Tag: Autism Acceptance

World Autism Awareness Day

A post for World Autism Awareness Day featuring yesterday at Musical Keys and a number of autism related links.

INTRODUCTION

Welcome to World Autism Awareness Day. This post has two parts, an account with photographs, of Musical Keys yesterday and some autism related links. 

MUSICAL KEYS

Musical Keys is one of the events available to members of NAS West Norfolk, and it runs fortnightly on Saturdays. Yesterday was one of those Saturdays, and it seems appropriate to write about it for World Autism Awareness Day. Although most of the focus will be on the event itself, for me it also involves two walks, one in each direction, and my coverage therefore starts with…

GETTING THERE

The weather being pleasant I decided to extend the walk there by starting off along the river front and through Hardings Pits, only joining one of my usual routes at Tennyson Avenue. Here are some photos from this walk…

DSCN5390DSCN5391DSCN5392DSCN5393DSCN5394DSCN5395DSCN5396DSCN5397

THE SESSION ITSELF

The sessions nowadays feature musical instruments, computers and i-pads. Also, John from Musical Keys was recording people, which I captured on my camera. I was on one of the computers when not taking photographs. Before the session got underway I told people that I would be taking photographs, why I would be taking them and that the intention was that they should be shared widely. Here then are some photos:

This is what I was doing (two more pics after this). The default pen colour by the way is blue but given then purpose for which I would be using these pictures I used #RedInstead!

THE WALK BACK

The walk back was uneventful, although I did bag a couple more pictures.

DSCN5459DSCN5460

SOME AUTISM RELATED LINKS

I start the sharing process with…

TWO VIDEOS FROM AmericanBadassAdvocates

These two videos from AmericanBadassAdvocates are respectively about Julia the autistic character on Sesame Street and an attack on the ‘blue jigsaw piece’ people.

OTHER LINKS

AmericanBadassAdvocates also put up this piece about London listening and not ‘lighting up blue’ but instead ‘lighting up pink’, pink being one of the colours of the National Autistic Society. To read in full please click the image below.

I am taking the next two links together because they are complementary. Broken Brain – Brilliant Mind with “#REDinstead for Autism acceptance – now, there’s an idea” and thesilentwaveblog with “Don’t ‘light it up blue‘ for me” each provide compelling reasons for avoiding blue and using red instead to raise autism awareness. The two graphics below provide links to each post in the order in which I have mentioned them.

redinstead

The Art of Autism have produced a post consisting of 18 Temple Grandin quotes. Once again I link by way of an image:

Temple Grandin's ability to think like a cow has enabled her to design over half of all cattle facilities in the United States

Our Autism Blog has put up a post titled “Meltdown, tantrum or bad behaviour”, which I link to by way of the infographic below:

My last two links, which end the post are on a theme of…

ROLE REVERSAL

Erin Human has produced a post in which she comes up with alternative designation for April of ‘Ableism Awareness Month’. Click on the graphic below to read in full:

I conclude my World Autism Awareness Day post with a link to that most brilliant of all role reversal posts, thesilentwaveblog’s “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people”. Click the image below to read in full:

 

 

Too Much Information and Autism Acceptance

As Autism Acceptance/ Appreciation Month gets underway I share some of the best autism related pieces of the moment, some thoughts of my own and some photographs.

INTRODUCTION

I have a number of autism related links to share. Some of you will notice that the heading of this section of the blog is a different colour from usual. One of the links I shall be sharing gives more detail on this. For the moment suffice it to say that for the month of April save when it features in photographs the colour blue will not feature in this blog. As for the second half of this post’s title, I refer you to my last post, accessible by way of the graphic below:

AUA

TOO MUCH INFORMATION

Last year the National Autistic Society released a video entitled Too Much Information. This year they have produced a second, which has already had approximately a million views. As I cannot embed this particular video I link to it by way of the screenshot below and this link to the original.

TMI

SOME OTHER AUTISM RELATED LINKS

My first two links both come from a site I have recently come across called “A Thinking Person’s Guide to Autism“. 

  1. We start with a post titled “Autism Science to Watch Out For”, which you can visit by clicking the screenshot below.
    ASW
  2. My second selection from this site, titled “An Open Letter from an Autistic Child in Meltdown, Written by an Autistic Adult Who Still Melts Down From Time to Time”
    does precisely what it says on the tin. Again the link is by way of a screenshot:
    Meltdownletter

The Art of Autism site have put up a post titled “APRIL IS AUTISM AWARENESS MONTH – WE PREFER AUTISM ACCEPTANCE MONTH“, which can be viewed by clicking their lovely graphic below:
AutismRainbow

My next link comes from a recent follower of this blog, americanbadassadvocates, who this morning, having very generously reblogged my previous post, came up with this splendid offering titled “#NORMALAUTISTICHERE | SESAME STREET’S JULIA HUMANIZES AUTISTICS, AND SOME FOLKS HATE THAT“, which I link to by way of the image below.

This brings this section to a close because although I have a couple more links to share they are on the same theme and I have chosen to give them a section to themselves…

LOOKING AHEAD –
ACCEPTANCE TO APPRECIATION

Autism Acceptance Month is a better title than the old title for this month. Some however, and I fully sympathise with their reasoning, consider that even this is inadequate, and have introduced another title, Autism Appreciation Month. This appeals greatly to me, as an extension of the principle by which the title Autism Acceptance Month was arrived at. I have two superb posts to link to which between them make a good case for Autism Appreciation Month:

  1. Eclectic Autistic, whose post titled “Autism Appreciation” appeared not long after my own post of yesterday. Click on the screenshot below to read this excellent post in full:
    AutismAppreciation
  2. Finally, no post of this nature would be complete without something from thesilentwaveblog. This post, titled “#RedInstead ~ Autism Acceptance / Appreciation Month” both fills out the case for Autism Appreciation Month, and provides some detail as to why I am not using blue in the text sections of this blog during April, and why with blue ruled out I made red the first colour to appear. To read it in full please click on the picture below.

SOME FINAL WORDS

At some point in the near future I will be putting up a general sharing post, and a post about public transport specifically. Also, this afternoon I will be attending a Musical Keys session, and I will take plenty of photographs there for sharing – this session will definitely feature in a blog post as well. I have no doubt that I will also find plenty more excellent autism related posts to share. My final words before the photo section are these:

“DIFFERENT” AND “LESSER” ARE NOT SYNONYMS

and

ENJOY AUTISM ACCEPTANCE/ APPRECIATION MONTH!!

PHOTOGRAPHS

pb1
The first five pictures in this selection were taken on Sunday.

pb2pb3pb4pb5

squirrel1
These last two pictures were taken on Thursday.

squirrel2

 

 

 

Autism Acceptance Month

Setting the scene for Autism Acceptance Month, explaining why the original title, Autism Awareness Month is no longer acceptable. Numerous links and photographs.

INTRODUCTION

This post is by way of setting the stage for April, which starts tomorrow after all. As well as my own stuff this contains links from other autism related sources. The title of the post begs a question…

WHY NOT AUTISM AWARENESS MONTH?

There are two parts to the answer to this question:

  1. The original title is tainted by its associations. A very large organisation which I shall not name (think blue jigsaw pieces though) which presents itself as an autism charity but should be treated as a hate group uses this name. Although I am separated from this organisation by the width of the Atlantic Ocean I am a thoroughgoing internationalist and therefore stand in solidarity with autistic folk across the pond and refuse to use the tainted title.
  2. Even aside from being tainted the title is not fit for purpose. Awareness by itself means precisely nothing. I have created a simple graphic showing how things needs to progress from the basic starting point of awareness:
    AUA
    It is from that final goal of acceptance that the alternative title, coined across the Atlantic for reasons I have already stated, and gratefully adopted by me, comes. I have chosen white text against a purple background for my graphic because purple is the colour used by the National Autistic Society (NAS), and I am branch secretary of NAS West Norfolk.

