Some Thoughts on Autism

A post about autism featuring some of my thoughts, a petition that I urge you all to sign and share, some highlights from other blogs by autistic people and some of my own photographs.

INTRODUCTION

The origins of this post lie in a quote from a post on includedbygrace which I include here as a combined screenshot and link to the original.

Since seeing that I have seen several posts on autistic blogs that I wish to share with you, come across a petition that is so important that I feel I must share it and ask my followers to sign and share it as well. Also, the imminent approach of April has prompted me to think once again about…

AUTISM AWARENESS, UNDERSTANDING AND ACCEPTANCE

I am more than a little ambivalent about ‘autism awareness month’, and my misgivings are twofold:

To be worth anything awareness must be the most basic of starting points, and needs to lead on towards understanding and ultimately acceptance (see the quote from includedbygrace in the introduction).
If you consider autism during ‘autism awareness month’ and not for the rest of the year that is simply not good enough. Autistic Spectrum Conditions affect those who have them every day of every month.

This leads on the role of…

AUTISM CHARITIES/ ORGANISATIONS

As someone who is both #actuallyautistic and involved in the running of a local branch of an autism charity I am obviously supportive of some of these organisations. However I am very firm in saying that such charities or organisations must be dedicated to improving the lives of autistic people, and that they should make conscious efforts to include #actuallyautistic people in the running of the organisation.

There is one very large organisation based across the Atlantic from me which I shall not name (both because I am not a fan of naming and shaming, and also because I do not wish to give them any more publicity) who promote themselves as an autism charity but are in actuality nothing of the kind. They did fairly recently amend their homepage to remove from it references to seeking a cure for autism, but it did not require much scrutiny for it to be obvious that this was not a leopard changing its spots but a leopard trying to con people into believing that it had changed its spots.

I conclude this section by re-emphasing that awareness is not a final goal, it is merely the starting point on the following path:

AWARENESS – UNDERSTANDING – ACCEPTANCE

SOME AUTISM RELATED SHARES

I am now moving to sharing some other stuff I have found, starting with…

A VERY IMPORTANT PETITION – HARRY’S LAW

This petition, calling for an urgently needed change in the guidelines used at hospitals when dealing with autistic children, to be known as Harry’s Law, contains a video as well as a lot of explanatory text. I shall embed the video below the screenshot that I am using as a link. I urge all of you to read the text, watch the video and sign and share the petition.

UNASHAMED

Here I am linking to a post on elephantsneverforgetsite, and I am using a screenshot of the end of the post as the link.

THE SILENT WAVE

It is hardly news by now that I am a big fan of thesilentwaveblog, and there have been several excellent posts from that quarter of late. We start with a post titled “Conformity does *not* make life “less difficult” for Asperger’s / autistic people”, which I link to by way of the splendid picture that heads it.

My next share from this splendid blog is a collection of autism related online quizzes. I sampled one of these quizzes, and may check out others in due course. The language used to convey the implications of your result is not always well chosen. I was told at the end of the one I did that I almost certainly “suffer from an Autistic Spectrum Disorder”. No – I have an Autistic Spectrum Condition – what I suffer from is the attitudes of people like whoever deemed that an appropriate form of words. Once again, I use an excellent graphic from the original as the link.

My third link from this source is to an excellent post about being diagnosed with an Autistic Spectrum Condition in adulthood. The title of the post is “Relief and grief ~ the reality of adult Asperger’s / autism discovery”. It must be stated that of the two emotions referred to in the title of this post relief comes first in more ways than one – it is the more significant, the more constructive, and certainly in my own case was very much the dominant one. Once again I am able to link by way of a headline picture:

I complete both the silentwave tribute and the sharing section of this post my once again pointing readers of this blog to the marvellous “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” which you can visit by clicking the link below:

SOME PHOTOGRAPHS

I end this post with a few of my own photographs, which in terms of what is relevant to this post the following in common:

All were taken by an autistic person (me), and
All feature one of that autistic person’s special interests.

967-a — All of these pictures are in fact close-ups of parts of lots that will be going under the hammer in April, and the special interests to which they relate are public transport, science and nature. All of the lots that these images relate to are numbered between 968 and 985.

All of these pictures are in fact close-ups of parts of lots that will be going under the hammer in April, and the special interests to which they relate are public transport, science and nature. All of the lots that these images relate to are numbered between 968 and 985.

Booking a Trip to Scotland: British Public Transport Daftness Exposed

A combination of an account of the booking of train tickets for a trip to Scotland and an expose of the sheer craziness of British public transport.

INTRODUCTION

My parents have booked a house near Kyle of Lochalsh for a week which includes my birthday. As a birthday present I have been given the wherewithal to purchase train tickets for the journey, which happens to feature one of the most scenic routes anywhere in Britain. To set the scene for the rest of this post and give you a little test here is a photograph of my railway tickets for the journey:

Can you see what it is about these tickets that even before I go any further reveals an element of daftness in British Public Transport?

BOOKING THE JOURNEY

Those of you who follow this blog with due care and attention will be aware that for some years I have been resident in King’s Lynn for some years, and had I moved I would certainly have mentioned it here. Why then is the ticket above booked as a return from Peterborough to Kyle of Lochalsh and not from King’s Lynn?

The following screenshots will expose the reason for this and the utter craziness and illogic of pricing on British public transport.

KL-Ky — Note the difference in price between this ticket and the one from Peterborough (almost £60!!)

Peterborugh-Kyle — Given the immense price difference, the booking from Peterborough was bound to leave my up on the transaction (as you will see after these pictures in point of fact to the tune of some £50)

The suggested return journey (don;t worry parents, I can also get back leaving on the later train from Kyle, at 12:08 and arriving home around about midnight)

KL - Peterborough — Even were I to rely on train for the King’s Lynn to Peterborough and back section of the journey two anytime day singles (the max I would have had to pay), would have set me back a mere £24.60 as opposed to price difference on the all-in-one of almost £60, but….

I will actually be travelling the King’s Lynn – Peterborough and its reverse route on the First Eastern Counties X1 bus, which will set me back £6.40 each way or £12.80 in total, making a saving of approximately £47 as compared to the all-in-one booking from King’s Lynn.

You might think that having cut through all the BS re fares and booked the tickets the daftness would end there, but you would be wrong…

COLLECTING THE TICKETS

The booking accomplished yesterday evening, this morning I set about collecting the tickets. First, as a precaution since I would be needing to keep them safe for a long while I searched out a receptacle of suitable size, shape and robustness to put them in, locating this pretty swiftly:

Having thus equipped myself it was off to the library to print off some booking information that I was going to need to collect the tickets.

Then with the information printed it was on to the station to pick up the tickets. This is usually done via ticket machines, of which King’s Lynn station has two. Here are pictures of both machines, showing precisely why I could not use them…

I fully understand the desirability and indeed the need to replace old ticket machines with new, but why take both out of service simultaneously? Why not take one out of service and keep the other operational until the first new machine is ready, then take the second old machine out of service and replace it, thereby keeping at least one machine operational the whole time?

Fortunately, there were staff present, and I was able to get my tickets printed at a ticket office. While waiting I bagged an image of the station plaque:

Although the process took longer and entailed more frustration than I had anticipated, I have the tickets and other info safely stowed, and am looking forward to my visit to the wilds of northwest Scotland. It will not be my first visit to Kyle of Lochalsh – back in 1993, before the opening of a swanky new toll-bridge and consequent removal of ferry services to maximise said bridge’s profits, I passed through Kyle en route to the Isle of Skye, returning to the mainland by way of the southern ferry crossing to Mallaig.

I conclude this post with two more photos, one showing all the printed material I have for the journey, and the other ending our journey back where we started (a lot more straightforward in a blog than in a journey on British public transport!)

Protecting Nature

Some stuff about nature, with a sidelight on public transport. Links to several nature/ transport themed posts and many appropriately themed photos.

INTRODUCTION

This is the first of several posts I will be putting up today. Two of the links I shall be sharing are to posts that have already appeared on this site as reblogs, but which I consider so important, that I am going to link to them again. There is also among my links a piece relating to public transport for which I make no apology, as transport policy can have a big impact on nature, whether positively or negatively depending on the nature of the policy. As usual plenty of my own pictures will feature as well.

