hoped, and a week on I do not feel any happier about it.

The Autistic DadIntroductionScreen 2Career HighlightsFamily BackgroundFamily IIFamily IIIFamily IVFamily V

SPORT FOR CONFIDENCE

This was a wonderful talk by Lyndsey Barrett, a former netball international (she had a very serious illness which nearly killed her, but is now back playing netball to a good level although she has not yet been recalled by England) and founder of the eponymous Sport for Confidence.

Sport for confidence

Lyndsey Barrett
Lyndsey Barrett.

In the BeginningThe ProgrammeProgrammeModelContributions and BenefitsPartner contributionsProgramme BenefitsCS1InterventionOutcomesCS2GoalsIntervention and outcomesOOSummary

AN EXCELLENT FINISH

The final talk was from one of the people from Green Board Games (see my first post about this event for more) and although I was very tired by this stage of the day I thoroughly enjoyed it. 

Toy talkPicturesdon't dis my abilityThe Strength of ObservationAspieswired differentlySpeakerQuirksSuccess looks different

HOMEWARD BOUND

Leaving the event I headed back to Uxbridge station, and got a Metropolitan line train into London, arriving at King’s Cross in good time to catch the 18:44, arriving into King’s Lynn at 20:22. Here are a few pics from the return journey, although the battery in my camera was running on fumes by that stage of the day.

Hillingdon footbridge
This footbridge is at Hillingdon, one stop out from Uxbridge.
Rayner's Lane buidings III
The station building at Rayners Lane, which functions as a bridge between the platforms as well is one Charles Holden’s most famous.
chilternrailways.co.uk
Chiltern Railways, with which the Metropolitan is closely integrated. Chiltern Railways‘ historical predecessor, the Great Central railway was a creation of Sir Edward Watkin, who also ;played a massive role in the Metropolitan’s history. This train is at Harow-on-the-Hill.
Distant Wembley
A distant view of Wembley Stadium.

 

Autism Events IV: Saturday in London Part 2

Takes my story of the Anna Kennedy Autism Expo up to the end of the first of the talks that I attended.

INTRODUCTION

Welcome to the fourth post in my Autism Events series. This is Part 2 of my coverage of the Anna Kennedy Autism Expo which took place at the Eastern Gateway Building, Brunel University. For those joining the series at this point the previous post are:

  1. Autism Events I: Norwich
  2. Autism Events II: Norwich part 2
  3. Autism Events III: Saturday in London Part 1

This post will cover the remainder of the stalls at the event and the first of the talks that I attended.

AROUND THE HALL

This is a story that will be told largely via photographs…

Autism Heroes

autistic artwork
Autistic artwork.

fidget bed

Oojamabobs
Yes folks – a whole stall devoted to selling fidget/stim toys.

Aspie and me

OT Practice

PAUL ISAACS TALK

Paul is autistic himself, and his talk was both informative and inspiring. Notice that as with the Autism Anglia event in Norwich this event gave autistic voices lots of opportunity to be heard. Here are some pictures from this talk. 

Meeting room I
Because of the shape of the meeting room it was equipped with two big screens, one for each half of it.
Paul Isaacs talk
Paul’s talk on the screen.
Ready to go
Paul ready to start his talk, while event organiser Anna Kennedy watches from the corner. She kept all the speakers informed as to how they were doing timewise.
Paul Isaacs
Paul Isaacs speaking

Fruit salad approach

Early years

Autism Fruit Salad

Asperger and Autist brains
Autistic and Aspergian traits.

Brain close-up

Aspie traits
Close up of the Aspergian traits list
Autie traits
Autistic traits close up
Aspinauts
The ones in the middle
Personhood
Although I choose when using such descriptions to refer to myself as an autistic person, with ‘person’ coming after ‘autistic’ I am with Paul in asserting my personhood.
Pauls Books
Paul’s considerable output.

Midweek Medley III

A little bit of everything.

INTRODUCTION

A sharing post again! I am doing stuff first tomorrow and then Saturday that will provide material for a number of blog posts, so watch this space…

GENERAL LINKS

Richard Murphy of Tax Research UK is working on (among many other things) a project he calls the Ten Commandments of Tax. Below is a graphic of his first draft.

My next piece comes from The Guardian, and is Caroline Lucas and Jonathan Bartley on why the Greens will not simply fold into Labour. It is an excellent piece, well worth  reading. I would say that Labour and the Greens can work together, and that if Labour are able to form a government after the next General Election they should still seek to put Ms Lucas in charge of environmental policy even if they have an outright majority that would entitle them appoint ministers exclusively from their own ranks.