SOME AUTISM RELATED LINKS

I start with this section with a link to a very detailed listing of blogs by people who are #actuallyautistic. To view this valuable resource in full please click on the screenshot below:

AABL

Next up is a piece from Eclectic Autistic titled “Wrong Model, Wrong Research”. This piece attacks what the author calls our society pathologizing difference and I recommend that you read it, which you can do by clicking on the title above.

Now we come to one of the pieces that inspired this post. It was created my mamautistic, and has the title “Being Autistic is Everything – Autistic Acceptance” and you can access it by clicking the image below.

Next we come to a good news story from the Irish Times. Shannon Airport has become the first airport in the world to open a sensory room for the benefit of autistic passengers. For the full story click on the graphic below which is taken from it.

Ryan Cunningham (4) from Gaelscoil Donncha Rua, Shannon tries out Shannon Airport’s new sensory room. Photograph: Diarmuid Greene/True Media

We now come to a special subsection of this sharing section of the post…

A SILENTWAVE SMORGASBORD

The silentwaveblog has played a major role in inspiring this post, with one post in particular, the last of the three I shall be sharing, virtually setting the creation of this post in motion. 

  1. This piece, titled “The Double Edged Sword of Labels in the Autistic World”, is quite simply the best analysis of the rights and wrongs of labelling that I have ever come across. It also ends with a splendid vision of a future that may just be within reach. To read in full please click on the image below.
  2. Next we have “The problem with the OWN channel’s ‘For Peete’s Sake’ reality show“, which is an excellent critique of a newly launched TV show. This show may (being charitable) have been created with the intention of being part of the solution but it is quite clear from silentwave’s analysis that poor/ absent research plus maybe a bit of laziness has turned it into part of the problem. Click on the image below to read in full.
  3. The post that I regard as having pushed the starter button for this one was put up the day before yesterday and is titled “Update, March 29: what I’ve been doing lately & Autism Awareness Month“. I posted a comment in response to it when I first saw it, and the enthusiastic response from silentwave to that comment prompted to me to expand on it here. To read it in full please click on the graphic below.

THE FINAL SHARE: A VIDEO

This video, called Amazing Things Happen, has already been viewed almost 2.5 million times. Having seen it on facebook I offer you this link. Below is Amazing Things Happen’s own description of the video:

Amazing Things Happen

An introduction to autism that aims to raise awareness among young non-autistic audiences, to stimulate understanding and tolerance in future generations.

It is intended to be viewed, discussed and shared widely by anyone but especially teachers and parents.

PHOTOGRAPHS: A MEETING OF TWO SPECIAL INTERESTS

Regular followers of this blog will be well aware that I always like to include some of my own photographs somewhere in my posts. Since this post is by way of being an introduction to Autism Acceptance Month I decided to theme this section created from one of my special interests, photography, around another, railwayana. You will note the use of the phrase “special interest” in preference to “obsession”, with the latter having negative connotations. Similarly it is preferable to refer to Autistic Spectrum Conditions rather than Autistic Spectrum Disorders. Here are those pictures…

DSCN5307
This was given to me by a work colleague (four images).

ASLEFDSCN5308DSCN5309

1-10pics
These are the pictures I took of lot 369 and said in my previous post that I would be sharing them on here. I omitted to capture the text for cards 41-50, but otherwise this gallery is complete and has some close ups as a bonus.

1-10text11-20pics11-20text

21-30text
You will notice that having started with British cards this set also has some international ones.

21-30pics31-4031-40pics41-50pics

EgPalpics
The first of eight close up pictures, each of which features two cards. Only one of the four pairs of cards chosen for this treatment is British.

EgPaltextRh-SopicsRh-SotextSSRpicsSSRtext

Undergroundpics
The only British trains to merit a close-up in my gallery.

Undergroundtext

I end this piece with another showing of the graphic that appeared in the introduction and then a final message:

AUA

ENJOY AUTISM ACCEPTANCE MONTH!!

James and Sons March Auction

An account of James and Sons’ March auction with lots of photographs. Also a brief mention of the theme of my next blog post.

INTRODUCTION

James and Sons’ March auction took place on Monday, Tuesday and Wednesday of this week, with the first two days taking place at our premises on Norwich Street, while the third took place at Fakenham Racecourse.

DAY 1: LOTS 1-500

I arrived at the shop at 8:30AM, the setup was accomplished with no serious hitches, and the sale got underway at 10AM as planned. The first lots to go under the hammer were coins, and a few of them sold well, with a large internet presence making up for the fact that we had very few people bidding live. After coins came banknotes and related epehmera, including the first Traveller’s Cheques to feature in a James and Sons auction. Here are some pictures of lots in this part of the sale…

25
This was lot 25
140
Lot 140.
254
Lot 254 (two images – the first Travellers Cheque lot)

254-a255-a

255-b
Lot 255 (six images, the other Travellers Cheque lot)

255-c255-d255-e

The remaining lots to go under the hammer on day 1 were cigarette cards, Liebig cards and match attack cards. None of these fared especially well. I therefore end this section with a picture of one lot that did sell and will feature in much more detail in my next post…

369

Lot 369 went to me. My next post on this blog will be about what I shall be referring as Autism Acceptance Month in preference to the older, less expressive and misappropriated (I won’t name the culprits, but if you want a clue think blue jigsaw pieces) Autism Awareness Month, and I shall display these pictures in the context of talking about special interests. 

DAY 2: LOTS 501-950

This was in many ways the most stressful of the three days, because in addition to the middle part of the auction it featured the setup at the racecourse to enable people to preview the third day lots in advance. The auction part of the day was very quiet, although there was one brief moment of excitement around lot 696, a Chinese stamp for which I do not have an image (I rarely do stamps these days because they are easy to scan and my time is better spent doing the more difficult imaging). 

After the auction part of the day finished I helped with the unloading of items of the racecourse to be set up for the morrow, took some close up photographs of a couple of items that were needed to enable me to answer last minute queries and walked back to the shop (it takes about 15 minutes from the Prince of Wales Suite, the part of the racecourse where we hold our auctions) to edit the images and answer the queries. I also got a small amount of April imaging done before closing time (having arrived early to ensure that I had time to do the IT setup, and given the day that I knew to lie in store for me on the morrow I was not going to burning midnight oil, and when the last of my shop based colleagues finished his day at 3PM and I had seen him out I called it a day myself. Here are some pictures of the lots I was answering 11th hour queries about…

DSCN5315
The first five of these images relate to lot 1142.

DSCN5316DSCN5317DSCN5318DSCN5319

DSCN5320
The remaining images relates to lot 1117 – a gun stock without the barrel which would have been stored inside it. Both these items sold for good money in the end.

DSCN5321DSCN5322DSCN5323DSCN5324DSCN5325

DAY THREE: LOTS 951-1560

In view of the fact that the catalogue advertised viewing at the racecourse from 8AM I decided to get the first bus of the morning to Fakenham, which leaves King’s Lynn at 6:28AM. I was therefore outside the Prince of Wales Suite at about 7:30AM, and had to wait for someone else to arrive with a key to open it up. Still, while waiting I did get this picture:

lbs

With the setup accomplished, and knowing that all was working properly I could get some pictures from the venue (the first had actually been taken the day before):

The books at the near end of this shot did exactly as expected (those familiar with my opinions ion the subject of books at auction will have no difficulty working that one out).
Sadly this sledge failed to sell, largely because at the last moment the vendor put a reserve of £55 on it.

