Tag: thesilentwaveblog

Autism Acceptance Month

Setting the scene for Autism Acceptance Month, explaining why the original title, Autism Awareness Month is no longer acceptable. Numerous links and photographs.

INTRODUCTION

This post is by way of setting the stage for April, which starts tomorrow after all. As well as my own stuff this contains links from other autism related sources. The title of the post begs a question…

WHY NOT AUTISM AWARENESS MONTH?

There are two parts to the answer to this question:

  1. The original title is tainted by its associations. A very large organisation which I shall not name (think blue jigsaw pieces though) which presents itself as an autism charity but should be treated as a hate group uses this name. Although I am separated from this organisation by the width of the Atlantic Ocean I am a thoroughgoing internationalist and therefore stand in solidarity with autistic folk across the pond and refuse to use the tainted title.
  2. Even aside from being tainted the title is not fit for purpose. Awareness by itself means precisely nothing. I have created a simple graphic showing how things needs to progress from the basic starting point of awareness:
    AUA
    It is from that final goal of acceptance that the alternative title, coined across the Atlantic for reasons I have already stated, and gratefully adopted by me, comes. I have chosen white text against a purple background for my graphic because purple is the colour used by the National Autistic Society (NAS), and I am branch secretary of NAS West Norfolk.

SOME AUTISM RELATED LINKS

I start with this section with a link to a very detailed listing of blogs by people who are #actuallyautistic. To view this valuable resource in full please click on the screenshot below:

AABL

Next up is a piece from Eclectic Autistic titled “Wrong Model, Wrong Research”. This piece attacks what the author calls our society pathologizing difference and I recommend that you read it, which you can do by clicking on the title above.

Now we come to one of the pieces that inspired this post. It was created my mamautistic, and has the title “Being Autistic is Everything – Autistic Acceptance” and you can access it by clicking the image below.

Next we come to a good news story from the Irish Times. Shannon Airport has become the first airport in the world to open a sensory room for the benefit of autistic passengers. For the full story click on the graphic below which is taken from it.

Ryan Cunningham (4) from Gaelscoil Donncha Rua, Shannon tries out Shannon Airport’s new sensory room. Photograph: Diarmuid Greene/True Media

We now come to a special subsection of this sharing section of the post…

A SILENTWAVE SMORGASBORD

The silentwaveblog has played a major role in inspiring this post, with one post in particular, the last of the three I shall be sharing, virtually setting the creation of this post in motion. 

  1. This piece, titled “The Double Edged Sword of Labels in the Autistic World”, is quite simply the best analysis of the rights and wrongs of labelling that I have ever come across. It also ends with a splendid vision of a future that may just be within reach. To read in full please click on the image below.
  2. Next we have “The problem with the OWN channel’s ‘For Peete’s Sake’ reality show“, which is an excellent critique of a newly launched TV show. This show may (being charitable) have been created with the intention of being part of the solution but it is quite clear from silentwave’s analysis that poor/ absent research plus maybe a bit of laziness has turned it into part of the problem. Click on the image below to read in full.
  3. The post that I regard as having pushed the starter button for this one was put up the day before yesterday and is titled “Update, March 29: what I’ve been doing lately & Autism Awareness Month“. I posted a comment in response to it when I first saw it, and the enthusiastic response from silentwave to that comment prompted to me to expand on it here. To read it in full please click on the graphic below.

THE FINAL SHARE: A VIDEO

This video, called Amazing Things Happen, has already been viewed almost 2.5 million times. Having seen it on facebook I offer you this link. Below is Amazing Things Happen’s own description of the video:

Amazing Things Happen

An introduction to autism that aims to raise awareness among young non-autistic audiences, to stimulate understanding and tolerance in future generations.

It is intended to be viewed, discussed and shared widely by anyone but especially teachers and parents.

PHOTOGRAPHS: A MEETING OF TWO SPECIAL INTERESTS

Regular followers of this blog will be well aware that I always like to include some of my own photographs somewhere in my posts. Since this post is by way of being an introduction to Autism Acceptance Month I decided to theme this section created from one of my special interests, photography, around another, railwayana. You will note the use of the phrase “special interest” in preference to “obsession”, with the latter having negative connotations. Similarly it is preferable to refer to Autistic Spectrum Conditions rather than Autistic Spectrum Disorders. Here are those pictures…

DSCN5307
This was given to me by a work colleague (four images).

ASLEFDSCN5308DSCN5309

1-10pics
These are the pictures I took of lot 369 and said in my previous post that I would be sharing them on here. I omitted to capture the text for cards 41-50, but otherwise this gallery is complete and has some close ups as a bonus.

1-10text11-20pics11-20text

21-30text
You will notice that having started with British cards this set also has some international ones.

21-30pics31-4031-40pics41-50pics

EgPalpics
The first of eight close up pictures, each of which features two cards. Only one of the four pairs of cards chosen for this treatment is British.

