This is Alison, The Unabashed Autist’s take on the blogger recognition award. I consider it an excellent effort, and I thank her for producing it.
Tag: Autism Acceptance
Autism and Music
An account of the first Musical Keys session of the new year and some autism related links.
INTRODUCTION
This post comprises two elements – one an account of the first Musical Keys session of 2018 and the other sharing some excellent recent stuff about autism. Because it is an autism themed post I am using #RedInstead text (scarlet for headings and links, maroon for body text).
MUSICAL KEYS
Musical Keys is an activity run for autistic people who enjoy music. Generally speaking it is run fortnightly, with a session for youngsters between 3PM and 3:45PM and a session for older participants from 4PM to 5PM. I had initially been expecting to renew my acquaintance with Reaper (a computer program for composing music – see here for more details) but circumstances dictated otherwise, and I actually ended up on a…
KEYBOARD
This machine can function as a wide range of instruments/voices and in a wide range of styles, and I explored a lot of the instruments in the course of the time I spent on it.
John, one of the two people who run these sessions, showed me how to play chords as opposed to single notes, and I experimented with playing varying numbers of notes simultaneously, and using the whole range of the keyboard.
I created a few chords where the notes played could also form words, such as face/cafe, cabbage etc. I enjoyed making the acquaintance of this keyboard and learning something of its capacities.
AUTISM RELATED LINKS
This section starts with a post from Rhi that I regard as being the last word on “mild autism”, published under the title “Autscriptic: Mild Autism“.
My next piece comes from the Thinking Person’s Guide to Autism, written by Shannon Des Roches Rosa of squidalicious.com under the self-explanatory title “Eleven Ways You Can Make Your Autistic Child’s Life Easier“
The next two pieces in this section are both from the blog “Autism is my Superpower“
TO SIRI REVISITED
I have linked to a number of reviews of Judith Newman’s book “To Siri With Love”, although since I have not read the book I can offer no direct comment about it, and here are a few more pieces about that book:
- First up, a quite devastating review on the right-leaning website Matthew Hopkins News, written by Dr Elena Chandler and published under the title “Guest Review of To Siri With Love“
- Next up, one of the few one-star reviews on Amazon that Newman and her cronies were not able to get taken down in spite of their efforts in that direction, headed “This book is a grotesque invasion of a child’s privacy, should have never seen the light of day“
- Following on naturally from the above is this piece from Ann’s Autism Blog titled “On how power silences marginalised groups“
AN ANTI-AUTISTIC HATE GROUP
MASQUERADING AS AN AUTISM CHARITY
The organisation who are the subject of this little section go by the name of Autism Speaks, who you will also see referred to as Autism $peaks, Auti$m $peak$ and A$ in various places.
- From care.com comes this story, whose title “Autism Mother Sues Autism Speaks For Disability Discrimination” gives you more than a hint of the truth about this vile organisation.
- The website ownshrink.com has a piece titled “Autism Speaks: Torturing autistics for profit” which is as damning an indictment of an organisation that claims to be an autism charity as you could find anywhere.
8 Favorite Quotes About Autism
These are some splendid quotes about Autism – though I would prefer the fourth one down to be in shades of #RedInstead rather than blue!
If you interact at all with social media, you’ll know that quotes are everywhere. They’re usually posted on top of images on mountains or sunsets, and are more often than not credited to ‘anonymous’. Not to say there aren’t some good quotes out there, especially ones that describe experiences, instead of forcing vague positivity on the reader. It can be hard to sort through Autism quotes, because a large percentage of them are made about Autistic children by Neurotypical adults. These often border on inspiration porn- and they infuriate me.
So, in order to combat these, I’d like to share some quotes about Autism that I enjoy.
So here they are! If I had to pick one, I think that the square peg one is my favorite, but there’s some may quotes out there, that I’ve probably missed some great ones! So, dear reader, if you’ve got a quote you…
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A Survey and Some New Pictures
A survey for autistic people and some photographs, some of which feature flooding in The Walks.
INTRODUCTION
The pictures that feature in this post were taken earlier today, and I saw the survey while editing them.
THE SURVEY
The survey is a facebook survey intended for autistic people being conducted by Emma Dalmayne and asks one question: do you prefer person first or identity first? At the momnet the poll is running at 86% for Autistic Person and 14% for Person with Autism, and the fact that the latter percentage is even that high has led some people to suspect that some of those who have answered so far are not autistic (for example none of the authors of the many excellent blogs by autistic people that I follow have ever expressed a preference for ‘Person with Autism’. I urge those of my readers who are autistic and on facebook to take part in this survey by following the link – and if you are not autistic kindly do not take the survey.
THE PICTURES
Although nothing like as dramatic as the stuff that John Jonasson has recently been displaying on fotobloggarna.se about floods in his area, there has been some small scale flooding in The Walks, and some of the pictures show that.
NAS West Norfolk at the Panto And A Petition
An account of the autism friendly panto night at the Corn Exchange and a petition on behalf of small cetaceans.
INTRODUCTION
Originally I was only going to post about the Panto, but I felt that the petition that forms the second half of this post deserved extra publicity, so this is very much a two part post.
NAS WEST NORFOLK
Those of you who have been following this blog a for a while will recall that last year NAS West Norfolk had block booked seats for the autism friendly showing of Cinderella. We repeated the trick this year for Jack and the Beanstalk. We booked 120 seats for our group, and only a handful went unused. As with last year’s Panto the venue was the magnificent King’s Lynn Corn Exchange:
The performance was excellent – hugely entertaining. One of the youngsters attending as part of our block booking got so into the performance that he did some impromptu dancing of his own!
The villain of Jack and the Beanstalk is of course the giant, but as any fule kno it is the little weed who tags along with the bully urging them to throw another punch who is most hated of all, so the pantomime villain of Jack and the Beanstalk is the giant’s henchman. The actor playing that role was a most satisfactory villain, his every appearance attracting a veritable storm of boos.
I am delighted to report that all of the feedback about that evening has been positive. Here are some pictures from inside the auditorium (not from the performance of course – there are limits!).
THE PETITION
This has been put together by the Dolphin Project and calls for Broome to end its sister relatuionship with Taiji over the hunting of dolphins. I urge you to follow the links I have provided, and sign and share the petition. Below is the picture and opening few paragraphs of accompanying text:
In 2009, Ric O’Barry visited Broome in Australia to lobby the council to suspend its sister relationship with Taiji, Japan over the dolphin drives hunts. Following a special screening of the film, ‘The Cove’, the Broome Shire Council agreed. Just two months later, the council reversed its decision. Choosing to capitulate to its large, local, Japanese community, Broome retracted its pledge and issued a full apology to Taiji town.
Once again, the Dolphin Project is urging Broome to stop condoning the slaughter and to take a stance against this cruel and unnecessary assault on wildlife.
In 13 years (2000-2013), a total of 19,092 small cetaceans were victims of the dolphin drives in Taiji, Japan. This included 17,686 slaughtered dolphins and 1,406 live-captures. Last season alone, 902 dolphins were driven into the cove. More than two-thirds were slaughtered and 117 were earmarked for the captive display industry — [Source: Ceta-Base.org].
This brought back memories for me of my first visit to Australia, a long time ago, and before I developed an interest in photography. Broome was one of the places we visited and stayed a few days. I did not actually see any dolphins there, but had done a few days earlier at Monkey Mia (this is near Hamelin Pool, where on can – and I did – see living stromatolites).
I end this post with: C’mon Broome – you can do better than this!
The SCOPE Christmas Meal And Some Autism Related Links
A brief account of the SCOPE Christmas meal to which I was invited as NAS West Norfolk branch secretary and some autism related links.
INTRODUCTION
I am including autism related links because it was in my capacity as NAS West Norfolk branch secretary that I was invited to attend the SCOPE christmas meal (our organisations are looking to work more closely on various things).