After a fairly quiet start to the day the militaria sold well and the toys/ collectors models also fared well. As on the first two days it was the online bidders (who by the end of the auction numbered some 350) who were responsible for most of the action. The auction finished, it remained to dismantle the sale, load the goods up and transport them back to the shop. This was accomplished just quick enough for me to get the 3:35 bus home. The third day more than made up for the comparative quietness of the first two. James and Sons next auction is on April 24, 25 and 26, with all three days happening at our shop on Norwich Street. Here are a few final pictures to conclude.

951
This was the first lot under the hammer on day 3.

951-a951-b

1110
This lot was the subject of query that led to the taking of a number of extra images (the sale price justified the extra work many times over)

1110-dea1110-m1110-m11110-m21110-m3

1301
This was the first of toy/ collector’s model lots.
1458
This little thing did not make big money (I will be collecting it and paying for both lots that I won when I go back to work on Tuesday).

Some Thoughts on Autism

A post about autism featuring some of my thoughts, a petition that I urge you all to sign and share, some highlights from other blogs by autistic people and some of my own photographs.

INTRODUCTION

The origins of this post lie in a quote from a post on includedbygrace which I include here as a combined screenshot and link to the original.

Angela

Since seeing that I have seen several posts on autistic blogs that I wish to share with you, come across a petition that is so important that I feel I must share it and ask my followers to sign and share it as well. Also, the imminent approach of April has prompted me to think once again about…

AUTISM AWARENESS, UNDERSTANDING AND ACCEPTANCE

I am more than a little ambivalent about ‘autism awareness month’, and my misgivings are twofold:

  1. To be worth anything awareness must be the most basic of starting points, and needs to lead on towards understanding and ultimately acceptance (see the quote from includedbygrace in the introduction). 
  2. If you consider autism during ‘autism awareness month’ and not for the rest of the year that is simply not good enough. Autistic Spectrum Conditions affect those who have them every day of every month.

This leads on the role of…

AUTISM CHARITIES/ ORGANISATIONS

As someone who is both #actuallyautistic and involved in the running of a local branch of an autism charity I am obviously supportive of some of these organisations. However I am very firm in saying that such charities or organisations must be dedicated to improving the lives of autistic people, and that they should make conscious efforts to include #actuallyautistic people in the running of the organisation. 

There is one very large organisation based across the Atlantic from me which I shall not name (both because I am not a fan of naming and shaming, and also because I do not wish to give them any more publicity) who promote themselves as an autism charity but are in actuality nothing of the kind. They did fairly recently amend their homepage to remove from it references to seeking a cure for autism, but it did not require much scrutiny for it to be obvious that this was not a leopard changing its spots but a leopard trying to con people into believing that it had changed its spots.

I conclude this section by re-emphasing that awareness is not a final goal, it is merely the starting point on the following path:

AWARENESS – UNDERSTANDING – ACCEPTANCE

SOME AUTISM RELATED SHARES

I am now moving to sharing some other stuff I have found, starting with…

A VERY IMPORTANT PETITION – HARRY’S LAW

This petition, calling for an urgently needed change in the guidelines used at hospitals when dealing with autistic children, to be known as Harry’s Law, contains a video as well as a lot of explanatory text. I shall embed the video below the screenshot that I am using as a link. I urge all of you to read the text, watch the video and sign and share the petition. 

Harry's Law

UNASHAMED

Here I am linking to a post on elephantsneverforgetsite, and I am using a screenshot of the end of the post as the link.

elephantsneverforget

THE SILENT WAVE

It is hardly news by now that I am a big fan of thesilentwaveblog, and there have been several excellent posts from that quarter of late. We start with a post titled “Conformity does *not* make life “less difficult” for Asperger’s / autistic people”, which I link to by way of the splendid picture that heads it.