TAKING THE LOCAL AUTHORITY TO TASK

Two pieces in this section:

Anna’s searching questions of her local authority as part of the ongoing campaign to save Trosa nature. For those who have not already seen the piece, please click on the magnificent infographic/ meme that Anna created based on a comment I made on one of her previous posts.
A cabal of Tories seeking to force through the building of an expensive and environmentally damaging incinerator is all too familiar to a West Norfolk resident. This time the dodgy dealing is going on in Gloucestershire and again it is a Tory controlled County Council that seeks to force through the building of the incinerator. The Skwawkbox have picked up on the story, for which I am very grateful, and I urge everyone who reads this to visit this post by clicking on the image below.

Illustration of GCC’s planned Javelin Park incinerator

BADGER CULLS AND BIOSECURITY

This one appears on Chris Packham’s website, and consists of a brief introduction to a person by the name of Anna Dale, and then an essay by this same Anna Dale titled “Below-par biosecurity should mean no badger cull licence”. To read this detailed essay please click on the graphic below.

BUSES IN CRISIS

This comes to you courtesy of the Campaign for Better Transport. Contained within this worrying piece is a bit of good news – an infographic relating to the achievements of 2016. To read the full detail on the crisis with Britain’s buses please click on the shocking graph below.

PHOTOGRAPHS 1: WORK

In this, the first of two sections of this post devoted to my photographs, I share some nature and transport related pictures from yesterday and Thursday at work. The first of these is of an item in the March auction, which I therefore use as a link to our online catalogue, while all the rest are from lots in our April auction.

948-a — Part of lot 948 in our April auction

GT1 — This image and the next relate to lot 948

GLTW — Likewise this image and the next relate to lot 934

PHOTOGRAPHS 2: LEISURE

To end the post here some photos from in and around King’s Lynn…

Several other species besides Cormorants enjoying “Cormorant Platform”

Spring

Celebrating the arrival of Spring…

INTRODUCTION

By way of an introduction to this post, which is celebrating some welcome good weather here is a video recording of Spring from Antonio Vivaldi’s “The Four Seasons”.

If you enjoy classical music you might like to visit young singer and Royal College of Music student Charlotte Hoather’s website by clicking here.

SPRING ARRIVES

Since the epic storms I wrote about a while back, the weather has been gradually improving. Within the last few weeks I have been able to leave the flat without a coat, and then yesterday I switched the heating off. Today, for the first time in 2017, I am making use of my outside space:

Also today, although they have been in evidence for a few days now, I managed to photograph some butterflies, again for the first time of the year.

Butterfly1 — This was the first one I captured.

Butterfly4 — The fourth and best of the four butterfly pictures I was able to get today.

Where did I locate these little beauties? All within walking distance of my little town centre flat – two near Hardings Pits and two near Bawsey Drain, gained during…

A WALK

It being bright, sunny and reasonably warm I set off on a walk just after 10, and was out for over two hours in total. Here are some of the non-butterfly related pictures I took while out and about.

CP1 — The first seven pictures in this set are not actually from the very beginning of the walk – it has been a long while since I saw this many cormorants on what I call “Cormorant Platform”

DSCN4870 — This buoy is not in its regular position – there is only one seal living in the Great Ouse, and no sand to be found. Norfolk does have one big seal colony, at Blakeney Point, which although part of the mainland is accessible only by boat – there is no road link as it is quite rightly a fiercely protected area.

The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people

The best ‘role-reversal’ type piece of autistic blogging that I have yet come across – I will probably be linking to the original again, especially as in not very long I have a birthday coming up that relates to the title of this post…

the silent wave

(Beginning note: this is meant to be equal parts satire, seriousness, and helpful. It’s not meant to sound superior, condescending, or anything else. As usual, what follows is strictly my own opinion. Also, the words allistic and neurotypical (often abbreviated “NT”) are, for these purposes, used interchangeably to refer to non-autistic people. And last but not least, please understand that this is not directed at all allistic people…only the people who fit the description.)

~~DON’T PANIC~~

Far out in the uncharted backwaters of the unfashionable end of western civilization lies a small unregarded segment of the population. This population has a problem, which was this: we’re largely invisible. Many solutions were suggested for this problem (Autism Awareness, Light-It-Up-Blue campaigns, etc), but most of these were largely concerned with “fixing” the people on the spectrum, which is odd because on the whole it wasn’t the spectrum people that needed fixing. And…

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Network Autism

An important autism related meeting in Dereham plus a few shares and some photographs.

INTRODUCTION

As well as my title piece, which as promised yesterday, is about the meeting in Dereham organised by Autism Anglia and ASD Helping Hands that I attended this morning. Karan and I were a little late arriving as she could not leave before the person who would be looking after her son had arrived and I had arranged a meet up point at The Gatehouse since while I was definitely up for the meeting I was not up for forking out the £11 it would have cost to me travel there and back under my own steam (at some point I will be putting up a post on public transport that will highlight why this particular shortish journey is so extortionate – for the moment suffice to say it has nothing to do with logic, reason, meeting passenger needs or anything else that has any place in the proper running of a public transport system). This meant that although we were able to introduce ourselves we missed most of the other people’s introductions.

THE MEETING

The meeting had been arranged to discuss amendments to an autism strategy document which as it stood was laughably incomplete. Autism Anglia and ASD Helping Hands were effectively doing the kind of outreach stuff that Norfolk County Council should have been doing but weren’t. The County Council’s own meetings about such matters are invariably in Norwich, generally with a requirement that one arrive by 9:30. Before moving on to NAS West Norfolk’s role in the events of this meeting I will mention two things from the preliminary talk that caused hackles to raise. First, Norfolk County Council’s person responsible for co-ordinating matters relating to autism appears to have his fingers in a suspiciously large number of pies, and extending from this seems to be overly averse to scrutiny (as a West Norfolk resident who has the incinerator debacle seared on his memory I am naturally inclined to be mistrustful where Norfolk County Council are concerned – although we eventually won that one and the thing did not get built). Secondly there is the role of Norfolk Steps, who seem to have a monopoly on training provision for parents and carers and to be very reluctant to see that change – one person at the meeting had tried to use their materials to provide training and was told to desist. Another strike against Norfolk Steps from our point of view is that their training is not autism specific.

The key pages of the inadequate document that we were trying to improve were pages 16-19, and there was little we could do about what was on page 16, so as we seated around three tables each table was assigned a page to look at and make additions to. Ours was page 18:

I have already covered a lot of the problems with Norfolk Steps, but there is one extra point – they have recently had their funding reduced, and no longer offer “steps plus” to parents.

There were a few additions to point 5, which started our page. Point 6 was the single most inadequately expressed point in the whole sorry document. For this point to be worth the ink and paper it has to contain chapter and verse – the specific Act of Parliament and the specific clauses contained therein that are of most relevance.

Anne Ebbage of Autism Anglia will be passing all the points raised at this meeting on to the council, and if the final version of this document is not massively changed and enlarged there will be trouble.

This was a very useful and productive meeting, and I hope it will play a role in dragging Norfolk’s approach to autism and autistic people out of the dark ages wherein it seems to have been stuck for some time.

A SEGUE LINK

The first part of this post has been about autism, and so I introduce the remainder of it by way of a link to an interesting piece by The Inked Autist. My views are rather different to those expressed in this post, but I recommend that you read it here.

A BUSY WEEK FOR DPAC

That title is no overstatement – this section contains a link to a post on the DPAC website and two embedded videos.

The post, which gives this section of this post its title, can be accessed by clicking the DPAC logo below. Then you can find the two videos, which are both about a protest outside Parliament. The first video was created by Let Me Look TV, the second by Steve Topple of The Canary.

PHOTOGRAPHS

I had planned to include more stuff in this post, but a malfunction has prevented that – I have just lost a large amount of stuff that was in here and have no way of getting back, so here are the photographs.

A magpie near the pick up point in Lynn this morning

MNR1 — Three shots featuring a stretch of the Mid-Norfolk Railway in Dereham

One of the “Ecocity” towers near Swaffham – even in this picture, and still more so in the further edited version the observation room near the centre of the propeller is clearly visible. The original shot from which this picture and the next were both obtained was taken through the window of a moving car.

