Sharing a wonderful post on the theme of autism accpetance from Luke Beardon. As this is a pure sharing post comments are closed – please comment on the original.
INTRODUCTION
Yesterday I was inspired by a wonderful piece of work done by Jennifer Lisi to create a blog post titled “Autism Acceptance Months“. Well I was not alone in being inspired by it, and I now share with you a post created by Luke Beardon titled “Inspired by Jennifer Lisi“. Because this is a pure sharing post I am closing it for comments – to comment please visit Luke’s post, linked to above and in the next section.
INSPIRED BY JENNIFER LISI
Below is the opening of the post, and a screenshot showing a bit more of it:
Inspired by Jennifer Lisi on twitter, who created the graphic at the heart of it, this post sets out aspi.blog’s stall, taking autism acceptance is starting point and looking ahead to autism appreciation.
INTRODUCTION
This is a post about something magnificent I have just seen on twitter and wish to share with all of you. The text of this post is #RedInstead because it is specifically about autism.
AUTISM ACCEPTANCE MONTHS
To start with, below is a screenshot of the tweet, by Jennifer Lisi, that prompted this post:
Now we move on to some extra thoughts of my own:
Although I will on occasions, when I believe people are doing it for the right reasons share stuff about “autism awareness” I will not use the phrase on my account because…
We have been banging on about awareness for ages, and I do not believe there is a problem any more with people not knowing of the existence of autism and autistic spectrum conditions, though there are a raft of problems when it comes to understanding of such conditions.
For me Autism Acceptance as shown in the graphic above is what we should be considering as our basic start point, with the hope that acceptance of us for who and what we are will lead to…
Appreciation of our strengths and good qualities.
Thus the journey we look to trace out runs not awareness-understanding-acceptance but awareness-understanding-acceptance-appreciation.
PHOTOGRAPHS
I end this post with some photographs, in this case with a cormorant in the starring role:
We lead in with four pictures featuring lapwings…
…this picture introduces the cormorant who is present in all the remaining shots.
An account of the first Musical Keys session of the new year and some autism related links.
INTRODUCTION
This post comprises two elements – one an account of the first Musical Keys session of 2018 and the other sharing some excellent recent stuff about autism. Because it is an autism themed post I am using #RedInstead text (scarlet for headings and links, maroon for body text).
MUSICAL KEYS
Musical Keys is an activity run for autistic people who enjoy music. Generally speaking it is run fortnightly, with a session for youngsters between 3PM and 3:45PM and a session for older participants from 4PM to 5PM. I had initially been expecting to renew my acquaintance with Reaper (a computer program for composing music – see here for more details) but circumstances dictated otherwise, and I actually ended up on a…
KEYBOARD
This machine can function as a wide range of instruments/voices and in a wide range of styles, and I explored a lot of the instruments in the course of the time I spent on it.
John, one of the two people who run these sessions, showed me how to play chords as opposed to single notes, and I experimented with playing varying numbers of notes simultaneously, and using the whole range of the keyboard.
I created a few chords where the notes played could also form words, such as face/cafe, cabbage etc. I enjoyed making the acquaintance of this keyboard and learning something of its capacities.
These notes could form the word ‘cabbage’ (there being 2 as, 2 bs, 1c, 1e and 1g. Kirsten Murray, who helps John to run the sessions, took this picture with my camera.Here you can see the notes – I played this with my left hand, while photographing with my right.A close up the central screen.The screen with more of its surrounds, including detail about the ‘voice’ settings.
AUTISM RELATED LINKS
This section starts with a post from Rhi that I regard as being the last word on “mild autism”, published under the title “Autscriptic: Mild Autism“.
I have linked to a number of reviews of Judith Newman’s book “To Siri With Love”, although since I have not read the book I can offer no direct comment about it, and here are a few more pieces about that book:
AN ANTI-AUTISTIC HATE GROUP
MASQUERADING AS AN AUTISM CHARITY
The organisation who are the subject of this little section go by the name of Autism Speaks, who you will also see referred to as Autism $peaks, Auti$m $peak$ and A$ in various places.
If you interact at all with social media, you’ll know that quotes are everywhere. They’re usually posted on top of images on mountains or sunsets, and are more often than not credited to ‘anonymous’. Not to say there aren’t some good quotes out there, especially ones that describe experiences, instead of forcing vague positivity on the reader. It can be hard to sort through Autism quotes, because a large percentage of them are made about Autistic children by Neurotypical adults. These often border on inspiration porn- and they infuriate me.
So, in order to combat these, I’d like to share some quotes about Autism that I enjoy.