My next share from this splendid blog is a collection of autism related online quizzes. I sampled one of these quizzes, and may check out others in due course. The language used to convey the implications of your result is not always well chosen. I was told at the end of the one I did that I almost certainly “suffer from an Autistic Spectrum Disorder”. No – I have an Autistic Spectrum Condition – what I suffer from is the attitudes of people like whoever deemed that an appropriate form of words. Once again, I use an excellent graphic from the original as the link.

My third link from this source is to an excellent post about being diagnosed with an Autistic Spectrum Condition in adulthood. The title of the post is “Relief and grief ~ the reality of adult Asperger’s / autism discovery”. It must be stated that of the two emotions referred to in the title of this post relief comes first in more ways than one – it is the more significant, the more constructive, and certainly in my own case was very much the dominant one. Once again I am able to link by way of a headline picture:

I complete both the silentwave tribute and the sharing section of this post my once again pointing readers of this blog to the marvellous “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” which you can visit by clicking the link below:

SOME PHOTOGRAPHS

I end this post with a few of my own photographs, which in terms of what is relevant to this post the following in common:

  • All were taken by an autistic person (me), and
  • All feature one of that autistic person’s special interests.
967-a
All of these pictures are in fact close-ups of parts of lots that will be going under the hammer in April, and the special interests to which they relate are public transport, science and nature. All of the lots that these images relate to are numbered between 968 and 985.

 

All of these pictures are in fact close-ups of parts of lots that will be going under the hammer in April, and the special interests to which they relate are public transport, science and nature. All of the lots that these images relate to are numbered between 968 and 985.

976-a976-b982-a983-a983-b983-c

984-a
As one of my favourite science blogs says “It’s an amazing world of science…let’s go exploring!” You could start by clicking this image to visit them.

985-a

 

Public Transport (and more Spring Photos)

More spring photographs following on my last post, likewise some appropriately themed music, some stuff about public transport, some autism related links and some other links.

INTRODUCTION

This is a follow up to my previous post, but after the photographs I will be sharing a number of links as well. Here is some appropriately themed music once again – Igor Stravinsky’s “Rite of Spring”.

THE PHOTOGRAPHS

Immediatelty I had put up the previous post I set off on another walk. Although I did not manage to capture any more butterflies I did get plenty of splendid pictures.

Corn Exchange
The Corn Exchange

HG

St Nicholas
St Nicholas Chapel
Cats
Cats on a pipe that crosses Bawsey Drain

DrakeMoorhen1sparrowsblackbirdDrake headMoorhen2

sunlight
sunlight on water and exposed mud flats
Waterfall
The upper Purfleet following much needed clean up work.

AN EXAMPLE OF THE DAFTNESS OF BRITISH PUBLIC TRANSPORT

This too has some photographic content. I made passing mention of a daft situation involving public transport in Norfolk in my post “Network Autism”, and now I am following up on it.

bus
A return journey from King’s Lynn to Norwich on this style of bus, going by way of Fakenham, Lenwade, Hellesdon, Taverham and Drayton costs £5.50…
X1
A return journey from King’s Lynn to Norwich on this type of bus, going by way of The Hardwick Industrial Estate, Middleton, Narborough, Swaffham, Dereham and Easton costs £11 – twice as much as in the other style of bus.

Although the routes taken differ, the distance covered and the time taken to cover that distance are similar, and therefore so too is the fuel consumption of the bus. The First Eastern Counties X1 route is available almost the whole day, whereas the Stagecoach X29 route is more restricted timewise, with the first bus leaving King’s Lynn at 6:28AM and the last return bus leaving Norwich at 5:20PM (and the other way around the restriction is greater because the depot is in King’s Lynn. 

This is the sort of nonsensical situation that can arise when public transport is in the hands of greedy profiteers rather than being publicly run and publicly accountable. There is no rational justification for the same journey costing twice as much by one route as by another like this.

LINKS

For today this section divides into two subsections, starting with…

AUTISM RELATED STUFF

I start with a link to a post on Mamautistic, titled “Not an Excuse”. This post is liberally laced with links of its own that I recommend you to follow up. Click on the picture below to read it in full.