THE MEAL
The meal was arranged for The Gatehouse, a Hungry Horse pub located near the South Gate, at the edge of King’s Lynn (hence the name) with food booked for 3PM. The plan was for a few things to be discussed as well. I arrived at the pub not long after 2PM, purchased a pint to drink slowly while I waited for others to arrive (SCOPE were paying for the food, so I reckoned I could allow myself a couple of drinks) and settled down to wait.
Others began arriving at around 2:45, and Chloe Yianni from SCOPE, who was running the event, arrived just before 3PM.
Most of the ‘meeting’ element of the day took place between the main course and dessert, accompanied by a very impressive sunset (yes folks it gets dark early in these parts in December).
I enjoyed the occasion and look forward to working closely with the people from SCOPE in 2018 and beyond.
SOME AUTISM RELATED LINKS
A majority of the links in this section are to posts on USian (acknowledgement to New Zealander Heather Hastie for this term) blogs/ sites, and most of the rest are British, although a few other countries also feature. As an internationalist I am proud that people from many countries visit this blog (108 in the last year, 123 all time).
ON TERMINOLOGY
This section relates to a wonderful post put up by Autism Mom a couple of days ago under the title “I WANT TO BE CALLED AUTISTIC” I offer you my own comment in immediate response to that post, which I stand by:
Well done to both you and your son. Although my own strong preference is to describe myself as an autistic person I am quite happy for those who choose to do so to describe themselves as people with autism – what I will not accept is a well meaning neurotypical person seeking to make the decision on our behalf – it is our decision and we should make it ourselves.
Also, here is a quote from the end of the post:
Person first versus identify first: He cocked his head and asked me to explain more.
“I want to be called autistic,” he announced after I had finished. “Saying “person with autism” sounds like I have a disease. I don’t have a disease, this is just how I am.”
And then he added: “Actually, I want to be called by my name, but if you need to describe my autism I want to be called autistic.”
Make it so.
If you are reading this and have an autistic spectrum condition please feel free to add a comment about how you would prefer to be described.
I finish this section with a link to post mentioned in the Autism Mom piece linked to above which appears on Autistic Not Weird under the title “A plea to the autism community from one of your own“
THE “TO SIRI” ISSUE
Many splendid pieces have been produced about this subject since I last provided links relating to it, and I append a bulleted list of the best links:
- Tales By The Unexpected has produced “book analysis: To Siri with love by Judith Newman“
- Kaelan Rhywiol who I mentioned the last time I provided links on this subject has posted a piece on bustle.com titled “Why I Believe ‘To Siri With Love’ By Judith Newman Is A Book That Does Incredible Damage To The Autistic Community“
- Ryan Boren of boren.blog has produced a detailed chapter by chapter take down of the book titled “An Actually Autistic Review of “To Siri with Love”“
- Eve Reiland of American Badass Activists, as well as signposting most of the pieces to which I refer in this section has produced one of her own titled “Judith Newman, How Do You Like Me Now?“
- Aspie Under Your Radar has produced a piece titled “Re: #ToSiriWithLove I actually blame the publisher“
- Eve features again with this piece titled “Steve Silberman, author of “Neurotribes,” Doesn’t Get Judith Newman Either” – and if you have not yet read Neurotribes I suggest that you rectify that omission asap.
- Finally, from The Thinking Person’s Guide to Autism comes this piece titled “Why To Siri With Love Is a Wrecking Ball of a Book“, written by Maxfield Sparrow, who blogs at Unstrange Mind.
A FINAL LINK
I conclude this post by linking to a story from the excellent John Pring of Disability News Service. As a strong supporter of “Nothing About Us Without Us” I hardly need to tell you why I was delighted to read “Autistic-led taskforce will address ‘hypocrisy and injustice’“
Links, Pics and a Thunderclap
Some links to excellent pieces by autistic writers, especially on the subject of Judith Newman’s book To Siri With Love. Details of a thunderclap on the subject of driven grouse shooting and some of my own photos.
