Monday – Autism, Capita and Cancer

An account of a busy, tiring but important day in my story – yesterday.

INTRODUCTION

Yesterday was a very busy day for me, starting with a session in my home with Capita as part of processing a PIP claim and followed by various things at Addenbrookes Hospital. This post covers the days events in some detail.

THE START OF THE DAY – CAPITA

I was up and about by 7AM as I intended to be, giving myself plenty of time to prepare for the arrival of Capita. At just about 9AM somebody from Tapping House arrived to support me through the session, closely followed by my parents and Capita’s representative.

This session went fairly well, helped by the fact that the Capita representative actually had some knowledge of autism, which meant that I was being asked very direct questions, which in turn made handling them easier.

While I have as yet no expectations about the final outcome of this assessment I believe that it went about as well as it could have done, and therefore I am cautiously optimistic.

ADDENBROOKES PRELIMINARIES

The day at Addenbrookes started with a weigh-in (71.3 Kilos), and then an appointment with my oncology specialists to discuss progress in my case. My tumour markers are continuing to drop (from being in the hundreds of thousands they are now down to 36, while they need to get down to 4 for me to safe) and the overall prognosis is improved (when my treatment started I was told that there was about a 50% chance of all the cancers that were afflicting me being cleared, and I have now been told that the odds are better than that). When my lungs have cleared sufficiently for me to be considered strong enough to through such a process there will be an operation to remove the testicle that was the root cause of all my problems. There remains some uncertainty over what will ultimately be done about the four small tumours in my brain. I am due back at Addenbrookes in two weeks time, and in the intervening week I will receive an email from someone at the hospital to check up on me (I believe that this will be a regular feature for the future).

X-RAY AND BLOOD SAMPLES TAKEN

Following on from this session it was time for a chest X-Ray and then for some blood to be taken. Both went extremely smoothly, with my veins being fully co-operative for once. 

After this there remained one last thing to be done at the hospital…

AN IRON INFUSION

The iron infusion looks like liquid rust (this one is the third I have had, and may well not be the last). It takes about half an hour to run, and then one has to wait for another half hour while potential side effects are monitored. Fortunately there were none and I got away fairly swiftly at the end. This was a tiring but very satisfactory day, and one that has boosted my confidence for the future. There will still be tough times ahead, but I can also look forward with confidence to a better future. 

PHOTOGRAPHS

Here are some pictures I took yesterday and today…

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A windmill on the way to Addenbrookes.
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The first of three pictures taken in the hospital.
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This bust is of Edward Douty.

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A pride flag in the hospital car park.

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Ely Cathedral
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The spire of St Nicholas Chapel (1st of today’s pictures)
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The clock at The Pretty Tea Shop, Norfolk Street, where I went for an NAS West Norfolk coffee morning today (first of six pics from that venue).

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An upcoming NAS West Norfolk talk.

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Super Sharing Saturday – Politics 3: Bits and Bobs

A selection of political stories from the last couple of days.

INTRODUCTION

This is the third and last politically themed post in this series that I have been putting up today (although I have held some stories that might be considered political back for the next post which will be the last – I will then create a page containing links to these specific posts for ease of reference).

TORY STEALS MOD SECRETS, USES THEM TO HELP ADAM SMITH INTERNATIONAL

This story, which shows Tories at their worst and most unprincipled was brought to my attention by David Hencke. To read the full story of how MOD secrets were stolen and used to load the dice in favour of Adam Smith International click the image below.

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ANOTHER ANGRY VOICE ON TORY ELECTOTRAL FRAUD

Thomas G Clark who blog as Another Angry Voice has more on the Tory electoral fraud story, in the form of whistleblowers who have admitted to unknowingly assisting the Tories to commit electoral fraud. Click the image below to read the full piece.

PIP PIP

I have two pieces on Personal Independence Payments (PIP for short) for your attention. Firstly, DPAC are asking for people who would be willing to be involved in a legal challenge to changes to PIP. If you are able to help DPAC, or would like to share their piece please click on the screenshot below.

DPACss

The second PIP comes from 38 Degrees, in the form of a petition calling for people with mental health issues to be treated fairly under PIP. Please click the image below for more.

PROPORTIONAL REPRESENTATION

A situation that allows a party who gained 37% of the votes cast (under 25% of the electorate given the turnout) to form a “majority” government is obviously unacceptable. If you agree with this and are a UK resident please click on the screenshot below to sign and/ or share the petition, which is currently on 93,217 signatures, meaning that another 6,783will trigger a debate in the house. Just before putting up the screenshot link one final point for those who bring uop the orevious referendum on this subject: AV IS NOT PR

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ROWSON SKEWERS HAMMOND

To end on a lighter note, below, with a link to the original, is Guardian cartoonist Martin Rowson’s take on Philip Hammond’s budget:

Martin Rowson cartoon 09.03.17

 

 

A Very Important Petition and Imaging for the May Auction

A signpost to a pwtition that should get very biog very quickly, some of the best images from today at work and a couple of links relating the latest blunder by the Goldsmith campaign for London Mayor.

INTRODUCTION

A two part-post, as I was always going to be sharing some images from today, and I have something else that needs to be given prominence…

PETITION: QUALIFICATIONS OF HEALTH PROFESSIONAL FOR PIP/WCA
MEDICAL TO BE OPENLY AVAILABLE

I received a comment on my recent post “Many Things” (I have the commenter’s permission to quote verbatim) that runs as follows:

i started a petition to have open transparency about the Health care professionals that do the WCA a assessment on behalf of the dwp, the reason for this is that are they qualified for the role there doing ie a physiotherapist doing a mental health assessment for bi-polar, ask directly for there qualifications and you will find a wall of hiding behind laws, so to make it easier the petition is about having this in public domain so vunerable adults do not have to go through loops to find out the information and decide whether the person that assessed them is fit for purpose, in light of channel 4 dispatches nothing has changed so this is more important now. can you sign please the link is below https://petition.parliament.uk/petitions/126229

This petition struck instantly, and I followed up the link, which revealed the following:

Petition

I have signed this petition, shared on twitter & facebook, and urge everyone to sign and if you are able share it. Please use the link below:

VIEW, SIGN AND SHARE PETITION HERE

MAY IMAGING

Today at work I made a stgart on the imaging for the May auction, and here are some of the highlights for you…

THE CASE OF MR GOLDSMITH
AND THE SCRAPED BARREL

Mike Sivier at Vox Political set me on to this story, which is typical only worse of the way in which the whole of Mr Goldsmith’s campaign for London Mayor has been run:

  1. Mike’s post, which signposts…
  2. This Guardian piece.