Autistic Bill of Rights

What an excellent idea – this deserves to be shared widely…

stimtheline's avatarStim the Line

If you’ve been through the American school system, you probably remember learning about the Bill of Rights. If you’re not from the US, or you slept through a decade of history classes, what we call the Bill of rights is just the first 10 Amendments to the Constitution. With the exception of the 10th Amendment, 1-9 cover the guaranteed rights of an individual person.

Now, we all know that when the writers pictured a “person”, they thought of a Christian, white, male who owed property, so clearly, the Bill is not as comprehensive as you’d think.

Some groups have used the official Bill as a template, writing things like The Patients Bill of Rights, and The Students Bill of rights, and I think that it’s about time that we made one for ourselves.

Note: Some of these cannot apply to young children, but they should take effect as soon…

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The gift of autism

An excellent piece from a blogger who is going through the process of diagnosis – it is in keeping with the theme of #autismacceptancemonths brought to my attention by Jennifer Lisi. Please read it in full and post comments on the original.

Autism Acceptance Months II – Luke Beardon Joins The Fray

Sharing a wonderful post on the theme of autism accpetance from Luke Beardon. As this is a pure sharing post comments are closed – please comment on the original.

INTRODUCTION

Yesterday I was inspired by a wonderful piece of work done by Jennifer Lisi to create a blog post titled “Autism Acceptance Months“. Well I was not alone in being inspired by it, and I now share with you a post created by Luke Beardon titled “Inspired by Jennifer Lisi“. Because this is a pure sharing post I am closing it for comments – to comment please visit Luke’s post, linked to above and in the next section.

INSPIRED BY JENNIFER LISI

Below is the opening of the post, and a screenshot showing a bit more of it:

Are you aware that there are moons and stars?
Are you aware that there is a theory of relativity?
Are you aware of the music of Mozart?
Are you aware that cars have engines?
Are you aware that houses need careful planning when built so they don’t fall down?
Are you aware that there are creatures living in the sea?
Are you aware that pacemakers help people with heart problems?
Are you aware of Harry Potter?

LB

JENNIFER LISI’S NEW MEME

Having set the ball rolling by providing the inspiration for both my and Luke’s posts, Jennifer has subsequently created this lovely meme:

AAccMeme

Autism Acceptance Months

Inspired by Jennifer Lisi on twitter, who created the graphic at the heart of it, this post sets out aspi.blog’s stall, taking autism acceptance is starting point and looking ahead to autism appreciation.

INTRODUCTION

This is a post about something magnificent I have just seen on twitter and wish to share with all of you. The text of this post is #RedInstead because it is specifically about autism.

AUTISM ACCEPTANCE MONTHS

To start with, below is a screenshot of the tweet, by Jennifer Lisi,  that prompted this post:

AAM

Now we move on to some extra thoughts of my own:

  • Although I will on occasions, when I believe people are doing it for the right reasons share stuff about “autism awareness” I will not use the phrase on my account because…
  • We have been banging on about awareness for ages, and I do not believe there is a problem any more with people not knowing of the existence of autism and autistic spectrum conditions, though there are a raft of problems when it comes to understanding of such conditions.
  • For me Autism Acceptance as shown in the graphic above is what we should be considering as our basic start point, with the hope that acceptance of us for who and what we are will lead to…
  • Appreciation of our strengths and good qualities.

Thus the journey we look to trace out runs not awareness-understanding-acceptance  but awareness-understanding-acceptance-appreciation.

PHOTOGRAPHS

I end this post with some photographs, in this case with a cormorant in the starring role:

lapwings close up
We lead in with four pictures featuring lapwings…

Lapwings group shotlapwings Ilapwings x 8

Cormorant and lapwing I
…this picture introduces the cormorant who is present in all the remaining shots.

Cormorant ICormorant IICormorant and lapwingsCormorant, lapwings, church, flying gullCormorant and lapwings IICormorant IIICormorant and lapwing IICormorant IVCormorant, lapwings, churchCormorant VCormorant VICormorant with spread wings

Autism and Music

An account of the first Musical Keys session of the new year and some autism related links.

INTRODUCTION

This post comprises two elements – one an account of the first Musical Keys session of 2018 and the other sharing some excellent recent stuff about autism. Because it is an autism themed post I am using #RedInstead text (scarlet for headings and links, maroon for body text). 

MUSICAL KEYS

Musical Keys is an activity run for autistic people who enjoy music. Generally speaking it is run fortnightly, with a session for youngsters between 3PM and 3:45PM and a session for older participants from 4PM to 5PM. I had initially been expecting to renew my acquaintance with Reaper (a computer program for composing music – see here for more details) but circumstances dictated otherwise, and I actually ended up on a…

KEYBOARD

This machine can function as a wide range of instruments/voices and in a wide range of styles, and I explored a lot of the instruments in the course of the time I spent on it.