This feeds nicely into the final piece in this section, a petition calling for Environmental Studies to be part of the National Curriculum. As this petition is on the official site for petitiions to the UK parliament only UK citizens can sign it – if you are one and want to sign it please click on the screenshot below:

ES

AUTISM SPECIFIC STUFF

We begin this section with a link to a post on Cambria’s Big Fat Autistic Blog titled “Preparing for April, the Trauma Month“. It sets out in detail just why “Autism Awareness Month” is actually not a good time for autistic people, and I recommend everyone to read it. Below is the infographic that heads the post:

My next link is from the the Thinking Person’s Guide to Autism and is titled “The Toxicity of “Autism Parent” Memoirs“. Please note that this piece does not at any point even suggest that parents of autistic children should not write about their children’s experiences – it merely points out recent examples where this has been done in a way that is not acceptable.

My next post, courtesy of Fire Bright Star Soul, is an example of a parent of an autistic child writing about one of said child’s experiences in exactly the right way. “Autistic and Suspended” could serve as a model for how to write such stories. Below is a quote from the middle of the piece (the first of the two paragraphs is italicised in the original as well):

I spoke with the assistant principal of her grade, and he was compassionate, thoughtful and had an easy way with B. After speaking with both him and me, she decided not to have me take her home from school but try to push through it and stay the rest of the day. I was extremely proud of her for making that effort, and it worked. It’s a step toward success for her, because she is making progress to self regulation and learning that even if she has a meltdown, it doesn’t mean the ruin of the rest of her day. She can calm down, pick herself up and keep going. This won’t always be the case of course, but it’s an achievement on her part that I am happy to celebrate for the victory that it absolutely is. A year ago she would have been down for the entire day.

A word: By now you are probably aware that I follow a strict self-restraining policy of not posting any detail of my daughter’s life as an autistic without her express consent, and this is no different. We discussed this last night, and I explained why I wanted to write about it. She was amenable to this, so here we are.

A SOLUTION AND A NEW PROBLEM

In “Midweek Medley II” I posed the following problem from brilliant:

the cube

Below is the answer and then one of the published solutions:

Cubes

Here is Geoff Pilling’s very succinct explanation:

There is 1 way you can have three reds all adjacent, and 2 ways you can have two of the reds be on opposite edges (distinguished by whether the green is opposite the third red or not). That gives,

1+2 = 3
My new problem for you, also from brilliant, is a variation on a very old theme, which caught a surprising number of solvers on the hop:
Flip

PHOTOGRAPHS

As the world knows (since many of us Brits are absolute drama queens about such matters) we have recently had some rough weather, which means I do not have as many pictures at my disposal as usual, but here are some:

Sandringham Railway Path
Although the weather had definitely eased by Saturday not all the snow had melted

Snowy walksblackbirdGulls in the snowWillows and snowFlowers IThe Walks floral sign

I-pad 1
Musical keys ran as normal.

Yellow flowersMoorhen

gull and lapwing
Today was wet at times, but never really cold (though I would have advised against anyone going out without a coat)
Redshank
A redshank near the Nar outfall, earlier today.

Autism Acceptance Months II – Luke Beardon Joins The Fray

Sharing a wonderful post on the theme of autism accpetance from Luke Beardon. As this is a pure sharing post comments are closed – please comment on the original.

INTRODUCTION

Yesterday I was inspired by a wonderful piece of work done by Jennifer Lisi to create a blog post titled “Autism Acceptance Months“. Well I was not alone in being inspired by it, and I now share with you a post created by Luke Beardon titled “Inspired by Jennifer Lisi“. Because this is a pure sharing post I am closing it for comments – to comment please visit Luke’s post, linked to above and in the next section.

INSPIRED BY JENNIFER LISI

Below is the opening of the post, and a screenshot showing a bit more of it:

Are you aware that there are moons and stars?
Are you aware that there is a theory of relativity?
Are you aware of the music of Mozart?
Are you aware that cars have engines?
Are you aware that houses need careful planning when built so they don’t fall down?
Are you aware that there are creatures living in the sea?
Are you aware that pacemakers help people with heart problems?
Are you aware of Harry Potter?

LB

JENNIFER LISI’S NEW MEME

Having set the ball rolling by providing the inspiration for both my and Luke’s posts, Jennifer has subsequently created this lovely meme:

AAccMeme