EgPaltextRh-SopicsRh-SotextSSRpicsSSRtext

Undergroundpics
The only British trains to merit a close-up in my gallery.

Undergroundtext

I end this piece with another showing of the graphic that appeared in the introduction and then a final message:

AUA

ENJOY AUTISM ACCEPTANCE MONTH!!

Some Thoughts on Autism

A post about autism featuring some of my thoughts, a petition that I urge you all to sign and share, some highlights from other blogs by autistic people and some of my own photographs.

INTRODUCTION

The origins of this post lie in a quote from a post on includedbygrace which I include here as a combined screenshot and link to the original.

Angela

Since seeing that I have seen several posts on autistic blogs that I wish to share with you, come across a petition that is so important that I feel I must share it and ask my followers to sign and share it as well. Also, the imminent approach of April has prompted me to think once again about…

AUTISM AWARENESS, UNDERSTANDING AND ACCEPTANCE

I am more than a little ambivalent about ‘autism awareness month’, and my misgivings are twofold:

  1. To be worth anything awareness must be the most basic of starting points, and needs to lead on towards understanding and ultimately acceptance (see the quote from includedbygrace in the introduction). 
  2. If you consider autism during ‘autism awareness month’ and not for the rest of the year that is simply not good enough. Autistic Spectrum Conditions affect those who have them every day of every month.

This leads on the role of…

AUTISM CHARITIES/ ORGANISATIONS

As someone who is both #actuallyautistic and involved in the running of a local branch of an autism charity I am obviously supportive of some of these organisations. However I am very firm in saying that such charities or organisations must be dedicated to improving the lives of autistic people, and that they should make conscious efforts to include #actuallyautistic people in the running of the organisation. 

There is one very large organisation based across the Atlantic from me which I shall not name (both because I am not a fan of naming and shaming, and also because I do not wish to give them any more publicity) who promote themselves as an autism charity but are in actuality nothing of the kind. They did fairly recently amend their homepage to remove from it references to seeking a cure for autism, but it did not require much scrutiny for it to be obvious that this was not a leopard changing its spots but a leopard trying to con people into believing that it had changed its spots.

I conclude this section by re-emphasing that awareness is not a final goal, it is merely the starting point on the following path:

AWARENESS – UNDERSTANDING – ACCEPTANCE

SOME AUTISM RELATED SHARES

I am now moving to sharing some other stuff I have found, starting with…

A VERY IMPORTANT PETITION – HARRY’S LAW

This petition, calling for an urgently needed change in the guidelines used at hospitals when dealing with autistic children, to be known as Harry’s Law, contains a video as well as a lot of explanatory text. I shall embed the video below the screenshot that I am using as a link. I urge all of you to read the text, watch the video and sign and share the petition. 

Harry's Law

UNASHAMED

Here I am linking to a post on elephantsneverforgetsite, and I am using a screenshot of the end of the post as the link.

elephantsneverforget

THE SILENT WAVE

It is hardly news by now that I am a big fan of thesilentwaveblog, and there have been several excellent posts from that quarter of late. We start with a post titled “Conformity does *not* make life “less difficult” for Asperger’s / autistic people”, which I link to by way of the splendid picture that heads it.

My next share from this splendid blog is a collection of autism related online quizzes. I sampled one of these quizzes, and may check out others in due course. The language used to convey the implications of your result is not always well chosen. I was told at the end of the one I did that I almost certainly “suffer from an Autistic Spectrum Disorder”. No – I have an Autistic Spectrum Condition – what I suffer from is the attitudes of people like whoever deemed that an appropriate form of words. Once again, I use an excellent graphic from the original as the link.

My third link from this source is to an excellent post about being diagnosed with an Autistic Spectrum Condition in adulthood. The title of the post is “Relief and grief ~ the reality of adult Asperger’s / autism discovery”. It must be stated that of the two emotions referred to in the title of this post relief comes first in more ways than one – it is the more significant, the more constructive, and certainly in my own case was very much the dominant one. Once again I am able to link by way of a headline picture:

I complete both the silentwave tribute and the sharing section of this post my once again pointing readers of this blog to the marvellous “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” which you can visit by clicking the link below:

SOME PHOTOGRAPHS

I end this post with a few of my own photographs, which in terms of what is relevant to this post the following in common:

  • All were taken by an autistic person (me), and
  • All feature one of that autistic person’s special interests.
967-a
All of these pictures are in fact close-ups of parts of lots that will be going under the hammer in April, and the special interests to which they relate are public transport, science and nature. All of the lots that these images relate to are numbered between 968 and 985.

 

All of these pictures are in fact close-ups of parts of lots that will be going under the hammer in April, and the special interests to which they relate are public transport, science and nature. All of the lots that these images relate to are numbered between 968 and 985.

976-a976-b982-a983-a983-b983-c

984-a
As one of my favourite science blogs says “It’s an amazing world of science…let’s go exploring!” You could start by clicking this image to visit them.