Shares and Sharing

A (very brief) case study on inspiration, some autism related stuff and stuff about sharing, and some of my own photographs – read, enjoy and feel free to share so long as you do so in the right kind of way!

INTRODUCTION

I have a number of things to share today (although today’s blogging won’t quite be on the epic scale of Saturday’s), and with one significant exception for this post I am concentrating on autism related stuff.

A CASE STUDY ON INSPIRATION

One of the treats awaiting me in my inbox this morning was a post on estersblog about Greenwich. Seeing her pictures of Greenwich inspired to me to created a post on my London transport themed website about Greenwich. The picture below is one of Ester’s, and links to her post about Greenwich:

As well as the picture that I am using as to link to the post I was inspired to create, I have a screenshot from that post below it:

1001-b — This is part of the image gallery I created for lot 1,001 in James and Sons’ April auction.

SHARING AND COMMENTING

I came across an excellent post about sharing and commenting on thesilentwaveblog. Please read this post in full by clicking on thesilentwave graphic below:

A NEW FIND – THE AUTISTIC ACADEMIC

I came across this blog yesterday. The post that caught my attention was titled “Ten Things Autistic Kids Pick Up Faster, Better, and With Less Trauma If They Aren’t Bullied Into Learning Them” and can be read in full by clicking the screenshot below. The PDF of the article to which this piece was responding can still be viewed, although the original article has been taken down (nb – once you have posted something anywhere on the net it is exceedingly hard to remove it, so best to think before you post so you have no need to worry aboiut trying to remove it!).

ANOTHER NEW FIND –
THE UNABASHED AUTIST

As a sample of this blogger I offer you a piece title “This Is Your Solution – To Ruin The Bike?”, which can be accessed by clicking the Unabashed Autist graphic below:

PHOTOGRAPHS

Here are some photographs from yesterday to end this post:

station — We start with some public transport themed pictures (five in total)

displayboards — This display is not as prominent within the station building as it should be.

Bus Station — From the train station to the bus station (while this is not quite a true transport interchange, the distance is only about 200 metres)

Blackbird in branches — Some of these pictures were taken yesterday morning, the others yesterday afternoon after my mother had dropped me back in King’s Lynn (near the cemetery, which made the best walking route home obvious – note for those new to this site best in this context does not necessarily mean shortest).

Asperger’s / autism vocabulary 201 ~ a proposal toward a 21st-century shift

Excellent stuff from thesilentwaveblog…

the silent wave

Yesterday, I celebrated six months of awareness of my true nature: I am autistic (Asperger’s).

This does not make me an expert (at least, not in the academic sense). It doesn’t grant me a magical power to speak for anyone else.

In the last six months, I’ve investigated this topic–and indeed this “alternate world” (at least, for me) with abnormal intensity.

But really, all I was doing was searching for terms and ideas that more-eloquently described what I had already been experiencing throughout my entire life. I had already felt those feelings, thought those thoughts, and struggled with those invisible differences; what I learned during my searching merely helped me identify and articulate them.

During this search, however, I noticed some patterns (ha) that struck me. The official diagnostic criteria and other conventional authoritative sources of information focused on what they observed through their own perspective lens; specifically, what they…

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Super Sharing Saturday – Politics 3: Bits and Bobs

A selection of political stories from the last couple of days.

INTRODUCTION

This is the third and last politically themed post in this series that I have been putting up today (although I have held some stories that might be considered political back for the next post which will be the last – I will then create a page containing links to these specific posts for ease of reference).

TORY STEALS MOD SECRETS, USES THEM TO HELP ADAM SMITH INTERNATIONAL

This story, which shows Tories at their worst and most unprincipled was brought to my attention by David Hencke. To read the full story of how MOD secrets were stolen and used to load the dice in favour of Adam Smith International click the image below.

ANOTHER ANGRY VOICE ON TORY ELECTOTRAL FRAUD

Thomas G Clark who blog as Another Angry Voice has more on the Tory electoral fraud story, in the form of whistleblowers who have admitted to unknowingly assisting the Tories to commit electoral fraud. Click the image below to read the full piece.