INTRODUCTION
I have had a busy few days imaging for James and Sons’ final auction of the year (takes place on Wednesday – click here to view on online catalogue), so it is only today that I have time for another post. Before getting into the main meat of today’s post there is a small matter of an…
APOLOGY
Some of you may have noticed snowflakes falling across pictures on this blog (as I did today, when I accessed it at the library to get a picture I needed for something I was doing). I am aware that some of my followers have sensory issues that make this sort of thing unwelcome, and I have changed my settings so that those snowflakes will not appear again. I apologise to any who were inconvenienced by this ‘seasonal’ addition of WordPress’s.
SOME AUTISM RELATED PIECES
I will start this section by stating that most of the pieces I link to here were drawn to my attention by Eve Reiland at americanbadassactivists. Another excellent source of good material by autistic people is Laina, both in her own right at thesilentwaveblog and via her specialist sharing blog Lainascollection.
My first links concern the representation of autistic people in the media:
- Eve (see above) has produced an excellent piece giving details about how we are misrepresented in the media and linking to a…
- …change.org petition calling for a change in how we are represented in the media.
The remaining links in this section all related to…
#BOYCOTTTOSIRI
The title of this section refers to the backlash by the autistic community against Judith Newman’s book To Siri With Love. Although they make unpleasant reading, because of what they reveal about the book, I urge you to follow up the links I give, all of which, save one, are to pieces about this book written by autistic people. The exception, which ends this section, is to an alternative reading list, and was also created by an autistic person.
I start with what is actually last piece I read about this issue, “An Autistic’s Thoughts On To Siri, With Love by Judith Newman” which was posted on writeabledreams.
My next offering, by Susie Rodarme is titled “AN OPEN LETTER TO HARPERCOLLINS ABOUT TO SIRI WITH LOVE“, and was published on bookriot.com.
Next, courtesy of goodreads.com comes Kaelan Rhywiol’s review of the book – it is a superbly written take down of the book.
Next we turn to autistichoya and “Why we must #BoycottToSiri / An open letter to Judith Newman“.
The last specific #BoycottToSiri piece to which I link is Eve’s as yet unanswered closing challenge to the author “Judith Newman | Stop The BS and Evolve into an Actual Autistic Ally #boycotttosiri”
I end this section with a link to a post on huxtales simply titled “The Essential Autistic Reading List“.
A THUNDERCLAP
To take part in a thunderclap you have to be on at least one of facebook, twitter and/ or tumblr. I am on the first two named, and as such have contributed approximately 5,500 connections to this thunderclap calling for a ban on driven grouse shooting. If like me (see here for a previous piece on this subject) you hold those who take pleasure in shooting at birds in utter contempt, and you are on one of the three networks mentioned please add your voice to thunderclap – more details below:
PICTURES
An Autism Pledge And Minimalist Personal Cards
My #TheAutisticUnion pledge and my new cards.
INTRODUCTION
Just a quick post to keep things rolling…
AN AUTISM PLEDGE
This, courtesy of Eve Reiland at AmericanBadassActivists, is #TheAutisticUnion Pledge:
Every individual pledge has been published on this site, including as of yesterday mine. Mine has also been reblogged on FireBrightStarSoul for which many thanks. I reproduce it below as well:
#TheAutisticUnion Pledge |Thomas Sutcliffe
I pledge . . .
I pledge to always uphold the principles of #TheAutisticUnion pledge. I believe firmly in every one of the ten points of this pledge.
As someone who is both autistic and branch secretary of the National Autistic Society West Norfolk branch, I am doing my bit to ensure that autistic people are involved in the running of their own welfare/ support organisations.
You can find out more about me on my blog, http://aspi.blog and also on my London transport themed website www.londontu.be.