So here they are! If I had to pick one, I think that the square peg one is my favorite, but there’s some may quotes out there, that I’ve probably missed some great ones! So, dear reader, if you’ve got a quote you…
A brief account of the SCOPE Christmas meal to which I was invited as NAS West Norfolk branch secretary and some autism related links.
INTRODUCTION
I am including autism related links because it was in my capacity as NAS West Norfolk branch secretary that I was invited to attend the SCOPE christmas meal (our organisations are looking to work more closely on various things).
THE MEAL
The meal was arranged for The Gatehouse, a Hungry Horse pub located near the South Gate, at the edge of King’s Lynn (hence the name) with food booked for 3PM. The plan was for a few things to be discussed as well. I arrived at the pub not long after 2PM, purchased a pint to drink slowly while I waited for others to arrive (SCOPE were paying for the food, so I reckoned I could allow myself a couple of drinks) and settled down to wait.
Others began arriving at around 2:45, and Chloe Yianni from SCOPE, who was running the event, arrived just before 3PM.
Most of the ‘meeting’ element of the day took place between the main course and dessert, accompanied by a very impressive sunset (yes folks it gets dark early in these parts in December).
I enjoyed the occasion and look forward to working closely with the people from SCOPE in 2018 and beyond.
The first 14 pictures you will see were taken while walking to the pub
My last three calendars set out in the pub.The first of five decor shots
The sunsetChloe YianniThe party.
SOME AUTISM RELATED LINKS
A majority of the links in this section are to posts on USian (acknowledgement to New Zealander Heather Hastie for this term) blogs/ sites, and most of the rest are British, although a few other countries also feature. As an internationalist I am proud that people from many countries visit this blog (108 in the last year, 123 all time).
ON TERMINOLOGY
This section relates to a wonderful post put up by Autism Mom a couple of days ago under the title “I WANT TO BE CALLED AUTISTIC” I offer you my own comment in immediate response to that post, which I stand by:
Well done to both you and your son. Although my own strong preference is to describe myself as an autistic person I am quite happy for those who choose to do so to describe themselves as people with autism – what I will not accept is a well meaning neurotypical person seeking to make the decision on our behalf – it is our decision and we should make it ourselves.
Also, here is a quote from the end of the post:
Person first versus identify first: He cocked his head and asked me to explain more.
“I want to be called autistic,” he announced after I had finished. “Saying “person with autism” sounds like I have a disease. I don’t have a disease, this is just how I am.”
And then he added: “Actually, I want to be called by my name, but if you need to describe my autism I want to be called autistic.”
Make it so.
If you are reading this and have an autistic spectrum condition please feel free to add a comment about how you would prefer to be described.
Note: The International Charter of Autists Rights has been officially adopted at AmericanBadassActivists.org. Please support, share and help educate others on Autists Rights.
THE 10 POINTS OF Âû (The Autistic Union)
I am Autistic. [or] I support those who are Autistic.
I embrace my Autism as a very significant part of my identity.
I embrace those who would sacrifice to protect all Autistic life.
I embrace the belief that Autism does not need any “curing”.
I embrace the self-advocacy goal of “Everything about us, with us”.
I embrace the definition of Autism as a neuro-social difference.
I embrace measures directed at protecting Autistics from attack.
I embrace a person-centred approach to all Autism issues.
I embrace rigorous scientific approaches to co-occurring conditions.
I embrace Autistics leading their own welfare organisations.
1. THE RIGHT TO LIFE
We will prevent eugenic elimination of autistic people by opposing pre-natal testing for autism.
An account of running the NAS West Norfolk stall at the Downham Market Community Fair on Saturday.
INTRODUCTION
NAS West Norfolk were invited to run a stall at the Downham Market Community Fair, which took place on Saturday, with stalls setting up from 9AM and the event itself running from 10AM to 2PM. This post is my account from my perspective running the NASWN stall on the day. There will be plenty of photographs. I have stated elsewherethat while it is not ideal to have a stall covered by only one person if NAS West Norfolk are going to have only one person running the stall that person should be me.
GETTING THERE
I travelled to Downham Market by train (£3 return when making the journey at the weekend), selecting the 7:54AM, which would see me arrive at the station at about 8:10AM. I saw sufficiently much to take the eye as I walked through the town that I shall be putting up a separate post about that. I arrived outside the Town Hall at 8:35AM, giving me plenty of time to take some photographs of the outside of the building.
THE NASWN STALL
As arranged the person bringing the stall and some new leaflets arrived at 9AM, and the setup was swiftly accomplished. This was the first occasion in which the aspi.blog calendars for 2018 were on public display.
