Asperger’s / autism vocabulary 201 ~ a proposal toward a 21st-century shift

Excellent stuff from thesilentwaveblog…

the silent wave

Yesterday, I celebrated six months of awareness of my true nature: I am autistic (Asperger’s).

This does not make me an expert (at least, not in the academic sense).  It doesn’t grant me a magical power to speak for anyone else.

In the last six months, I’ve investigated this topic–and indeed this “alternate world” (at least, for me) with abnormal intensity.

But really, all I was doing was searching for terms and ideas that more-eloquently described what I had already been experiencing throughout my entire life.  I had already felt those feelings, thought those thoughts, and struggled with those invisible differences; what I learned during my searching merely helped me identify and articulate them.

During this search, however, I noticed some patterns (ha) that struck me.  The official diagnostic criteria and other conventional authoritative sources of information focused on what they observed through their own perspective lens; specifically, what they…

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An Autism Awareness Day Event

A brief, personal account of an Autism Awareness Day event organised by NAS West Norfolk.

INTRODUCTION

This is a brief post devoted to an event that took place at Gaywood Community Centre today.

THE EVENT

As someone who lives in the centre of King’s Lynn there was only ever one way I would be getting to an event in Gaywood: walking. Although principally concerned with locating the event I did get one pic en route…

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I heard the event before I actually saw it because they had a live music act performing…

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After briefly taking in what was on offer I headed to the main National Autistic Society stall, picked up a flier and took some photographs…

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I spent £2 on tombola tickets and £1 on a keyring (It was an NAS keyring featuring Thomas the Tank Engine – as an autistic railway fanatic named Thomas I could hardly not buy it!).

I did not stay terribly long, but I was very favourably impressed – while it was not really my type of event it was very vibrant and very well attended – well done the NAS. The homeward journey yielded another couple of pictures…

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RELATED LINKS

I will present these as a bulleted list:

Autism Related Meeting in Norwich

An account of an autism related meeting in Norwich, loads of links, some quality dragon pictures, some infographics and some other pictures.

INTRODUCTION

Although this post is based around my attending a meeting to do with Autism at the Charing Cross Centre in Norwich I have lots of other stuff to share as well, in the form of photos, infographics from various sources and a plentiful supply of links.

THE MEETING

The purpose of the meeting was to contribute towards a wide scale report on improving Mental Health services across the board. The speaker, who has been travelling around the country listening to ideas from people emphasized that one of the things his report would contain was a statement that it must be shared with contributors.

One of the (many) disastrous things that has been happening over the last few years has been a removal of investment from preventative care in favour of crisis management.

One of the commissioners for the Norfolk and Suffolk PCT actually told the manager of Asperger East Anglia that she should tell staff “to stop working with people after three months”, which demonstrates a scandalous lack of understanding of Autistic Spectrum Conditions.

As the only person in attendance to be actually autistic rather than either a professional working in the field or a parent/ carer of someone with an Autistic Spectrum Condition I made several contributions.

The final report should be complete by the start of October, and if we have not heard anything by the start of November we have been given a green light to contact Jane Sayer at the Norfolk and Suffolk NHS Foundation Trust.

HERE BE DRAGONS: A PHOTOGRAPHIC INTERLUDE

I have already dedicated a whole blog post to the dragons that can be seen in and around Norwich at the moment, but yesterday I was in parts of Norwich not covered in that post, so I have some more dragons for you…

The first four pictures are of McFly, who sits just outside the City Hall
The first four pictures are of McFly, who sits just outside the City Hall

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An educational dragon "The rise and demise of the dinosaurs"
An educational dragon “The rise and demise of the dinosaurs”

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This is Mr Wing, who resides just outside The Forum
This is Mr Wing, who resides just outside The Forum

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"Dragofly", one of two full size dragons (plus a clutch of babies) to be found inside The Forum
“Dragofly”, one of two full size dragons (plus a clutch of babies) to be found inside The Forum

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Luda, the other dragon to found inside the forum.
Luda, the other dragon to found inside the forum.

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GoGo King Tut, the Egyptian dragon
GoGo King Tut, the Egyptian dragon

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Norwich Twilight, looking out over the marketplace.
Norwich Twilight, looking out over the marketplace.
Morgan, in one of the streets that feeds into the marketplace.
Morgan, in one of the streets that feeds into the marketplace.