Keyboard

John, one of the two people who run these sessions, showed me how to play chords as opposed to single notes, and I experimented with playing varying numbers of notes simultaneously, and using the whole range of the keyboard. 

I created a few chords where the notes played could also form words, such as face/cafe, cabbage etc. I enjoyed making the acquaintance of this keyboard and learning something of its capacities.

Chord
These notes could form the word ‘cabbage’ (there being 2 as, 2 bs, 1c, 1e and 1g. Kirsten Murray, who helps John to run the sessions, took this picture with my camera.
Face
Here you can see the notes – I played this with my left hand, while photographing with my right.
Screen
A close up the central screen.
Voice
The screen with more of its surrounds, including detail about the ‘voice’ settings.

AUTISM RELATED LINKS

This section starts with a post from Rhi that I regard as being the last word on “mild autism”, published under the title “Autscriptic: Mild Autism“. 

My next piece comes from the Thinking Person’s Guide to Autism, written by Shannon Des Roches Rosa of squidalicious.com under the self-explanatory title “Eleven Ways You Can Make Your Autistic Child’s Life Easier

The next two pieces in this section are both from the blog “Autism is my Superpower

TO SIRI REVISITED

I have linked to a number of reviews of Judith Newman’s book “To Siri With Love”, although since I have not read the book I can offer no direct comment about it, and here are a few more pieces about that book:

AN ANTI-AUTISTIC HATE GROUP
MASQUERADING AS AN AUTISM CHARITY

The organisation who are the subject of this little section go by the name of Autism Speaks, who you will also see referred to as Autism $peaks, Auti$m $peak$ and A$ in various places. 

  1. From care.com comes this story, whose title “Autism Mother Sues Autism Speaks For Disability Discrimination” gives you more than a hint of the truth about this vile organisation.
  2. The website ownshrink.com has a piece titled “Autism Speaks: Torturing autistics for profit” which is as damning an indictment of an organisation that claims to be an autism charity as you could find anywhere.

 

8 Favorite Quotes About Autism

These are some splendid quotes about Autism – though I would prefer the fourth one down to be in shades of #RedInstead rather than blue!

stimtheline's avatarStim the Line

If you interact at all with social media, you’ll know that quotes are everywhere. They’re usually posted on top of images on mountains or sunsets, and are more often than not credited to ‘anonymous’. Not to say there aren’t some good quotes out there, especially ones that describe experiences, instead of forcing vague positivity on the reader. It can be hard to sort through Autism quotes, because a large percentage of them are made about Autistic children by Neurotypical adults. These often border on inspiration porn- and they infuriate me.

So, in order to combat these, I’d like to share some quotes about Autism that I enjoy.

Image result for quotes about autismSee the source image

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So here they are! If I had to pick one, I think that the square peg one is my favorite, but there’s some may quotes out there, that I’ve probably missed some great ones! So, dear reader, if you’ve got a quote you…

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The SCOPE Christmas Meal And Some Autism Related Links

A brief account of the SCOPE Christmas meal to which I was invited as NAS West Norfolk branch secretary and some autism related links.

INTRODUCTION

I am including autism related links because it was in my capacity as NAS West Norfolk branch secretary that I was invited to attend the SCOPE christmas meal (our organisations are looking to work more closely on various things). 

THE MEAL

The meal was arranged for The Gatehouse, a Hungry Horse pub located near the South Gate, at the edge of King’s Lynn (hence the name) with food booked for 3PM. The plan was for a few things to be discussed as well. I arrived at the pub not long after 2PM, purchased a pint to drink slowly while I waited for others to arrive (SCOPE were paying for the food, so I reckoned I could allow myself a couple of drinks) and settled down to wait. 

Others began arriving at around 2:45, and Chloe Yianni from SCOPE, who was running the event, arrived just before 3PM. 

Most of the ‘meeting’ element of the day took place between the main course and dessert, accompanied by a very impressive sunset (yes folks it gets dark early in these parts in December). 

I enjoyed the occasion and look forward to working closely with the people from SCOPE in 2018 and beyond.

Moorhen
The first 14 pictures you will see were taken while walking to the pub

StarlingBirds in a treeBirds on the wingCormorantWagtailCormorant 2Rooks and warning signwind turbinesbirds in the grassStarling on grassStarling 3Nar Valley ParkBridge

Calendars
My last three calendars set out in the pub.
book like wall
The first of five decor shots

decorationHungry Horse motifWall artdecoration 2

Sunset
The sunset
Chloe
Chloe Yianni
Party
The party.

SOME AUTISM RELATED LINKS

A majority of the links in this section are to posts on USian (acknowledgement to New Zealander Heather Hastie for this term) blogs/ sites, and most of the rest are British, although a few other countries also feature. As an internationalist I am proud that people from many countries visit this blog (108 in the last year, 123 all time). 

ON TERMINOLOGY

This section relates to a wonderful post put up by Autism Mom a couple of days ago under the title “I WANT TO BE CALLED AUTISTIC” I offer you my own comment in immediate response to that post, which I stand by:

Well done to both you and your son. Although my own strong preference is to describe myself as an autistic person I am quite happy for those who choose to do so to describe themselves as people with autism – what I will not accept is a well meaning neurotypical person seeking to make the decision on our behalf – it is our decision and we should make it ourselves.

Also, here is a quote from the end of the post:

Person first versus identify first: He cocked his head and asked me to explain more.

“I want to be called autistic,” he announced after I had finished. “Saying “person with autism” sounds like I have a disease. I don’t have a disease, this is just how I am.”

And then he added: “Actually, I want to be called by my name, but if you need to describe my autism I want to be called autistic.”

Make it so.

If you are reading this and have an autistic spectrum condition please feel free to add a comment about how you would prefer to be described.

I finish this section with a link to post mentioned in the Autism Mom piece linked to above which appears on Autistic Not Weird under the title “A plea to the autism community from one of your own

THE “TO SIRI” ISSUE

Many splendid pieces have been produced about this subject since I last provided links relating to it, and I append a bulleted list of the best links:

A FINAL LINK

I conclude this post by linking to a story from the excellent John Pring of Disability News Service. As a strong supporter of “Nothing About Us Without Us” I hardly need to tell you why I was delighted to read “Autistic-led taskforce will address ‘hypocrisy and injustice’

 

International Charter of Autists Rights & THE 10 POINTS OF Âû (The Autistic Union)

This is a must read document, courtesy of Eve Reiland (nee Hinson) at americanbadassactivists

Eve Reiland's avatarInternational Badass Activists

Note: The International Charter of Autists Rights has been officially adopted at AmericanBadassActivists.org. Please support, share and help educate others on Autists Rights.


THE 10 POINTS OF Âû (The Autistic Union)

  1. I am Autistic. [or] I support those who are Autistic.
  2. I embrace my Autism as a very significant part of my identity.
  3. I embrace those who would sacrifice to protect all Autistic life.
  4. I embrace the belief that Autism does not need any “curing”.
  5. I embrace the self-advocacy goal of “Everything about us, with us”.
  6. I embrace the definition of Autism as a neuro-social difference.
  7. I embrace measures directed at protecting Autistics from attack.
  8. I embrace a person-centred approach to all Autism issues.
  9. I embrace rigorous scientific approaches to co-occurring conditions.
  10. I embrace Autistics leading their own welfare organisations.

1. THE RIGHT TO LIFE 

We will prevent eugenic elimination of autistic people by opposing pre-natal testing for autism.

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Downham Market Community Fair

An account of running the NAS West Norfolk stall at the Downham Market Community Fair on Saturday.

INTRODUCTION

NAS West Norfolk were invited to run a stall at the Downham Market Community Fair, which took place on Saturday, with stalls setting up from 9AM and the event itself running from 10AM to 2PM. This post is my account from my perspective running the NASWN stall on the day. There will be plenty of photographs. I have stated elsewhere that while it is not ideal to have a stall covered by only one person if NAS West Norfolk are going to have only one person running the stall that person should be me.

Community Fair

GETTING THERE

I travelled to Downham Market by train (£3 return when making the journey at the weekend), selecting the 7:54AM, which would see me arrive at the station at about 8:10AM. I saw sufficiently much to take the eye as I walked through the town that I shall be putting up a separate post about that. I arrived outside the Town Hall at 8:35AM, giving me plenty of time to take some photographs of the outside of the building.

Town Hall Exterior 5Info board 2Info board 1Detail 5Town Hall Exterior 4Detail 4Town Hall Exterior 3Foundation stoneDetail 3Detail 2Detail 1Main doorTown Hall Exterior 2Town Hall Exterior 1Carr panelAdvertisingWindowDetail 6

THE NASWN STALL

As arranged the person bringing the stall and some new leaflets arrived at 9AM, and the setup was swiftly accomplished. This was the first occasion in which the aspi.blog calendars for 2018 were on public display.

Stall
The stall – new leaflets/flyers, calendars and the display board.
Calendars
A close up of the calendars.