MINIMALIST PERSONAL CARDS
Vistaprint gave me a £10 voucher off my next purchase, with a use-by date as a reward for using them to make my 2018 wall calendars, so I used it to create a card which contains some information about me on one side and a sample photograph on the other. I collected them from the delivery office on Austin Street this morning (delivery was attempted yesterday while I was out), and they have come out superbly.
International Charter of Autists Rights & THE 10 POINTS OF Âû (The Autistic Union)
This is a must read document, courtesy of Eve Reiland (nee Hinson) at americanbadassactivists…
Note: The International Charter of Autists Rights has been officially adopted at AmericanBadassActivists.org. Please support, share and help educate others on Autists Rights.
THE 10 POINTS OF Âû (The Autistic Union)
- I am Autistic. [or] I support those who are Autistic.
- I embrace my Autism as a very significant part of my identity.
- I embrace those who would sacrifice to protect all Autistic life.
- I embrace the belief that Autism does not need any “curing”.
- I embrace the self-advocacy goal of “Everything about us, with us”.
- I embrace the definition of Autism as a neuro-social difference.
- I embrace measures directed at protecting Autistics from attack.
- I embrace a person-centred approach to all Autism issues.
- I embrace rigorous scientific approaches to co-occurring conditions.
- I embrace Autistics leading their own welfare organisations.
1. THE RIGHT TO LIFE
We will prevent eugenic elimination of autistic people by opposing pre-natal testing for autism.
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Downham Market Community Fair
An account of running the NAS West Norfolk stall at the Downham Market Community Fair on Saturday.
INTRODUCTION
NAS West Norfolk were invited to run a stall at the Downham Market Community Fair, which took place on Saturday, with stalls setting up from 9AM and the event itself running from 10AM to 2PM. This post is my account from my perspective running the NASWN stall on the day. There will be plenty of photographs. I have stated elsewhere that while it is not ideal to have a stall covered by only one person if NAS West Norfolk are going to have only one person running the stall that person should be me.
GETTING THERE
I travelled to Downham Market by train (£3 return when making the journey at the weekend), selecting the 7:54AM, which would see me arrive at the station at about 8:10AM. I saw sufficiently much to take the eye as I walked through the town that I shall be putting up a separate post about that. I arrived outside the Town Hall at 8:35AM, giving me plenty of time to take some photographs of the outside of the building.
THE NASWN STALL
As arranged the person bringing the stall and some new leaflets arrived at 9AM, and the setup was swiftly accomplished. This was the first occasion in which the aspi.blog calendars for 2018 were on public display.
AROUND THE HALL
Obviously, being in sole charge of the stall I did not have much opportunity for moving about once the event was underway, but I did get sufficient pictures from a combination of the occasions on which I did move about and those taken from the stall to give a feel for the event. We start with some general pictures of the inside of the building.
Moving on to inidviudal stalls, I got pictures of the Downham Market Horticultural Society stall, the RBL stall, and various others. The most impressive stall of the day was that being run by the King’s Lynn and District Astronomy Society. They had a big screen displaying some very impressive slides as well their display board. The Cats Protection group had a stall, that like the NASWN stall was being run by a single person.
These are all the pictures of stalls other than the Astronomy Society one that I got, and it is to that group that I now turn:
THE NAS WEST NORFOLK STALL
The event was not massively attended, but I did see quite a few people at the NASWN stall, and the experience was overwhelmingly positive. My calendars impressed a few people but not sufficiently for any to sell. From an NASWN perspective, the main point of the day of course was to improve understanding of autism and to publicise the existence of our group. We succeeded as well as could have been hoped for in both regards, with a number of the new leaflets being taken, and quite a few people leaving the event better informed about autism than they had been before it started. I also got to explain about the rainbow coloured infinity symbol, and the fact that it is a symbol chosen by autistic people to represent the autistic spectrum. I consider that this event was a good use of a significant part of my Saturday. To finish, here is our stall for a second time:
Two shots showing views of the hall
This parapet is presumably the front of an upstairs seating area.
The last two shots in this selection feature artwork on the walls just outside the hall.
aspiblog 