My remaining links in this section are to posts on thesilentwaveblog. First up is a post titled “Asperger’s / autism may not be a disability only (but we *do* need to treat it like one)”. Please click on the image below to read this post, which is detailed and well reasoned, in full.

Next comes a post with the title “When an “official” Asperger’s / autism diagnosis is just a formality”. This one is is super-detailed but very well worth the read. Once again, there is an image that I can use as the link.

Finally, to end this subsection, although I reblogged the magnificent ‘put the boot on the other foot’ type post “The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people” earlier today it is so good that I feel another plug is in order, so if you have not already read it please click on the image below to rectify the omission.

OTHER LINKS

I start this section with a horrifying story from The Canary about how some girls in Britain in 2017 are missing school because they cannot afford sanitary products. Click the image below to read this piece.

Girls are missing school because they can’t afford sanitary products. In Britain. In 2017.

My last two links go together – not only are both to pieces on Skwawkbox, both are to pieces about Tory election fraud:

  1. The first one is titled “#TORYELECTIONFRAUD JUSTICE REQUIRES FULL RECKONING, NOT #MCKINLAY AS SACRIFICIAL LAMB” – as usual I am using an image as the actual link.
    mckinlay
  2. The second piece deals with a ‘tactic’ that the Tories are using as a supposed form of defence, and is titled “TORY ‘NO INTENT’ #ELECTIONFRAUD CONFIDENCE IS A NON-STARTER. HERE’S WHY”. Click the image below to read the piece.
    newsnight intent.jpg

 

 

 

 

The Hitchhiker’s Guide to Neurotypicality: a handbook on the rest of the world for Asperger’s / autistic people

The best ‘role-reversal’ type piece of autistic blogging that I have yet come across – I will probably be linking to the original again, especially as in not very long I have a birthday coming up that relates to the title of this post…

Laina Eartharcher's avatarthe silent wave

(Beginning note: this is meant to be equal parts satire, seriousness, and helpful.  It’s not meant to sound superior, condescending, or anything else.  As usual, what follows is strictly my own opinion.  Also, the words allistic and neurotypical (often abbreviated “NT”) are, for these purposes, used interchangeably to refer to non-autistic people.  And last but not least, please understand that this is not directed at all allistic people…only the people who fit the description.)

~~DON’T PANIC~~

Far out in the uncharted backwaters of the unfashionable end of western civilization lies a small unregarded segment of the population.  This population has a problem, which was this: we’re largely invisible. Many solutions were suggested for this problem (Autism Awareness, Light-It-Up-Blue campaigns, etc), but most of these were largely concerned with “fixing” the people on the spectrum, which is odd because on the whole it wasn’t the spectrum people that needed fixing. And…

View original post 2,519 more words

Network Autism

An important autism related meeting in Dereham plus a few shares and some photographs.

INTRODUCTION

As well as my title piece, which as promised yesterday, is about the meeting in Dereham organised by Autism Anglia and ASD Helping Hands that I attended this morning. Karan and I were a little late arriving as she could not leave before the person who would be looking after her son had arrived and I had arranged a meet up point at The Gatehouse since while I was definitely up for the meeting I was not up for forking out the £11 it would have cost to me travel there and back under my own steam (at some point I will be putting up a post on public transport that will highlight why this particular shortish journey is so extortionate – for the moment suffice to say it has nothing to do with logic, reason, meeting passenger needs or anything else that has any place in the proper running of a public transport system). This meant that although we were able to introduce ourselves we missed most of the other people’s introductions. 