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"Eye Spy Cecil", near Castle Mall.
“Eye Spy Cecil”, near Castle Mall.

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Skipper, in the arcade.
Skipper, in the arcade.

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Double Decker, Castle Meadow.
Double Decker, Castle Meadow.

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I did not get this one's name, but s/he guards the castle itself
I did not get this one’s name, but s/he guards the castle itself

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LINKS

My first two links are both related and come courtesy of Dr Marquis Grant. They are both to do with a survey for autistic people:

1)A blog post advertising the survey

2)A link to the survey itself

THREE IMPORTANT PETITIONS

.Firstly, two links relating to the campaign to get Jason Rezaians released:

1)The current state of play according to petition hosts change.org

2)An article about this campaign in the Washington Post.

A petition that I have referred to several times previously in this blog is Fiona Paddon’s petition calling on the NHS to provide free tests from Group B Strep, which now has over 180,000 signatures. The next step is to pile on the pressure bby writing to MPs, to which end I have two links for you…

1)The site for locating MPs to write to.

2)A short cut for those of you who are like me) in Mr Bellingham’s constituency.

Finally in this subsection, a petition calling for the mayor of London to get dangerous lorries off the roads (so far this year lorries are responsible for the deaths of eight cyclists in the capital).

BLOGS AND BLOG POSTS

In this subsection are links to the some of the best blogs and blogposts I have found recently…

First up, Caroline Lucas standing up for the welfare state.

Next, the website and blog of one of my recent twitter followers, Mr Nobody:

1)Website

2)Blog

A recent wordpress acquaintance is fargaregardsanna whose offerings include this on the work of Max Tegmark.

Having just mentioned the extraordinary Max Tegmark, this seemed a natural place to mention a book devoted to the strangest aspects of science, which it so happens that I read on the bus to Norwich yesterday.
Having just mentioned the extraordinary Max Tegmark, this seemed a natural place to mention a book devoted to the strangest aspects of science, which it so happens that I read on the bus to Norwich yesterday.

Faraday’s Candle are regular producers of marvellous science and nature related stuff, and this piece on The Arches National Park is comfortably up to their usual high standard.

INFOGRAPHICS

Four infographics to share today. First, by way of Abby Tomlinson on twitter this on abstaining in the face of oppression:

AT on Labour

Next up, this on Austerity:

Austerity

This on energy is probably the most important of the four:

Energy

Finally, this on the Great Gathering for Voting Reform:

GGVR

AFTERWORD AND SOME FINAL PHOTOS

I hope that you enjoy this blog post as much as I have enjoyed creating it, and that some at least of you will be inspired to share it. I finish with some non-dragon related photos from Norwich…

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A Sharing Post

INTRODUCTION

Although I have been out and about today, and have some good pictures which will feature somewhere, this post is going to be almost entirely given over sharing stuff from other people, as I have some fantastic links and a couple of decent infographics.

VOX POLITICAL AND A VERY IMPORTANT FOI REQUEST

There are a number of links in this subsection, which relates to a long running campaign by Mike Sivier of Vox Political. As well as some stuff from Mike himself, I have a link to a piece about the MP for Newcastle, who has weighed in on our side, and a very important blog post from Jayne Linney which I have already shared with my twitter followers. I hope you will visit all the links below:

1)The Petition – please sign and or share.

2)Vox Political first post – on Downing Street and the deleted emails

3)Vox Political 2nd Post – on DWP continuing dishonesty.

4)Newcastle MP weighs in our side.

5)Jayne Linney blog post “Truth Seekers“.

AUTISM

Two excellent pieces in this section, firstly one of the finest explanations of Asperger’s Syndrome (my particular form of autism) that I have so far come across, courtesy of Durham Regional Autism Services. The second link in this section is to an old favourite, Autism Mom, and her latest post on visiting these shores with the Navigator.

THE ABI LONGFELLOW CASE

Two links here, a Mirror article and a petition:

1)Read the latest article about this case.

2)View, sign and share the petition.

