The SCOPE Christmas Meal And Some Autism Related Links

A brief account of the SCOPE Christmas meal to which I was invited as NAS West Norfolk branch secretary and some autism related links.

INTRODUCTION

I am including autism related links because it was in my capacity as NAS West Norfolk branch secretary that I was invited to attend the SCOPE christmas meal (our organisations are looking to work more closely on various things). 

THE MEAL

The meal was arranged for The Gatehouse, a Hungry Horse pub located near the South Gate, at the edge of King’s Lynn (hence the name) with food booked for 3PM. The plan was for a few things to be discussed as well. I arrived at the pub not long after 2PM, purchased a pint to drink slowly while I waited for others to arrive (SCOPE were paying for the food, so I reckoned I could allow myself a couple of drinks) and settled down to wait. 

Others began arriving at around 2:45, and Chloe Yianni from SCOPE, who was running the event, arrived just before 3PM. 

Most of the ‘meeting’ element of the day took place between the main course and dessert, accompanied by a very impressive sunset (yes folks it gets dark early in these parts in December). 

I enjoyed the occasion and look forward to working closely with the people from SCOPE in 2018 and beyond.

Moorhen
The first 14 pictures you will see were taken while walking to the pub

StarlingBirds in a treeBirds on the wingCormorantWagtailCormorant 2Rooks and warning signwind turbinesbirds in the grassStarling on grassStarling 3Nar Valley ParkBridge

Calendars
My last three calendars set out in the pub.
book like wall
The first of five decor shots

decorationHungry Horse motifWall artdecoration 2

Sunset
The sunset
Chloe
Chloe Yianni
Party
The party.

SOME AUTISM RELATED LINKS

A majority of the links in this section are to posts on USian (acknowledgement to New Zealander Heather Hastie for this term) blogs/ sites, and most of the rest are British, although a few other countries also feature. As an internationalist I am proud that people from many countries visit this blog (108 in the last year, 123 all time). 

ON TERMINOLOGY

This section relates to a wonderful post put up by Autism Mom a couple of days ago under the title “I WANT TO BE CALLED AUTISTIC” I offer you my own comment in immediate response to that post, which I stand by:

Well done to both you and your son. Although my own strong preference is to describe myself as an autistic person I am quite happy for those who choose to do so to describe themselves as people with autism – what I will not accept is a well meaning neurotypical person seeking to make the decision on our behalf – it is our decision and we should make it ourselves.

Also, here is a quote from the end of the post:

Person first versus identify first: He cocked his head and asked me to explain more.

“I want to be called autistic,” he announced after I had finished. “Saying “person with autism” sounds like I have a disease. I don’t have a disease, this is just how I am.”

And then he added: “Actually, I want to be called by my name, but if you need to describe my autism I want to be called autistic.”

Make it so.

If you are reading this and have an autistic spectrum condition please feel free to add a comment about how you would prefer to be described.

I finish this section with a link to post mentioned in the Autism Mom piece linked to above which appears on Autistic Not Weird under the title “A plea to the autism community from one of your own

THE “TO SIRI” ISSUE

Many splendid pieces have been produced about this subject since I last provided links relating to it, and I append a bulleted list of the best links:

A FINAL LINK

I conclude this post by linking to a story from the excellent John Pring of Disability News Service. As a strong supporter of “Nothing About Us Without Us” I hardly need to tell you why I was delighted to read “Autistic-led taskforce will address ‘hypocrisy and injustice’

 

Downham Market Community Fair

An account of running the NAS West Norfolk stall at the Downham Market Community Fair on Saturday.

INTRODUCTION

NAS West Norfolk were invited to run a stall at the Downham Market Community Fair, which took place on Saturday, with stalls setting up from 9AM and the event itself running from 10AM to 2PM. This post is my account from my perspective running the NASWN stall on the day. There will be plenty of photographs. I have stated elsewhere that while it is not ideal to have a stall covered by only one person if NAS West Norfolk are going to have only one person running the stall that person should be me.

