A brief account of today’s Autism Awarenss event at King’s Lynn Library, with some photographs.
Today at 1PM there was a gathering at King’s Lynn Library for World Autism Awareness Day, in which we talked to the library about things they could do to make themselves more accessible to autistic people and in which we got details of an autism friendly youth group that they are starting. As well as ourselves and library staff a young woman from SCIOPE was also present.
AWARENESS IS BARELY THE BEGINNING
Obviously awareness is necessary, but it should not be thought of as a goal or an endpoint – to borrow from a famous quote it is at most the end of the beginning. To be of real value it needs to proceed to acceptance, understanding of our needs and appreciation of our strengths. The library staff seem genuinely committed to helping autistic people, and they listened to all our comments. There was talk of autism friendly hours in the evening, which I think would be an excellent idea.
A CONSTRUCTIVE DAY
I feel that this event was very constructive and potentially valuable. I await practical developments with interest – as an autistic person who is a great supporter of the library I hope to be able remember today as an occasion when things moved in the right direction. I was very glad to be able to attend – as an advocate of “nothing about us without us” I always feel that I should be involved with this sort of thing, and there had been a possibility that my health would prevent that. Fortunately it did not. Now for…
I start with an infographic posted on the NAS Norwich facebook page by Johanna Corbyn which I consider to be excellent:
To set the scene for my own photographs that relate to this event here is the official King’s Library picture, originally posted on their facebook page:
An introduction to Autism Acceptance Month/ Autism Appreciation Month and a few photographs.
Officially April is designated Autism Awareness Month. In this post I will give my view as to why this designation should be rejected and what the alternative, as articulated by autistic people should be.
Firstly the notion of ‘Autism Awareness’ is tainted by the mere fact of who the main organisation pushing it are, who I will not name here. Suffice to say that their many misdeeds include being responsible for the video nasty “I Am Autism”, and that they are associated with the colour blue and with the puzzle piece symbol. I am glad that I am separated from them by the width of an ocean!
Secondly, even if the first point above did not apply, ‘awareness’ is simply not sufficient as a bannerline aim. Awareness does not equate to understanding, and that latter is the barest minimum that is required…
UNDERSTANDING, ACCEPTANCE, APPRECIATION, RESPECT
Understanding of autism is merely a good starting point (and there are ton of places where you can find autistic people writing about autism, some which I shall list later). It needs to lead to acceptance of us for who we are, appreciation of our good points and respect for us as human beings.
PLACES TO LEARN ABOUT AUTISM
This list is not (never in the proverbial million years) exhaustive, but it gives you some good pointers.
#REDINSTEAD, #LIGHTITUPGOLD & THE RAINBOW INFINITY SYMBOL
The organization I refuse to name tells people to #lightitupblue, for which reason that colour is off-limits (except when it appears in photos) to this site at least for the month of April. The first two elements of the title of this section refer to alternatives. This blog is following #RedInstead simply because gold letters don’t really stand out against a white background. The Rainbow Infinity Symbol, a customized version of which heads this blog, while another appears on my personal cards, is an excellent alternative to the discredited puzzle piece for the role of autism symbol. Here courtesy of stimtheline is the Autistic Bill of Rights:
My final blog post about the Anna Kennedy Autism Expo.
Welcome to the fifth and final installment in my Autism Events series, concluding my account of the Anna Kennedy Autism Expo a week ago yesterday (still to come are some related posts on my London transport themed website and a page on this site bringing everything together).
THREE MORE TALKS
I will handle these talks in exact chronological order, starting with…
THE AUTISTIC DAD
This one was slightly problematic for me, although I welcome another autistic person being given the opportunity to speak. The biggest problem I had lay in his comments about vaccines, which I found particularly hard to stomach given that since he is autistic there is an obvious genetic component to his son’s autism. This talk did not inspire as much as I had hoped, and a week on I do not feel any happier about it.
SPORT FOR CONFIDENCE
This was a wonderful talk by Lyndsey Barrett, a former netball international (she had a very serious illness which nearly killed her, but is now back playing netball to a good level although she has not yet been recalled by England) and founder of the eponymous Sport for Confidence.
Leaving the event I headed back to Uxbridge station, and got a Metropolitan line train into London, arriving at King’s Cross in good time to catch the 18:44, arriving into King’s Lynn at 20:22. Here are a few pics from the return journey, although the battery in my camera was running on fumes by that stage of the day.
Takes my story of the Anna Kennedy Autism Expo up to the end of the first of the talks that I attended.
Welcome to the fourth post in my Autism Events series. This is Part 2 of my coverage of the Anna Kennedy Autism Expo which took place at the Eastern Gateway Building, Brunel University. For those joining the series at this point the previous post are:
This post will cover the remainder of the stalls at the event and the first of the talks that I attended.
AROUND THE HALL
This is a story that will be told largely via photographs…
PAUL ISAACS TALK
Paul is autistic himself, and his talk was both informative and inspiring. Notice that as with the Autism Anglia event in Norwich this event gave autistic voices lots of opportunity to be heard. Here are some pictures from this talk.