THE LAST FEW LINKS

I have three more links to share with you. First, courtesy of Take Part Daily, a story about the method used by inhabitants of one tiny island to tackle illegal fishing in their protected waters. Second, a piece in the Independent about the disgraceful treatment of Raif Badawi. The links section began with Mike Sivier, and we finish by coming full circle, to his piece about Tories deeming it clever to back Corbyn for Labour Leader.

INFOGRAPHICS

First up in this section is a graphic representation of TTIP…

TTIP

My other infographic, saved on my computer as “Sprawl-mart” concerns a certain US Supermarket and tax havens where it has shell companies but no stores…

Sprawl-mart

ANOTHER EVENT AT KING’S LYNN LIBRARY

Details of an upcoming event at my local library in pictorial form…

The front of the library.
The front of the library.
The event poster.
The event poster.
A combined picture.
A combined picture.

SOME PHOTOS FROM TODAY AND A CLOSING STATEMENT

I hope that you have enjoyed this post, and that you will be encouraged to share it. I finish with a selection of today’s pictures…

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Life with Aspergers

As I often do I will start this post with a links section, before moving on to the main part of the post. I will also be sharing some high quality pictures – enjoy!!

LINKS

Given the title of this post I am in this section dealing only with the non-autism related links that I wish to share – the others will be handled as part of the other section. First of all, courtesy of the Independent, a truly appalling landmark that this government has ‘achieved’ – one million food bank users. Next, through Huffington Post comes a story about Faith Schools. As someone who is a part-time minimum wage worker, I would not necessarily expect the London School of Economics to have much to offer me, but this post from that quarter is a devastating indictment of what this government have done to wages in real terms.

I have a great interest in science, and this article concerning discoveries about the element Lawrencium and its place in the Periodic Table is well worth reading.

All except those who would murder folk whose beliefs differ from their own will find my next offering shocking but sadly unsurprising. It comes courtesy of Padraig Reidy.

A survey boat named the Humber Guardian has been moored in the Great Ouse lately. The boat is owned by Briggs Marine, and I was reasonably encouraged by what I found on their website.

There is a campaign going on at the moment to get the Sun to show Katie Hopkins the door. This is because her latest offering would have made Hitler blench. For more details, here is an article in the Independent.

Tomorrow is the last day on which people who are not already registered to vote in the General Election coming up on May 7th. 38 Degrees are running a campaign to get as many people registered to vote as possible. The process is very straightforward. I provide two options:

38 Degrees

Gov.uk

My final offering comes courtesy of Tom Pride and provides further grist to the mill of those of us who (like your correspondent) reckon that another five years of Cameron and co will be unendurable. Enjoy this catalogue of horrors!

A PICTORIAL INTERLUDE

Before moving on the main part of the post, here are some pictures for you to enjoy…

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This picture and the next four are from framed maps that can be seen in The Crown, East Rudham
This picture and the next four are from framed maps that can be seen in The Crown, East Rudham

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The first of four shots of Humber Guardian, mentioned in the Links section.
The first of four shots of Humber Guardian, mentioned in the Links section.

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LIFE WITH ASPERGERS

I was diagnosed with Asperger’s at the back end of 2006, by when I was already 31 years old. I got involved with Asperger East Anglia very soon after that, and out of that came what is now the King’s Lynn Asperger Support Society (KLASS). The group was originally established as local support group under the aegis of AEA, but when they lost their funding to run such groups in October 2012 we decided to keep going as an independent group. Since then, we have had no funding at all. In 2013 we were able to use King’s Lynn Town FC‘s community hub as a meeting place, but then they changed the times at which they were available ton the public in January 2014, and since then we have had no formal meeting place.

Perhaps the area in which I have personally been most affected by having Aspergers Syndrome is in the world of work, where I went eight and a half years without having a paid job, until I got my current job at James and Sons in April 2013 (merely by going in to work on Tuesday I will officially make it two years in this job). Initially my job was for 12 hours per week, and I was therefore still on jobseekers allowance (yet another thing the Tories are consistently dishonest about is the number of people who have jobs but still need benefits to get by as the amount of money these jobs bring in is so little).

I have not directly run in to the kind of treatment that has caused Kevin Healey to be in a long-running dispute with twitter. Kevin is still trying to get twitter to protect him properly, and as part of that change.org have a petition running on his behalf – and I urge all of you to sign if you have not already done so, and share as widely as possible, starting now.