Community Fair

GETTING THERE

I travelled to Downham Market by train (£3 return when making the journey at the weekend), selecting the 7:54AM, which would see me arrive at the station at about 8:10AM. I saw sufficiently much to take the eye as I walked through the town that I shall be putting up a separate post about that. I arrived outside the Town Hall at 8:35AM, giving me plenty of time to take some photographs of the outside of the building.

Town Hall Exterior 5Info board 2Info board 1Detail 5Town Hall Exterior 4Detail 4Town Hall Exterior 3Foundation stoneDetail 3Detail 2Detail 1Main doorTown Hall Exterior 2Town Hall Exterior 1Carr panelAdvertisingWindowDetail 6

THE NASWN STALL

As arranged the person bringing the stall and some new leaflets arrived at 9AM, and the setup was swiftly accomplished. This was the first occasion in which the aspi.blog calendars for 2018 were on public display.

Stall
The stall – new leaflets/flyers, calendars and the display board.
Calendars
A close up of the calendars.

AROUND THE HALL

Obviously, being in sole charge of the stall I did not have much opportunity for moving about once the event was underway, but I did get sufficient pictures from a combination of the occasions on which I did move about and those taken from the stall to give a feel for the event. We start with some general pictures of the inside of the building.

Whole Hall
Two shots showing views of the hall

Hall

Parapet
This parapet is presumably the front of an upstairs seating area.
Artwork 2
The last two shots in this selection feature artwork on the walls just outside the hall.

Artwork 1

Moving on to inidviudal stalls, I got pictures of the Downham Market Horticultural Society stall, the RBL stall, and various others. The most impressive stall of the day was that being run by the King’s Lynn and District Astronomy Society. They had a big screen displaying some very impressive slides as well their display board. The Cats Protection group had a stall, that like the NASWN stall was being run by a single person. 

Sue Ryder 2Cats ProtectionDownham Market HortiRBLRBL modelsBannerSue RyderRotary

These are all the pictures of stalls other than the Astronomy Society one that I got, and it is to that group that I now turn:

Astronomy 1
Two shots of the KLADAS stall

Astronomy 2

Astronomy 3
The remainder are of slides that caught my attention.

Astronomy 4Astronomy 5Astronomy 6Astronomy 7Astronomy 8Astronomy 9

THE NAS WEST NORFOLK STALL

The event was not massively attended, but I did see quite a few people at the NASWN stall, and the experience was overwhelmingly positive. My calendars impressed a few people but not sufficiently for any to sell. From an NASWN perspective, the main point of the day of course was to improve understanding of autism and to publicise the existence of our group. We succeeded as well as could have been hoped for in both regards, with a number of the new leaflets being taken, and quite a few people leaving the event better informed about autism than they had been before it started. I also got to explain about the rainbow coloured infinity symbol, and the fact that it is a symbol chosen by autistic people to represent the autistic spectrum. I consider that this event was a good use of a significant part of my Saturday. To finish, here is our stall for a second time:

Stall
The stall – new leaflets/flyers, calendars and the display board.

 

 

About Autism

Some important autism themed pieces and a few of my photographs.

INTRODUCTION

I have several important links relating to autism to share with you, and I urge you to continue that sharing process. Just to remind my readers I am #actuallyautistic, and also branch secretary of the National Autistic Society’s West Norfolk branch, and in that latter capacity I will conclude this introduction by reminding you of NAS’s catchline:

UNTIL EVERYONE UNDERSTANDS

A NOTE ON ATTRIBUTIONS

I found some of these pieces by way of people other than the original author. In such cases as well as crediting the actual author I also intend to mention the person who gave me the tip off. If you seen an underlining anywhere it is a link, and those links that are body text will be in a colour other than black to further highlight them.

INCLUSIVE AUTISTIC TRAITSAUTISTICALITY

This piece was brought to my attention when the Neurodivergent Rebel reblogged it. It is a long piece, but very readable and absolutely bang on the money. The list itself is too long to quote here, but the screenshot below which explains the problems that the post goes on to address brilliantly is a good start:

IAT

THE LEFEVER BIKE RIDE

Paul and Jamie Lefever recently undertook a sponsored cycle ride from King’s Lynn to the National Autistic Society’s HQ in London, a distance of 118 miles. A full account, under the title “11-year-old Jamie cycles 118 miles for our charity (4 September 2017)” is available on the NAS website.

Jamie Lefever.

ABA THERAPISTS BUSTED

This piece, written by Amy Sequenzia, a well known autistic person and advocate for autism, was originally posted on the autismwomensnetwork under the self explanatory title “ABA Providers Making Fun of Autistic People“. I include a graphic from this post below:

Image is a photo of a group of human figure-shaped wooden pegs clustered to the left and a single wooden peg standing off to the right. Text says,
Image is a photo of a group of human figure-shaped wooden pegs clustered to the left and a single wooden peg standing off to the right. Text says, “It is about how ABA “therapists” REALLY see Autistics. It is about them making fun of us because they see us as broken and hopeless. -Amy Sequenzia, autismwomensnetwork.org”

 PREPARING AN AUTISM FRIENDLY SECONDARY CLASSROOM

With the new school year just getting underway, Lynn McCann of Reachout ASC has published a very informative and constructive piece under the title “Preparing an autism friendly secondary classroom“. 

AN AUTISM RELATED TWEET

While preparing this post I saw the following tweet, from Paul Isaacs, so here it is:

WEB RESOURCES FROM THE NEURODIVERGENT REBEL

I end the post with something I have touched on before. Previously I only included the email address for those who wanted to add to the list. This time I include the list as well:

web resources

This is a growing list. Please send suggestions to NeurodivergentRebel@gmail.com

PHOTOGRAPHS

As always, I end this post with some of my own photographs:

wagtail in pigeon's shadow
The pigeon in the background helps to show how tiny this wagtail is.

Squirrel

climbing squirrel
No I have not rotated this shot – the squirrel really is on a vertical tree trunk.

high tide and sunset

Rathskellar and Hanse House
This shot shows Hanse House and the Rathskellar, the latter of which is hosting a charity beer festival this weekend.

Marriott'sPlaques

27 King Street
I was due to steward at 11-13 King Street between 12 and 2PM on Heritage Open Day, but this has now been changed to 27 King Street, which is this fine building.

27 King Street - plaque

EIFCA boat 2
The Eastern Inshore Fisheries and Conservation Auhtority.
Cockler and research boat
The cockling boat Baden Powell and a Fisheries Research vessel.

Serene DawnCormorants and West Lynn ChurchCormorants 6 (1)Cormorants and gullsPC

 

What is Autism?

Some thoughts about autism provoked in a good way by anonymouslyautistic and a bad way by the folk at magiquiz.

INTRODUCTION

I am not going to attempt a scientific answer to the question in my title, merely to lay out some of my own thoughts. The original inspiration for this post was a post produced by anonymouslyautistic, titled “WHAT IS AUTISM – FROM AN AUTISTIC’S PERSPECTIVE” and brought to my attention by americanbadassactivistsAs readers of this blog will be aware I am branch secretary of the National Autistic Society’s West Norfolk branch as well as being autistic. 

 

WHAT AUTISM IS NOT

Among the things that autism is sometimes supposed to be but is not are:

  • A form of mental illness (more on this at the end of this section as you will see). 
  • A disorder
  • Something to be feared or worse still hated
  • Something that needs to be cured

I end this section with an example that absolutely shocked me when I saw it by way of twitter this weekend. I invite readers of this post to collectively identify everything they can find that is wrong with the formulation of the question below:

ableist question

If you click on the image you can go to the quiz, take it yourself and then post a comment (if you choose to do this please follow me in highlighting the problems with this question).

AUTISM AND ME

My unsuitability for front-line customer service and the difficulties I have with communication are down to autism. On the other side of the ledger my eye for detail, reflected in my photography among other things, my mathematical skills, my aptitude for working with computers and several other of my strongest attributes are also due to autism.

I will finish this section by reminding people that different does not necessarily mean less, and that we are autistic people – note the emphasis given to the second part of that designation.