PIP PIP

I have two pieces on Personal Independence Payments (PIP for short) for your attention. Firstly, DPAC are asking for people who would be willing to be involved in a legal challenge to changes to PIP. If you are able to help DPAC, or would like to share their piece please click on the screenshot below.

The second PIP comes from 38 Degrees, in the form of a petition calling for people with mental health issues to be treated fairly under PIP. Please click the image below for more.

PROPORTIONAL REPRESENTATION

A situation that allows a party who gained 37% of the votes cast (under 25% of the electorate given the turnout) to form a “majority” government is obviously unacceptable. If you agree with this and are a UK resident please click on the screenshot below to sign and/ or share the petition, which is currently on 93,217 signatures, meaning that another 6,783will trigger a debate in the house. Just before putting up the screenshot link one final point for those who bring uop the orevious referendum on this subject: AV IS NOT PR

ROWSON SKEWERS HAMMOND

To end on a lighter note, below, with a link to the original, is Guardian cartoonist Martin Rowson’s take on Philip Hammond’s budget:

Super Sharing Saturday – Politics 2: Monroe Wins Defamation Case

An account of Jack Monroe’s splendid victory in a defamation case that centred on twitter.

INTRODUCTION

This is the second politics themed post in this series. In this case it deals with a defamation case that has recently been settled after 21 months. The plaintiff was food blogger and political activist Jack Monroe, while the defendant was someone who cannot be described in broadcastable language and does not deserve to have her name further publicised (the usual adjective used of her is in this context deeply offensive to trolls).

THE BARE BONES

Jack Monroe launched the case over two tweets posted a few hours apart. The defendant had the opportunity to settle out of court for a mere £5,000 but chose to fight on. This resulted in an award to Monroe of £24,000 and the defendant being ordered to pay costs totalling a further £83,000.

THE LINKS

I have three links for you about this case. First, by clicking the image below you can read Mike Sivier of Vox Political’s account (the picture is his as well):

Nathan Capone examines the implications of this verdict from a case-law point of view in this post.

Finally, for the completists among you, here is a link to the judgement in full.

PHOTOGRAPHS

As always, I finish by showing some of my own photographs.

	London Underground t… on Project Piccadilly
	Thomas on All Time XIs – Detective…
	Anna on All Time XIs – Detective…
	amsutcliffebtinterne… on All Time XIs – Detective…
	All Time XIs –… on The Museum Detectives

INTRODUCTION

AUTISM AWARENESS, UNDERSTANDING AND ACCEPTANCE

AUTISM CHARITIES/ ORGANISATIONS

SOME AUTISM RELATED SHARES

A VERY IMPORTANT PETITION – HARRY’S LAW

UNASHAMED

THE SILENT WAVE

SOME PHOTOGRAPHS

INTRODUCTION

BOOKING THE JOURNEY

COLLECTING THE TICKETS

INTRODUCTION

TAKING THE LOCAL AUTHORITY TO TASK

BADGER CULLS AND BIOSECURITY

BUSES IN CRISIS

PHOTOGRAPHS 1: WORK

PHOTOGRAPHS 2: LEISURE

INTRODUCTION

SPRING ARRIVES

A WALK

INTRODUCTION

THE MEETING

A SEGUE LINK

A BUSY WEEK FOR DPAC

PHOTOGRAPHS

INTRODUCTION

A CASE STUDY ON INSPIRATION

SHARING AND COMMENTING

A NEW FIND – THE AUTISTIC ACADEMIC

ANOTHER NEW FIND – THE UNABASHED AUTIST

PHOTOGRAPHS

INTRODUCTION

TORY STEALS MOD SECRETS, USES THEM TO HELP ADAM SMITH INTERNATIONAL

ANOTHER ANGRY VOICE ON TORY ELECTOTRAL FRAUD

PIP PIP

PROPORTIONAL REPRESENTATION

ROWSON SKEWERS HAMMOND

INTRODUCTION

THE BARE BONES

THE LINKS

PHOTOGRAPHS

ANOTHER NEW FIND –
THE UNABASHED AUTIST