THE MEETING

The meeting had been arranged to discuss amendments to an autism strategy document which as it stood was laughably incomplete. Autism Anglia and ASD Helping Hands were effectively doing the kind of outreach stuff that Norfolk County Council should have been doing but weren’t. The County Council’s own meetings about such matters are invariably in Norwich, generally with a requirement that one arrive by 9:30. Before moving on to NAS West Norfolk’s role in the events of this meeting I will mention two things from the preliminary talk that caused hackles to raise. First, Norfolk County Council’s person responsible for co-ordinating matters relating to autism appears to have his fingers in a suspiciously large number of pies, and extending from this seems to be overly averse to scrutiny (as a West Norfolk resident who has the incinerator debacle seared on his memory I am naturally inclined to be mistrustful where Norfolk County Council are concerned – although we eventually won that one and the thing did not get built). Secondly there is the role of Norfolk Steps, who seem to have a monopoly on training provision for parents and carers and to be very reluctant to see that change – one person at the meeting had tried to use their materials to provide training and was told to desist. Another strike against Norfolk Steps from our point of view is that their training is not autism specific.

The key pages of the inadequate document that we were trying to improve were pages 16-19, and there was little we could do about what was on page 16, so as we seated around three tables each table was assigned a page to look at and make additions to. Ours was page 18:

P18

I have already covered a lot of the problems with Norfolk Steps, but there is one extra point – they have recently had their funding reduced, and no longer offer “steps plus” to parents. 

There were a few additions to point 5, which started our page. Point 6 was the single most inadequately expressed point in the whole sorry document. For this point to be worth the ink and paper it has to contain chapter and verse – the specific Act of Parliament and the specific clauses contained therein that are of most relevance. 

Anne Ebbage of Autism Anglia will be passing all the points raised at this meeting on to the council, and if the final version of this document is not massively changed and enlarged there will be trouble.

This was a very useful and productive meeting, and I hope it will play a role in dragging Norfolk’s approach to autism and autistic people out of the dark ages wherein it seems to have been stuck for some time.

A SEGUE LINK

The first part of this post has been about autism, and so I introduce the remainder of it by way of a link to an interesting piece by The Inked Autist. My views are rather different to those expressed in this post, but I recommend that you read it here.

A BUSY WEEK FOR DPAC

That title is no overstatement – this section contains a link to a post on the DPAC website and two embedded videos. 

The post, which gives this section of this post its title, can be accessed by clicking the DPAC logo below. Then you can find the two videos, which are both about a protest outside Parliament. The first video was created by Let Me Look TV, the second by Steve Topple of The Canary.

DPAC

PHOTOGRAPHS

I had planned to include more stuff in this post, but a malfunction has prevented that – I have just lost a large amount of stuff that was in here and have no way of getting back, so here are the photographs.

blackbird2WLC

magpie
A magpie near the pick up point in Lynn this morning

MNR3MNR2

MNR1
Three shots featuring a stretch of the Mid-Norfolk Railway in Dereham
Ecocity
One of the “Ecocity” towers near Swaffham – even in this picture, and still more so in the further edited version the observation room near the centre of the propeller is clearly visible. The original shot from which this picture and the next were both obtained was taken through the window of a moving car.

Ecocity - Editedblackbird4blackbird3propelleaf

 

Asperger’s / autism vocabulary 201 ~ a proposal toward a 21st-century shift

Excellent stuff from thesilentwaveblog…

Laina Eartharcher's avatarthe silent wave

Yesterday, I celebrated six months of awareness of my true nature: I am autistic (Asperger’s).

This does not make me an expert (at least, not in the academic sense).  It doesn’t grant me a magical power to speak for anyone else.

In the last six months, I’ve investigated this topic–and indeed this “alternate world” (at least, for me) with abnormal intensity.

But really, all I was doing was searching for terms and ideas that more-eloquently described what I had already been experiencing throughout my entire life.  I had already felt those feelings, thought those thoughts, and struggled with those invisible differences; what I learned during my searching merely helped me identify and articulate them.

During this search, however, I noticed some patterns (ha) that struck me.  The official diagnostic criteria and other conventional authoritative sources of information focused on what they observed through their own perspective lens; specifically, what they…

View original post 2,144 more words