Positive Autism Awareness Conference

An account of the Positive Autism Awareness Conference staged by NAS West Norfolk yesterday at the Duke’s Head Hotel, King’s Lynn. Read, enjoy and please share.

INTRODUCTION

Yesterday NAS West Norfolk held a Positive Autism Awareness Conference at the Duke’s Head Hotel in King’s Lynn, and this post,which will be a major one is all about that event.

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The Dukes Head, where the Positive Autism Awareness Conference took place on April 15th. This photo was constrained by the presence of the Mart. After a fortnight in Lynn, the Mart splits in to two to go to various other places around the country – but it is only in Lynn that you get to see everything.

THE PRELIMINARIES

Some us went to the venue on Thursday evening to do a some preliminary setup work to reduce the amount that needed to be done on the day itself. Here are a few photos from that…

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Adjoining my photographic stand the other stand I would be covering on the day – the NAS stand

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My photographic stand – with a blank space for the laptop

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THE DAY ITSELF

Those of use involved in organizing the event were required to be there by 8AM so that we were ready when the guests started arriving. I arrived bright and early (given that the venue is a five minute walk from my flat so I jolly well should have done!), and got my stall up and running. Here are some photos from before the event started…

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A close ups from the NAS stalll

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An excellent acrostic

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The Speads stall – the young woman running the stall goes by the name of Carly

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Musical Keys

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The seating area, already looking satisfactorily full.

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Almost ready to start.
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Lynda Niles preparing to give the first talk of the day.
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My NAS West Norfolk lanyard.

THE FIRST SESSION

Indefatigable branch chair Karan McKerrow opened the event and explained that the day was about being positive about autism and autistic people, mentioning both myself and Callum and what we were going to be doing during the day. Then it was time for Lynda Niles’ talk. At that stage we were operating without amplification, and I was stood at the back, but I still heard every word that Lynda said. Lynda’s talk was accompanied by slides, which show you what she covered…

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THE BEANBAG INCIDENT

One of the things we had at this event was a ‘dark den’ with a beanbag inside as the floor was quite hard. The den itself survived unscathed, but the beanbag was a different story…

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That is now an ex-beanbag!

CALLUM’S POEM

Callum Brazzo, the other of two autistic adults to be on the committee of NAS West Norfolk, recited a poem he had created about autism as the next feature of the conference. I am unable to remember the exact words, but it was a splendid performance, and I sure that if you email Callum he can supply the words (perhaps you could post them in the comments section as well, Callum). Meanwhile, here he is in action…

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MEL BRUCE’S AUTISM FRIENDLY RULES

Clinical psychologist Dr Mel Bruce and a commissioner named Sharon shared the next session, but before I move on to that, Mel has learned some excellent rules for making sessions autism friendly, and here they are…

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Mel Bruce Autism Friendly Guidelines
This shows all off the ‘rules diagrams’ in one picture – a composite of the other two pictures.

MEL AND SHARON 

We had a working microphone by this point, which Mel and Sharon shared, taking it in turns to speak. They introduced the ‘bucket model’ for anxiety of which much more later, talked about their respective jobs and about quite a few other things.

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Sharon speaking, with Mel standing next to her.

LUNCH

Karan had organised food for us, which turned out to be excellent, and thus fortified we were ready for the afternoon session, which opened with the undoubted star speaker of the event…

ANNA KENNEDY OBE

Anna had arrived during lunch and expressed her admiration for my photos. Anna talked about her experiences bringing up two autistic children, going on People’s Strictly (partnered with Robin Windsor) and launching Autism’s Got Talent (and successfully facing down Mr Cowell over that suffix!). Her talk was thoroughly inspiring.

