An account of yesterday’s very successful meeting with a physio from Tapping House.
Louise Gent, physio at Tapping House Hospice, came to visit yesterday as planned. First of all I showed her my flat and demonstrated things like how I get in and out of bed and down to and back up from the toilet. She has arranged to get me a new piece of equipment for the toilet – a combination of a frame and raised seat because she noticed that to get up I had to put both hands on the metal grip to generate sufficient leverage.
This led on to discussions about…
Louise’s opinion having seen me in action was that my basic mobility is not too bad but that because of the fall I took at the weekend I lack confidence, which is entirely accurate as far I am concerned.
I will be attending regular sessions at Tapping House starting fairly soon. They provide transport for people, so this gets me out of the bungalow as well as helping to rebuild confidence and fitness without overstretching family or friends by needing someone to take me to Hillington where they are based.
Tapping House have made it abundantly clear that they will do all that they can to help me, and I in turn will do my absolute best to benefit from their help, for which I am very grateful.
Just one pic today – while I was watching the world go by from by bungalow a magpie was doing likewise from a perch near the top of a tree that is fully visible through my living room window…
Accounts of a very important and successful meeting yesterday morning and of a personally very satisfying moment also from yesterday when it was cinfirmed that I have got anm Arts Award (Bronze level).
This post deals with two things that both happened yesterday, one of huge significance, the other less so but very personally satisfying.
A VERY SUCCESSFUL MEETING WITH REBECCA FROM TAPPING HOUSE
I had arranged to see Rebecca yesterday morning for a follow-up meeting after our first very successful meet-up a little earlier. This meeting went magnificently, with Rebecca making a number excellent and logical suggestions for ways to help me. I have agreed in principle to meet with either an Occupational Therapist or a Physio to talk about ways to improve my physical fitness. She also suggested that I might be interested in courses they run at Tapping House where I would have the opportunity to meet others who have had similiar experiences to my own, which also sounds a very interesting possibility.
Knowing that I need help and support to get through this difficult time in my life I am minded to consider any options that seem sensible, as all of the above do. I finished yesterday’s session feeling much better about life in general for the knowledge that such potentially useful help and support is being made available.
Whatever happens from here on, Tapping House have already proven to be worth their weight in gold, and I am very grateful for everything they are doing for me.
AN ARTS AWARD
One of the last things I did before illness took over my life completely was to submit a portfolio at Musical Keys for an Arts Award (Bronze Level). It has now been confirmed that I did enough to earn to said award (equivalent apparently to a grade D at GCSE), which I am delighted by. In addition to the specific Musical Keys stuff I had to produce something about seeing art in the flesh, and I had chosen something where the only photographic record of the occasion was my own, so this award means, albeit at a low level, official recogniton for my photography. I also had to produce something about an individual artist who had inspired me, and I opted for Maurits Cornelis Escher, for whom there is an official website from which I cribbed (and of course admitted to doing so).
An account of a very busy and important day in my life, intended to be written as positively as possible.
I am finally relaxing at home after being on the go since about 10:30AM today with various things. This has been a very important and very tiring day for me.
DOCTORS SURGERY 1: BLOOD TEST FOR MAGNESIUM COUNT
Owing to the fact that I was nearly out of chewable magnesium pills (I have been on three a day among the large number of medications I take) I was required to attend the doctor’s surgery for a blood test to assess whether I needed more magnesium or not. This was followed by a return home for…
DISCUSSIONS WITH PEOPLE FROM TAPPING HOUSE RE ONGOING SUPPORT AND PALLIATIVE CARE
This session, which ended up lasting for over an hour, was easily the most constructive I have had with any sort of support workers over the whole time since I became ill. They listened and understood as I told them about the negative effects autism has on me specifically and how that impacts on my support needs. They made some wonderdul suggestions about how best to help me, and it is quite clear that are extremely serious about doing everything possible to support me through my recovery.
I actually felt, as I have not in other circumstances over these few months, that I was being regarded as of interest as a human being, not merely as a patient or as an example of an autistic person (though recognition of this last is hugely important and thoroughly welcomed).
I now believe I can look to the future in the certainty that support which is tailored to my specific needs will be available to me, and that is HUGE news.
LUNCH WITH MY AUNT
When my mother and I initially planned today we had intended to have lunch at Pizza Express, but the tightening of the schedule made that an impossibility. My aunt provided an excellent lunch and as proof that my appetite is returning I was able to eat two platefuls of food. Then it was time for…
My mother had arranged an appointment at Vision Express in King’s Lynn for me to have my eyes properly tested. My current spectacles, which will become my back-up pair in about ten days time definitely address my astimgatism, but they do not fully address the other eye issue I have that lenses can correct, my mild myopia.
I accepted the advice of the experts and for a considerable price went for varifocals tailored to the needs of an IT Professional (which when I am well enough to work is what I what I am).
There do not appear to be any really serious problems with my eyes, although as a safety measure the optometrist made a non-urgent referral to Queen Elizabeth Hospital (which means I shall see them in about six months time – they are permanently struggling).
All in all I was at the opticians for nearly two hours, with a lot of getting up and down and sitting in chairs that may look nice but don’t actually offer a lot of support.
After this it was time for a…
A TOP UP SHOP AT SAINSBURY’S
This was accomplished with a minimum of fuss once we had got there, although there was an incident in the car park that was nearly very unpleasant indeed. A blue van whose driver was clearly about a million light years away mentally pulled out right across our car (it was our right of way – he was bang out out of order), and we came much to close to a crash (of which I would have borne the brunt) for comfort. My mother limited her official response to a single blast on the horn. I can only hope that this near miss woke the driver up properly and he was more careful for the rest of his journey.
We were sufficiently quick shopping to have time for a very short break having…
HOT DRINKS AT MY AUNTS HOUSE
These had to consumed fairly rapidly because of yet another late addition to our busy schedule. I had developed an ache in my left thigh area, which necessitated…
THE DOCTOR’S SURGERY 2: BLOOD TEST FOR POTENTIAL CLOTTING
During my time as an in-patient I had a blood clot around the original site of my piccline, in my left arm, and then a little later an episode of severe chest pain which was mainly caused by pericarditis but contributed to by a small pulmonary embolism, so the possibility of a clot in an unusual location had to be taken seriously.
Thus a tiny sampleof blood was taken from one of my fingers to be tested. Fortunately it came back negative. I have been prescribed extra pain killers but apart from the discomfort it causes there does not be anything serious about the problem with my left leg.
HOME AND PHOTOGRAPHS
Finally, with the clock close to 6PM I was able to leave the surgery and be driven home. I am now somewhat rested from my exertions, and in less pain. Finally for, those of you who have made it to the end, here are some pictures: