A brief account of my appointment with the neurologist at QEH and of the arrival of my new computer.
Yesterday I attended an appointment with the neurologist at Queen Elizabeth Hospital, and I also dropped my old computer at PC World so that they could transfer stuff from it to my new computer, and my aunt picked up both machines from them today.
THE NEUROLOGIST APPOINTMENT
This went well. The dizziness and disorientation I experienced as an immediate response to my new anti-seizure medication appears to relate to a problem with my inner ear, which meant that organizing an appointment with the audiologists at Addenbrooke’s became of increased importance. This appointment is booked for 11:30 on June 3rd, immediately after I have other appointments at Addnebrooke’s, t0 minimize the number of journeys to and from Cambridge. I also have in case of emergency a medication for taking if the dizziness gets really bad. I am greatly relieved to have some answers and the prospect of further answers at the audiology appointment.
WITHOUT THE COMPUTER
Yesterday afternoon and evening I had a lot of time without access to a computer, and I filled some of it by mounting postcards for display until I ran out of glue dots (I had three postcards still to mount to complete the intended display, as you will see), and I have some stamps that will need the same treatment if I am to display them. This morning I used my phone to open facebook and post a message on the NAS West Norfolk Commitee page. Here are some pictures from yesterday:
Of course these are not the only photographs I took…
An explanation of the events the between caused me to spend most of a week in hospital.
In this post I will be explaining why there has been a hiatus in this blog. I hope that normal posting will be resumed from tomorrow.
HIATUS PART ONE: PHYSICAL SICKNESS
On Monday morning everything went OK until breakfast. The carer arrived and I was still OK, though feeling a bit tired. Then just after the carer left I was sick. My entire breakfast came back up. My aunt came round, and helped sort things out, another carer cleaned up the mess and washed the stuff thatr needed washing. My aunt left at about 11:30. Between then and her return around 1PM I was sick twice more. There was then another episode while decisions were being made about what to do. Near the end of the trip to Addenbrookes I brought up some pure bile.
At Addenbrookes I was admitted overnight, given an x-ray and a CT scan and they decided that the most likely explanation was a partial seizure. I was discharged the following day, with a new anti-seizure medication added to my regular medications.
On Wednesday I woke up feeling OK, got up to open the curtains and nearly fell out of bed in the process. I returned to bed to read for a bit before getting up, but by disorientation and sense that the room was spinning did not go away. I was not able to concentrate of the book for very long, and went back to sleep for a period. The carer called an ambulance for me, and as there was no way I could be got into my aunt’s car and an emergency ambulance can only take one to the nearest hospital I was off to QEH, although efforts were made to get me moved to Addenbrookes. I was taken off the anti-seizure pill as what I had suffered was known to produce the symptoms I had experienced as a common side effect. I was then put back on it to see if I could cope and I could. They were originally going to keep me in until Tuesday so that I could see the neurologist, but eventually an outpatient appointment was made for 10AM on Wednesday and I was discharged yesterday.
Our misgivings about QEH notwithstanding the staff were excellent and the care and support I received was splendid.
I had an uninterrupted night’s sleep last night and a good start to the day this morning, and have had a good day so far today. On the way to my aunt’s for lunch today I overlapped with the end of the Great East Anglian Run (GEAR), but through being in hospital so much recently I had missed the fact that NAS West Norfolk had arranged a designated meeting point, so although I had a chance encounter with one of my fellow committee members I was not part of our presence at the event, something which I regret and for which I take this opportunity to publicly apologise.
I hope that the appointment with the neurologist sheds more light on what has been going on and that we can move forward from there.