The stall – new leaflets/flyers, calendars and the display board.A close up of the calendars.
AROUND THE HALL
Obviously, being in sole charge of the stall I did not have much opportunity for moving about once the event was underway, but I did get sufficient pictures from a combination of the occasions on which I did move about and those taken from the stall to give a feel for the event. We start with some general pictures of the inside of the building.
Two shots showing views of the hall
This parapet is presumably the front of an upstairs seating area.The last two shots in this selection feature artwork on the walls just outside the hall.
Moving on to inidviudal stalls, I got pictures of the Downham Market Horticultural Society stall, the RBL stall, and various others. The most impressive stall of the day was that being run by the King’s Lynn and District Astronomy Society. They had a big screen displaying some very impressive slides as well their display board. The Cats Protection group had a stall, that like the NASWN stall was being run by a single person.
These are all the pictures of stalls other than the Astronomy Society one that I got, and it is to that group that I now turn:
Two shots of the KLADAS stall
The remainder are of slides that caught my attention.
THE NAS WEST NORFOLK STALL
The event was not massively attended, but I did see quite a few people at the NASWN stall, and the experience was overwhelmingly positive. My calendars impressed a few people but not sufficiently for any to sell. From an NASWN perspective, the main point of the day of course was to improve understanding of autism and to publicise the existence of our group. We succeeded as well as could have been hoped for in both regards, with a number of the new leaflets being taken, and quite a few people leaving the event better informed about autism than they had been before it started. I also got to explain about the rainbow coloured infinity symbol, and the fact that it is a symbol chosen by autistic people to represent the autistic spectrum. I consider that this event was a good use of a significant part of my Saturday. To finish, here is our stall for a second time:
The stall – new leaflets/flyers, calendars and the display board.
Two shots showing views of the hall
This parapet is presumably the front of an upstairs seating area.
The last two shots in this selection feature artwork on the walls just outside the hall.
An account of the Ageing With Autism conference that took place in Norwich on Wednesday.
INTRODUCTION
The title of this post is the same as the event in Norwich on Wednesday at which I was running a stall for NAS West Norfolk. This post tells the story of that day.
THE PRELIMINARIES
This event was organised by ASD Helping Hands, and they invited us to have a stall there, which we accepted. The intention was that I and our branch chair would jointly run the stall. Other factors intervened, meaning that the branch chair could run me over to Norwich with the stuff for the stall, see me set up and then depart, leaving me to travel back by bus. Fortunately someone else very well known to us was able to take the stall stuff back in their car (although not heavy, the display board even when folded and bagged is bulky and awkward – it would have been very difficult taking it back to King’s Lynn on the bus). This meant that I would be running the stall on my own. Having only one person to run the stall was not ideal, but in the context of people who might run an NAS West Norfolk stall if the stall has to be run by a single person I am the right person to it, since at least that does mean the we have an autistic person present (the NAS in NAS West Norfolk stands for National Autistic Society after all).
GETTING THERE
I had arranged to meet the branch chair on Winston Churchill Drive, near her son’s school (as a single male I did not wish to be seen loitering directly outside a school!), which meant a longish walk (I was not paying a bus fare for a journey of that length). I travelled by way of The Walks, the path on from there in between the two academies, various back roads in Gaywood which led in the general direction of Gaywood Park, and then through Gaywood Park to the latest point at which I could join the main road, which I then followed to the roundabout opposite the entrance to the grounds of the Queen Elizabeth Hospital, and then walked on to Winston Churchill Drive to await the branch chair. Here is a map that is posted opposite where I waited:
The journey from there to Norwich was uneventful, but having located King Street we discovered that it was blocked halfway along its length, so I took the stall stuff and made my way to the venue while the car was parked. Setting the stall up did not take very long, and I was ready for action.
AT THE EVENT
I talked to various people through the day and also picked up information from other stalls at the event. The first person I spoke to was Daphne Rowlands of Children’sAutismServices, who came over not long after I had set up. During an early quiet period I walked round the room looking at the stalls, which were run by (in no particular order):
As well as all these organisations, a number of ordinary folk attending the conference came over to speak to me, and we may or may not hear more from them. The last session of the conference ended at 3:00, and at 3:30, with no one having come to my stall for several minutes I decided it was time to pack up (in theory I could have stayed another hour). After accompanying the person who would be temporarily looking after the stall stuff to her car and helping her to load I took the opportunity of being in Norwich to visit the Millennium Library before catching the bus home. I arrived home somewhat more than 11 hours after setting off.
PHOTOGRAPHS
Here are the photographs I took at the event (and a couple taken later in the day).
The agenda for the conference.My personal sheet, attached to the NASWN notice boardThe NASWN acrosticThe first of two pieces about our allotment
The whole NASWN stall.
The patterns in the carpet caught my attention (based on fingerprints?)
Some important autism themed pieces and a few of my photographs.
INTRODUCTION
I have several important links relating to autism to share with you, and I urge you to continue that sharing process. Just to remind my readers I am#actuallyautistic, and also branch secretary of the National Autistic Society’sWest Norfolk branch, and in that latter capacity I will conclude this introduction by reminding you of NAS’s catchline:
UNTIL EVERYONE UNDERSTANDS
A NOTE ON ATTRIBUTIONS
I found some of these pieces by way of people other than the original author. In such cases as well as crediting the actual author I also intend to mention the person who gave me the tip off. If you seen an underlining anywhere it is a link, and those links that are body text will be in a colour other than black to further highlight them.
This piece was brought to my attention when the Neurodivergent Rebel reblogged it. It is a long piece, but very readable and absolutely bang on the money. The list itself is too long to quote here, but the screenshot below which explains the problems that the post goes on to address brilliantly is a good start:
THE LEFEVER BIKE RIDE
Paul and Jamie Lefever recently undertook a sponsored cycle ride from King’s Lynn to the National Autistic Society’s HQ in London, a distance of 118 miles. A full account, under the title “11-year-old Jamie cycles 118 miles for our charity (4 September 2017)” is available on the NAS website.
ABA THERAPISTS BUSTED
This piece, written by Amy Sequenzia, a well known autistic person and advocate for autism, was originally posted on the autismwomensnetwork under the self explanatory title “ABA Providers Making Fun of Autistic People“. I include a graphic from this post below:
Image is a photo of a group of human figure-shaped wooden pegs clustered to the left and a single wooden peg standing off to the right. Text says, “It is about how ABA “therapists” REALLY see Autistics. It is about them making fun of us because they see us as broken and hopeless. -Amy Sequenzia, autismwomensnetwork.org”
As always, I end this post with some of my own photographs:
The pigeon in the background helps to show how tiny this wagtail is.
No I have not rotated this shot – the squirrel really is on a vertical tree trunk.
This shot shows Hanse House and the Rathskellar, the latter of which is hosting a charity beer festival this weekend.
I was due to steward at 11-13 King Street between 12 and 2PM on Heritage Open Day, but this has now been changed to 27 King Street, which is this fine building.
The Eastern Inshore Fisheries and Conservation Auhtority.The cockling boat Baden Powell and a Fisheries Research vessel.
Among the things that autism is sometimes supposed to be but is not are:
A form of mental illness (more on this at the end of this section as you will see).
A disorder
Something to be feared or worse still hated
Something that needs to be cured
I end this section with an example that absolutely shocked me when I saw it by way of twitter this weekend. I invite readers of this post to collectively identify everything they can find that is wrong with the formulation of the question below:
If you click on the image you can go to the quiz, take it yourself and then post a comment (if you choose to do this please follow me in highlighting the problems with this question).
AUTISM AND ME
My unsuitability for front-line customer service and the difficulties I have with communication are down to autism. On the other side of the ledger my eye for detail, reflected in my photography among other things, my mathematical skills, my aptitude for working with computers and several other of my strongest attributes are also due to autism.
I will finish this section by reminding people that different does not necessarily mean less, and that we are autistic people – note the emphasis given to the second part of that designation.
PUZZLES
In this section I provide the solution to one puzzle and offer another for your inspection. Both are mathematical in nature.
The above table shows two putative sets of coin toss records, each for one coin tossed thirty times. Which is more like to be genuine based on what you can see?
a) series one
b) series two
To begin the solution, here is the table above with a column added:
You will see that the two sets of coin toss lists in the original problem were made up, but if you look at the results for the set of coin tosses I actually performed you will note that it looks much more like series two than series one – randomness is clumpier than we intuitively expect (the idea for this problem came from a book by Natalie Angier, in which she tells the story of a teacher who uses an experiment in which half of her class are assigned the task of inventing a series of coin tosses, and half of actually tossing coins and recording the result, while the teacher goes out of the room – and nearly always the teacher can tell the real from the fake).
My new problem comes from the mathematical website brilliant:
PHOTOGRAPHS
As usual I end this post with some photographs, in this case featuring a family of swans I saw swimming along the Gaywood River yesterdary morning:
aspiblog 