PUZZLES

In this section I provide the solution to one puzzle and offer another for your inspection. Both are mathematical in nature. 

In ‘Midweek Mixture‘ I set the following puzzle:

The above table shows two putative sets of coin toss records, each for one coin tossed thirty times. Which is more like to be genuine based on what you can see?

a) series one
b) series two

To begin the solution, here is the table above with a column added:

coin tosses complete

You will see that the two sets of coin toss lists in the original problem were made up, but if you look at the results for the set of coin tosses I actually performed you will note that it looks much more like series two than series one – randomness is clumpier than we intuitively expect (the idea for this problem came from a book by Natalie Angier, in which she tells the story of a teacher who uses an experiment in which half of her class are assigned the task of inventing a series of coin tosses, and half of actually tossing coins and recording the result, while the teacher goes out of the room – and nearly always the teacher can tell the real from the fake). 

My new problem comes from the mathematical website brilliant:

octagon

PHOTOGRAPHS

As usual I end this post with some photographs, in this case featuring a family of swans I saw swimming along the Gaywood River yesterdary morning:

Swan familySwan family 2Swan family3Swan family 4Swan family 5young swanstwo swansyoung swanwhite swanwhite swan 2white swan 3Swansswans 2Swans 3

 

A Couple of Announcements

An announcement, a warning and some photographs.

INTRODUCTION

I am planning a major blog post for tomorrow morning, but there are a couple of things I wish to share now.

HERITAGE OPEN DAY

Heritage Open Day 2017 is on Sunday September 10, and as usual many King’s Lynn buildings will be opening their doors for the occasion. This year I will be among the volunteers. I will be stewarding at 11-13 King Street between 12 and 2PM. Here are a few pictures of the place taken today:

11-13 King Street
11-13 King Street, where I will be stewarding from 12 to 2PM on Heritage Open Day.

PassageBeyond the passage

A WARNING FROM AMERICA

There is an online magazine called Autism Parenting Magazine. Amy Sequenzia, a very well known autistic person and autism advocate has had a very bad experience with them recently, as has one of her friends. I found out about this from americanbadassactivists, who put up a post linking to Amy’s original, which appears on the Autism Women’s Network. As someone who is both autistic and heavily involved witha charity that helps autistic people I am shocked by the attitudes and behaviour of the people who run this online magazine. Below, in screenshot form, is some of the detail from Amy’s piece:

BNW

A POSITIVE ENDING AND PHOTOGRAPHS

I always like to end my posts with pictures, but before I do here is a link to something much more positive than the last piece I linked to. This piece, from Science Whys is titled “We Are Family” and it ends with a wonderful quote from Maya Angelou: “We are more alike, my friends, than we are unalike.”

Now for those photographs:

CV entire
The Vancouver statue (3 images)

CV statueCV plaque

Baden Powell 1
A double ended cockling boat, the Baden Powell, currently moored at the jetty near Marriott’s Warehouse (four images)

Baden Poweel sheetBaden Powell namePennant2Flying gull and ferries

Swallow
Swallows often fly over the Nar outfall, but capturing them is hard due to their sheer speed.

 

NAS West Norfolk 10th Anniversary Celebrations

A personal account of NAS West Norfolk’s 10th anniversary celebration garden party.

INTRODUCTION

Yesterday saw the celebration of NAS West Norfolk’s tenth anniversary. We had a garden party in a quite magnificent garden in Castle Acre which we had been very generously allowed to use for the occasion. Here as a reminder is the poster we used to advertise the event:

MY ROLE IN THE CELEBRATIONS

As branch secretary of NAS West Norfolk I was involved in running the event – I helped to set things up at the start and with the clear up at the end. As an autistic person I was also delighted to take part in the event in between times. 

THE GARDENS

These gardens are truly amazing – this is where the original fortified village that adjoins the castle was located, and at one point there is a steeply sloped bank that leads down to a section of the old town moat. There are some amazing plants and grasses in these gardens, some excellent garden sculptures, a pond with ducks of various breeds and dragonflies around it, many fowl which run free and a swimming pool the excellence of which I can personally vouch for having spent an hour there. Near the pond is a summerhouse which was our designated Quiet Area (an absolute necessity at events for autistic people, or if you want autistic people being comfortable attending your event). There was also a house that was open to the public in which cakes (some baked by our wonderful hosts and some by members of our group), raffle prizes and such were set up.