AROUND THE HALL

Obviously, being in sole charge of the stall I did not have much opportunity for moving about once the event was underway, but I did get sufficient pictures from a combination of the occasions on which I did move about and those taken from the stall to give a feel for the event. We start with some general pictures of the inside of the building.

Whole Hall
Two shots showing views of the hall

Hall

Parapet
This parapet is presumably the front of an upstairs seating area.
Artwork 2
The last two shots in this selection feature artwork on the walls just outside the hall.

Artwork 1

Moving on to inidviudal stalls, I got pictures of the Downham Market Horticultural Society stall, the RBL stall, and various others. The most impressive stall of the day was that being run by the King’s Lynn and District Astronomy Society. They had a big screen displaying some very impressive slides as well their display board. The Cats Protection group had a stall, that like the NASWN stall was being run by a single person. 

Sue Ryder 2Cats ProtectionDownham Market HortiRBLRBL modelsBannerSue RyderRotary

These are all the pictures of stalls other than the Astronomy Society one that I got, and it is to that group that I now turn:

Astronomy 1
Two shots of the KLADAS stall

Astronomy 2

Astronomy 3
The remainder are of slides that caught my attention.

Astronomy 4Astronomy 5Astronomy 6Astronomy 7Astronomy 8Astronomy 9

THE NAS WEST NORFOLK STALL

The event was not massively attended, but I did see quite a few people at the NASWN stall, and the experience was overwhelmingly positive. My calendars impressed a few people but not sufficiently for any to sell. From an NASWN perspective, the main point of the day of course was to improve understanding of autism and to publicise the existence of our group. We succeeded as well as could have been hoped for in both regards, with a number of the new leaflets being taken, and quite a few people leaving the event better informed about autism than they had been before it started. I also got to explain about the rainbow coloured infinity symbol, and the fact that it is a symbol chosen by autistic people to represent the autistic spectrum. I consider that this event was a good use of a significant part of my Saturday. To finish, here is our stall for a second time:

Stall
The stall – new leaflets/flyers, calendars and the display board.

 

 

What is Autism?

Some thoughts about autism provoked in a good way by anonymouslyautistic and a bad way by the folk at magiquiz.

INTRODUCTION

I am not going to attempt a scientific answer to the question in my title, merely to lay out some of my own thoughts. The original inspiration for this post was a post produced by anonymouslyautistic, titled “WHAT IS AUTISM – FROM AN AUTISTIC’S PERSPECTIVE” and brought to my attention by americanbadassactivistsAs readers of this blog will be aware I am branch secretary of the National Autistic Society’s West Norfolk branch as well as being autistic. 

 

WHAT AUTISM IS NOT

Among the things that autism is sometimes supposed to be but is not are:

  • A form of mental illness (more on this at the end of this section as you will see). 
  • A disorder
  • Something to be feared or worse still hated
  • Something that needs to be cured

I end this section with an example that absolutely shocked me when I saw it by way of twitter this weekend. I invite readers of this post to collectively identify everything they can find that is wrong with the formulation of the question below:

ableist question

If you click on the image you can go to the quiz, take it yourself and then post a comment (if you choose to do this please follow me in highlighting the problems with this question).

AUTISM AND ME

My unsuitability for front-line customer service and the difficulties I have with communication are down to autism. On the other side of the ledger my eye for detail, reflected in my photography among other things, my mathematical skills, my aptitude for working with computers and several other of my strongest attributes are also due to autism.

I will finish this section by reminding people that different does not necessarily mean less, and that we are autistic people – note the emphasis given to the second part of that designation.

PUZZLES

In this section I provide the solution to one puzzle and offer another for your inspection. Both are mathematical in nature. 

In ‘Midweek Mixture‘ I set the following puzzle:

The above table shows two putative sets of coin toss records, each for one coin tossed thirty times. Which is more like to be genuine based on what you can see?

a) series one
b) series two

To begin the solution, here is the table above with a column added:

coin tosses complete

You will see that the two sets of coin toss lists in the original problem were made up, but if you look at the results for the set of coin tosses I actually performed you will note that it looks much more like series two than series one – randomness is clumpier than we intuitively expect (the idea for this problem came from a book by Natalie Angier, in which she tells the story of a teacher who uses an experiment in which half of her class are assigned the task of inventing a series of coin tosses, and half of actually tossing coins and recording the result, while the teacher goes out of the room – and nearly always the teacher can tell the real from the fake). 

My new problem comes from the mathematical website brilliant:

octagon

PHOTOGRAPHS

As usual I end this post with some photographs, in this case featuring a family of swans I saw swimming along the Gaywood River yesterdary morning:

Swan familySwan family 2Swan family3Swan family 4Swan family 5young swanstwo swansyoung swanwhite swanwhite swan 2white swan 3Swansswans 2Swans 3