985-a

 

Public Transport (and more Spring Photos)

More spring photographs following on my last post, likewise some appropriately themed music, some stuff about public transport, some autism related links and some other links.

INTRODUCTION

This is a follow up to my previous post, but after the photographs I will be sharing a number of links as well. Here is some appropriately themed music once again – Igor Stravinsky’s “Rite of Spring”.

THE PHOTOGRAPHS

Immediatelty I had put up the previous post I set off on another walk. Although I did not manage to capture any more butterflies I did get plenty of splendid pictures.

Corn Exchange
The Corn Exchange

HG

St Nicholas
St Nicholas Chapel
Cats
Cats on a pipe that crosses Bawsey Drain

DrakeMoorhen1sparrowsblackbirdDrake headMoorhen2

sunlight
sunlight on water and exposed mud flats
Waterfall
The upper Purfleet following much needed clean up work.

AN EXAMPLE OF THE DAFTNESS OF BRITISH PUBLIC TRANSPORT

This too has some photographic content. I made passing mention of a daft situation involving public transport in Norfolk in my post “Network Autism”, and now I am following up on it.

bus
A return journey from King’s Lynn to Norwich on this style of bus, going by way of Fakenham, Lenwade, Hellesdon, Taverham and Drayton costs £5.50…
X1
A return journey from King’s Lynn to Norwich on this type of bus, going by way of The Hardwick Industrial Estate, Middleton, Narborough, Swaffham, Dereham and Easton costs £11 – twice as much as in the other style of bus.

Although the routes taken differ, the distance covered and the time taken to cover that distance are similar, and therefore so too is the fuel consumption of the bus. The First Eastern Counties X1 route is available almost the whole day, whereas the Stagecoach X29 route is more restricted timewise, with the first bus leaving King’s Lynn at 6:28AM and the last return bus leaving Norwich at 5:20PM (and the other way around the restriction is greater because the depot is in King’s Lynn. 

This is the sort of nonsensical situation that can arise when public transport is in the hands of greedy profiteers rather than being publicly run and publicly accountable. There is no rational justification for the same journey costing twice as much by one route as by another like this.

LINKS

For today this section divides into two subsections, starting with…

AUTISM RELATED STUFF

I start with a link to a post on Mamautistic, titled “Not an Excuse”. This post is liberally laced with links of its own that I recommend you to follow up. Click on the picture below to read it in full.

My remaining links in this section are to posts on thesilentwaveblog. First up is a post titled “Asperger’s / autism may not be a disability only (but we *do* need to treat it like one)”. Please click on the image below to read this post, which is detailed and well reasoned, in full.

Next comes a post with the title “When an “official” Asperger’s / autism diagnosis is just a formality”. This one is is super-detailed but very well worth the read. Once again, there is an image that I can use as the link.

Finally, to end this subsection, although I reblogged the magnificent ‘put the boot on the other foot’ type post “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” earlier today it is so good that I feel another plug is in order, so if you have not already read it please click on the image below to rectify the omission.

OTHER LINKS

I start this section with a horrifying story from The Canary about how some girls in Britain in 2017 are missing school because they cannot afford sanitary products. Click the image below to read this piece.

Girls are missing school because they can’t afford sanitary products. In Britain. In 2017.

My last two links go together – not only are both to pieces on Skwawkbox, both are to pieces about Tory election fraud:

  1. The first one is titled “#TORYELECTIONFRAUD JUSTICE REQUIRES FULL RECKONING, NOT #MCKINLAY AS SACRIFICIAL LAMB” – as usual I am using an image as the actual link.
    mckinlay
  2. The second piece deals with a ‘tactic’ that the Tories are using as a supposed form of defence, and is titled “TORY ‘NO INTENT’ #ELECTIONFRAUD CONFIDENCE IS A NON-STARTER. HERE’S WHY”. Click the image below to read the piece.
    newsnight intent.jpg

 

 

 

 

The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people

The best ‘role-reversal’ type piece of autistic blogging that I have yet come across – I will probably be linking to the original again, especially as in not very long I have a birthday coming up that relates to the title of this post…

Laina Eartharcher's avatarthe silent wave

(Beginning note: this is meant to be equal parts satire, seriousness, and helpful.  It’s not meant to sound superior, condescending, or anything else.  As usual, what follows is strictly my own opinion.  Also, the words allistic and neurotypical (often abbreviated “NT”) are, for these purposes, used interchangeably to refer to non-autistic people.  And last but not least, please understand that this is not directed at all allistic people…only the people who fit the description.)

~~DON’T PANIC~~

Far out in the uncharted backwaters of the unfashionable end of western civilization lies a small unregarded segment of the population.  This population has a problem, which was this: we’re largely invisible. Many solutions were suggested for this problem (Autism Awareness, Light-It-Up-Blue campaigns, etc), but most of these were largely concerned with “fixing” the people on the spectrum, which is odd because on the whole it wasn’t the spectrum people that needed fixing. And…

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