My twitter account is growing steadily, helped by the fact that I always have good photos to share, talking of which, here are a few more…

Stonework from King's Lynn Minster
Stonework from King’s Lynn Minster

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What can neurotypicals do in the way of autism acceptance? You can find out by reading the wise words of Autism Mom.

I am nearly at the end of this post, but one more thing I wish to do is signpost another blogger with an Autistic Spectrum Condition who has recently signed up to follow this blog, David Snape.

My very final words concern something very important to me: research. Ignorance is so often the father of prejudice, which is why I take part in research projects at every opportunity. I want more people to know about Autistic Spectrum Conditions and to appreciate the abilities that many of us possess. For those who have made it right through to this stage I have two final messages:

1) Please share this widely

2)TY3

The First Butterflies of the Year

First up some important pointers for you…

LINKS

First and most important, I have been helping with a research project by an American. If you have Asperger’s Syndrome and are a social media user (and would be willing to answer some questions about these things), Rocio Watkins would like to hear from you. She can be contacted by email: rwatkins11@apu.edu

For bird fanciers there is an excellent and informative piece about the Himalayan Griffon courtesy of Phuket Birdwatching.

I provided links to several views on the Tory plans to extend Right to Buy to housing association properties, but I think this one is also worth a look on left futures.

The Guardian has an excellent piece about disability rights, focussing on the work of Lee Ridley.

The latest news on activities by the Tory Department of Dirty Tricks comes from Mike Sivier of Vox Political.

On the same theme, a humorous piece from Glynis Millward.

My final offering is an excoriating piece about a horrow show officially known as  The “Gay Conversion Therapy” conference. John P Ointon, whose blog Notes from the North is a regular source of good material and who has reblogged me on a few occasions (so he has good taste alround!) provided this savage (but very amusing) account.

Butterflies

I am not suggesting, let alone stating, that these are the first butterflies I have seen in 2015, but they are the first that have been around long enough for me to catch them on camera. I have used one of them as a basis for the very latest version of my twitter thank you message. Most of them are of brightly coloured butterflies, but  did also get a pure white one…

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The white butterfly - these are almost as numerous as the brightly coloured ones but move much faster.
The white butterfly – these are almost as numerous as the brightly coloured ones but move much faster.

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Here specially for you is that thank you message!
Here specially for you is that thank you message!

Of course, it was not just butterflies in evidence on this walk. There were lots of other photograph worthy sights, some of which I will conclude this post by showing you…

The only picture not from today - this was at the bus station yesterday morning.
The only picture not from today – this was at the bus station yesterday morning.

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A wall of purple flowers
A wall of purple flowers
A single purple flower up close.
A single purple flower up close.
Mother and child.
Mother and child.

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A sensible sign, sadly being ignored by far too many.
A sensible sign, sadly being ignored by far too many.
A last butterfly shot, from the end of the walk.
A last butterfly shot, from the end of the walk.

Kings Lynn Asperger Support Society.

Spring is in the air (and I have plenty of photos to bear this out). Therefore, the King’s Lynn Asperger Support Society, of which I am Group Leader, is moving venues from our winter perch at the Lattice House to our summer venue on South Quay near Marriott’s Warehouse, with the option of ducking inside should the weather not co-operate. Our April meeting will be on the 13th, starting at 6PM, after which we will be reverting to our usual first Monday of the month.

A jpg for social media purposes.
A jpg for social media purposes.

KLASS

Although it is not that long since my last post and I have been outside for much of that time, I have a handful of good links to share before displaying a few more pics…

http://voxpoliticalonline.com/2015/03/30/will-north-east-somerset-consign-jacob-rees-mogg-to-the-history-he-clearly-represents/ Jacob Rees-Mogg gets the Mike Sivier treatment in full.

https://tompride.wordpress.com/2015/03/30/chilling-photograph-captured-in-door-of-nr-10-as-cameron-announces-election-campaign/ An impish piece by Tom Pride

https://tompride.wordpress.com/2015/03/30/labour-announce-tough-clampdown-on-unemployed-lib-dem-mps-after-election/ Vicious satire from Tom Pride

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