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Anna’s talk was followed by a short break, during which I took this picture…

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My photographic stall, The NAS stall and Karan’s younger son Ciaran (I took this picture at Karan’s specific request)

THE FINAL SESSION:
STAR FISH PLUS AND THE BUCKET MODEL

The last session of the day was another joint effort, by Holly and Michelle,two of Mel’s colleagues at Starfish Plus. Their presentation went into more detail about the ‘bucket model’, and was an excellent way to bring down the curtain on the event…

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MY PHOTOGRAPHIC DISPLAY AND
SOME FINAL THOUGHTS ON THE DAY

My photographic stall was very successful. The event itself was a massive success. Not counting us committee members 145 people packed out the venue, every session was interesting and informative  and the stalls were all fantastic.

About Autism

Various bits of autism related stuff, including an account of a talk by Mel Bruce for NAS West Norfolk, and some photographs.

INTRODUCTION

Last night I attended a talk given by Dr Mel Bruce, a clinical psychologist at Starfish Plus. There are also a few other things I will be covering in this post.

MEL BRUCE TALK

The talk was scheduled to run from 7-9PM, and I was required to be there (the scout hut on Beulah Street, as so often for NAS West Norfolk events) early to help with the setup. Mel opened proceedings with a brief account of what she and her team do, and who they work with, before taking questions from the floor. One of the things Mel mentioned when talking about communication was the use of a system of communication cards, which would work rather as the coloured badges at AutismCon did – in that case red was for “don’t talk to me unless it is an emergency”, yellow for “don’t initiate conversations but you can respond if I talk to you” and green for “I am happy to talk”, with freedom to change according to how you are feeling at any given moment (I selected a green badge and stuck with it the whole day as it happens). A great quote which showed how involved she is with the autistic community “Don’t do anything about us without us”. Another excellent point she made was about referring to special interests rather than obsessions.

Although this talk did not deal with issues that relate directly to me, because it was aimed at parents of autistic children, and therefore I maintained a purely listening brief, I enjoyed the evening, and am looking forward to meeting Mel again at the Positive Autism Awareness Conference NAS West Norfolk are holding at the Duke’s Head Hotel, King’s Lynn on April 15th. Meantime, we have connected on twitter.

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Clinical psychologist Mel Bruce introducing the session
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A decent turnout for the event.
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the first of four shots featuring posters.

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A POTENTIAL MEETING WITH
SIR HENRY BELLINGHAM MP

Just a brief mention of the fact that following a very unsatisfactory response by Sir Henry Bellingham on the subject of the cut to ESA, in which he claimed to be talking to lots of local groups moves are afoot to organize a meeting between ourselves and him. Further information about his record as an MP can be found here (warning – it makes grim reading).

ON DIAGNOSES

This section is here because it was recently brought to my attention that there are still problems with doctors being unwilling to diagnose autistic spectrum conditions (ASC for short) and in some cases unwilling to refer people for diagnosis. In the nine and a half years since I was diagnosed (25 years  later than I should have been but that is another story) my life has improved hugely in all sorts of ways.

My message to doctors faced with people seeking a diagnosis of an autistic spectrum is this: if you feel unable to do this yourself, then refer the patient to someone who can. To point blank refuse even to refer someone is unacceptable and indefensible.

HELPING THE NATIONAL AUTISTIC SOCIETY WITH A PUBLICITY CAMPAIGN

The National Autistic Society are running a Public Awareness Campaign, to which I am pleased to say I have been able to contribute. In answering the questions I was sent as part of this I referred on many occasions to things that happened before I was diagnosed, precisely because (see above), things have been so much better since I was diagnosed.

A VICTORY – #JUSTICEFORKAYLEB

Yes – a good news story to end the text section of this post. Kayleb Moon-Robinson, a 6th  grade student with autism, was facing life with a conviction for a felony offence. Following a prolonged campaign, all charges against him have been dismissed. More details are available as follows:

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New build in keeping with its surroundings
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I would have started work on this ghastly, out of place building with a wrecking ball, but I am glad to see that something is being done.

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Change point – this is the last of the daytime photos – others were taken on the way to the Mel Bruce talk.

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