Most of this post covers events from a week ago yesterday, but before I get into the main body of it there is on little thing I need to attend to first:
AN AMENDMENT AND AN APOLOGY
For those of you who saw the original version of Autism Events II, you will notice should you revisit it that I have removed many of Amanda Hind’s slides from it. This was at her specific request, on the course of a very friendly twitter exchange. I have never previously been asked to remove photographs of slides from a post, but I fully acknowledge Amanda’s right to make the request, and I acted on it very promptly. This is by way of both explaining why I edited that post after it had been up for a while and apologizing in this blog for publishing more of Amanda’s slides than she was happy to see published.
THE ANNA KENNEDY AUTISM EXPO – GETTING THERE
The event was taking place at Brunel University’s Eastern Gateway building in Uxbridge. This meant getting a train and changing at King’s Cross. The Metropolitan line route from King’s Cross to Uxbridge is more direct than that of the Piccadilly line, and the Metropolitan line platforms take less long to get to from the railway line, so I opted for that route. I also decided that even though it would almost certainly mean not being there for the very start of the event that I would get the 6:54 rather than the 5:54 from King’s Lynn. I will be covering the Metropolitan line element of the journey in detail on my London transportthemed website, but here are some photos from the journey…
The walk from Uxbridge Station to the venue was supposed to take about 25 minutes, but I went the wrong way at first, so it took me a bit longer than that. I arrived at the venue a bit late, but soon got stuck into visiting all the stalls, to see what people were doing and to tell people about myself and NAS West Norfolk. I will now share a few thoughts and photos from a couple of those stalls.
I spoke to two of the people from this company, which creates games aimed specifically at helping SEND children, including autistic children. I got to sample a couple of the games as well – they look very good to me. Please note that the title of this section is formatted as a link to their homepage.
The second in my series of posts about Autism events I have attended recently.
Welcome to this second in my series of posts about recent Autism events that I have attended. The opening piece can be seen here. Before moving on to the main body of the post I include a petition from today. It was posted on change.org, and the screenshot below contains details and functions as a link:
THE STORY SO FAR
During the first post in this series I set out what the series was going to be about, put up a mini-time line of the days covered and started my coverage of the Autism Anglia Information Sharing Event, reaching the end of Sian Hutchings’ talk. This post takes us up to the end of that event. Here are a few pictures from that event:
SESSION 3: ACTIVATE
Just in case anyone was wondering this has nothing to do with the vile Tory offshoot of the same name (an organisation of such vileness that it is known in certain circles as “Active Hate”). This Activate is a very different organisation, devoted to helping vulnerable people. Here are a couple of pictures:
This was a very interesting session and I went to lunch in good spirits. The lunch was excellent – decent sandwiches, crisps and a drink. Then I had one more session to attend.
SESSION 4: AMANDA HIND
Amanda Hind’s session, on Puberty, Sex and Relationships Education and Autistic Girls, was packed full of interesting and important stuff. Before letting my photographs take over, I will say that she is an autistic mother of two autistic children (it was actually her son’s diagnosis that prompted her to investigate on her own behalf) and that she is a fantastic speaker. At her request I am only displaying a handful of the slides…
FINAL ACT – FEEDBACK
One of the things contained in the packs we were each given on arrival at the venue was a feedback form. I filled mine in after this last talk, and suffice to say it was all positive. As I was staying in Norwich for an evening meeting I then decamped to the Millennium Library, very close to the theatre, to unwind for a bit, and prepare myself for the evening. All in all this was a very positive experience, and I left the event in a very good (if tired) frame of mind.
The first in a series of posts about a couple of autism events that I ahve attemded recently.
I have had the good fortune to attend two autism events in the last few days. NAS West Norfolk, of which I am branch secertary funded my attendance at both events, and so I travelled with a bundle of NAS West Norfolk leaflets as well as my own personal cards. This is the first of a series of blog posts I will be writing about these events, and therefore includes a…
I hope that the above makes it clear why I am only just starting this series of posts and why I still have a large number of photos from the last few days to edit.
THE AUTISM ANGLIA EVENT
The bus ran a bit late, which meant that I arrived at the venue later than I would have liked. However, I was in time to get into the first talk I had booked for, Alan Bicknell of Autism Anglia talking about “The Uniqueness of Autism”. I impressed the speaker with three useful interventions – first up responsing to his request for a ‘guess’ as to how many people in the UK were likely to be on the autistic spectrum. I reasoned in Holmesian fashion that given the UK’s overall population and the popularly reckoned instance of autism being 1 in 68 the figure was likely to be somewhere in the region of 1,000,000. I was in the right ball park, with the speaker’s own reckoning being somewhere in the region of 800,000. My second intervention was to identify the author of the the ‘Thomas the Tank Engine‘ stories (Reverend W Awdry – his son Christopher continuing the family tradition). My third and final intervention was in response to his question “Can we all be a little bit autistic?” To which I said a very firm no, and backed this up when asked to expand on that answer by stating that ‘we are all a little bit autistic’ cheapens and demeans the very real difficulties faced by those of who are #actuallyautistic. He thanked me for making those points, and subsequently when I spoke to him after the talk he again thanked me for my contributions.
PHOTOGRAPHS FROM THAT FIRST TALK
SESSION TWO: SIAN HUTCHINGS
Ms Hutchings is autistic herself, and her talk was based around her own life and experiences, before focussing on educating autistic people. This was in the same venue as the first talk I had booked to attend. Sian’s talk was absolutely amazing, and although the photographs with which I end this post give you some basic idea of it, you really had to be there to hear it.