The hosts had provided a few games for us, and one of our members brought along a swingball set as well.  

THE DAY

Once the set up had been accomplished there was plenty of time to enjoy the day, and it went excellently. For me the magnificent setting was one half of a superb equation, the other being autistic people enjoying themselves without worrying what anyone else was thinking because everyone present had some sort of connection to autism, and therefore some degree of understanding. Everyone present was at least at the ‘Understanding’ stage of the Awareness-Understanding-Acceptance-Appreciation line. I was regularly taking photographs except for the hour I spent in the swimming pool and we had a photographer from Your Local Paper present as well. The raffle prizes were presented by the Mayor of King’s Lynn. 

PHOTOGRAPHS

Here are my photographs from the day…

Moat
The bank leading down to a section of the old town moat – an entangled bank worthy of the closing words of On The Origin of Species.

Butterfly2

Butterfly
The only one of many beautiful butterflies that I was able to capture.

Swingball2entrance to swimming poolPicnics3953Table tennis2Table tennisYoung cockerelbannerBig house

decorative brickwork2
Half of this brickwork Tudor Rose has disappeared.

decorative brickwork1Brick and flintbuildingmini clocktower

Watering can
A watering can sculpture (it is huge – one could not actually use iut.
big bird2
I saw this bird early on, but it kept itself to itself later in the day.

Big bird 1

wire sheep
Wire sheep near the pond

cockerelAvian flotillaJemima

Dovecote
What used to be the dovecote – the brick nesting boxes are still in place.

Dovecote2

Pond3
The pond.

Pond2Pond1Ducks

summerhouse
The designated Quiet Area.
Dark den
Inside the summerhouse we assembled the Dark Den – the framework is a little like Quadro except with that the plastic tubes have a smaller diameter. Initially we had failed to notice that the tubes have to go through the tenting, so we took longer to get this assembled than we should.
Dark den interior1
An interior shot – once I pulled the second door flap at the back into place and someone else had added a blanket to soften the base it was ready for use.
Private
This was in the summehouse.

NASWEN notice board

Swingball
The swingball set in use.
swimming pool
The swimming pool.

Bird2bird1

wire ducks2
wire ducks – there were also wire sheep near the pool.

wire ducks13913

Monday Madness 3: Mainly Autism

Some autism related links, and some photos from Musical Keys.

INTRODUCTION

As NAS West Norfolk branch secretary and an #actuallyautistic person I always like to share good stuff about autism. I am including within this a piece that is not directly about autism but relates to many of the issues that autistic people highlight.

AN ERIN HUMAN INFOGRAPHIC

This piece from erinhuman.com titled “Disability 101: Medical Model vs Social Model” features a really excellent infographic, reproduced below:

dis101

AN OLD FAVOURITE AND A NEW FIND

Laina over at thesilentwaveblog has, as she so often does, hit the nail smack on the head with a piece titled “Depathologizing Asperger’s / autism ~ The strength vs ‘lacking’ edition” The feature graphic is below:

Laina is the old favourite of the title of this section, while the new find, brought to my attention by Eve Hinson of americanbadassadvocates, is Michelle Sutton of michellesuttonwrites whose recent piece titled “THE LANGUAGE OF IDENTITY, OR “I AM NOT AN AUTISM PARENT”” I heartily recommend.

PHOTOGRAPHS

These photographs were taken at Muscial Keys on Saturday, which I am involved in due to my association with NAS West Norfolk.

KirstenInstruments

Screen
The first three screens show the things I have built up involving each of my three sprites

Screen2Screen7

Screen4
This focusses on the backdrop itself…
Screen5
And not long later I had created functions for this screen that meant that every button I could assign an individual function now did something.
Screen6
Close up of backdrop and sprites.